bsky.app/profile/mari...
I´d been tired of the questions about eventual chemo therapy or cancer, tired of explaining that I have #Lupus, so I wore that baseball cap outside for months, but my hair grew back on its own at the end.
@clevelandclinic.bsky.social

My Recovery Time for Simultaneous Bilateral Patellar Tendon Rupture — What happens when you have Lupus, and are on long-term steroid therapy.

"To me, it was just part of a regular #Lupus or #Sjogrens #PainFlare. That is a huge problem with chronic, #autoimmune disorders..You often get so used to living with pain that you sometimes don’t notice when a pain is ‘not normal’ anymore.": buff.ly/Tpp5EEN

#ChronicPain #MondayBlogs #disability

I haven't been diagnosed with any type of myositis, but my back muscles sure feel like they're myositis-ing lately, with swelling and everything.
#lupus

Gut microbe R. gnavus could be key to lupus, lupus nephritis pathogenesis A bacteria found in the gut may “very important” to the development of lupus and lupus nephritis, according to a speaker at the Basic and Clinical Immunology for the Busy Clinician symposium.“We have…

"Rheuminococcus gnavus #bacteria may be associated with #lupus and #LupusNephritis. Treating R. gnavus could limit the need for #biologic or DMARD therapy in some patients with lupus.": buff.ly/3i05kAX

via @gohealio.bsky.social
#MedicalResearch #GutMicrobe #autoimmune #ChronicIllness

bsky.app/profile/mari...
None of these, I´d had a too high blood pressure for a whole week lately, but monitored it for about 2 weeks in the mornings and evenings, noted the values, it´s normal/low again. Maybe I´d had a #Lupus flare.
@lupusuk.bsky.social @lupus.org

#easter #weekend 💛 London Life #outdoor #spring 🌸 #active www.gelliottservices.com Lupusfit™️ #freelance spring cleaning #mind #body & garden #yoga #fitness #health #wellbeing #muscle #tone #strength #stretch #heart #exercise #goals #Motivation General & #Lupus #raynauds #CKD #advocate #awareness

🧠 Ever have trouble finding the right word, remembering details or concentrating? Up to 80% of people living with #lupus experience brain fog at some point.

💜 Learn more about lupus brain fog, what causes it, and ways to manage it:
buff.ly/XDyUFT3

Familial lupus associated with a P2RY8 variant: navigating the boundary between monogenic disease and genetic susceptibility to #lupus. New report from Clémence David, Marie-Louise Frémond @institutimagine.bsky.social and colleagues: rupress.org/jhi/article/...

@esidsociety.bsky.social

💜 For the #lupus community, stress management may directly impact flare frequency and severity. Small changes to how you manage stress can go a long way.

Learn tips for managing stress with lupus: buff.ly/fFv3icz

Reshare this post to help raise awareness!

El lupus es una enfermedad invisible para muchos 👀💜 Por eso FELUPUS trabaja para sensibilizar y generar conciencia social 🌍✨ #Lupus #Visibilidad #Conciencia #Salud

Missed our latest #Lupus & You webinar on kidney health? 💜 Our new blog recap covers everything from recognizing early warning signs and monitoring to treatment options, lifestyle habits, and advocating for your care with confidence.

Read more: buff.ly/KmKykMj

💜 This #StressAwarenessMonth, we're thinking about the #lupus community.

For people with lupus, stress can trigger flares and worsen symptoms. The good news? There are steps you can take to manage it.

Check out our stress management tips: buff.ly/fFv3icz

Spring Into Action: 35 Challenge Spring into Action this April & May! Walk, run, cycle, wheel, swim, or donate £35 - your way, at your pace. Every Mile and £1 donated helps us raise vital funds to support those living with this ofte...

Also for UK #Lupus patients, or for those who can donate, I´m German and on #SocialSecurity, so #SharingIsCaring.
💖💖💖
Spring into Action this April & May!
www.justgiving.com/campaign/spr...
@lupusuk.bsky.social

For #Lupus patients in the UK, for me as German longtime #SLE patient since 1992 #SharingIsCaring.
💖💖💖
lupusuk.us3.list-manage.com/track/click?...
@lupusuk.bsky.social

El apoyo emocional también cura 💜 FELUPUS fomenta espacios seguros donde compartir experiencias y sentirse comprendido/a 🤗✨ #Lupus #SaludMental #ApoyoMutuo #FELUPUS

#firstdayofthemonth ☝🏾London #indoor #outdoor + Hospital: Lupus💜Life. #spring #active www.gelliottservices.com Lupusfit™️ #freelance #mind #body #yoga #fitness #health #wellbeing #muscle #tone #strength #stretch #heart #exercise #goals #Motivation General & #Lupus #raynauds #CKD #advocate #awareness

🎮 1 month away — #GOTEL is almost here!

Whether you stream video games, make music, craft, or create art — you can be part of the fight against #lupus. Join hundreds of creators worldwide May 1–3 or keep the momentum going all May long.

Sign up today: buff.ly/XXfvXfs

Poster for April 1st with a colorful umbrella and text listing various holidays and observances, including "April Fools' Day," "National Sourdough Bread Day," and "National Trombone Players Day," set against a whimsical rainy blue background with a cloud border.

𝗔𝗽𝗿𝗶𝗹 𝟭

• #April Fools' Day
• #Boomer Bonus Day
• Fossil Fools Day
• International #Fun at Work Day
• #Lupus Alert Day
• National Love for our #Children 👶🏻 Day
• National Sourdough #Bread 🍞 Day
• National Trombone Players Day
• US #AirForce Academy Day

#Today

Doctor visits. Medications. Insurance battles. The financial weight of #lupus is real. This #FinancialLiteracyMonth, remember our Health Education Specialists are here to help connecting you with non-medical resources for free.

Reach out today: buff.ly/u8Covx0

Detrás de cada diagnóstico hay una historia 💜 En FELUPUS dan voz a las personas con lupus, creando comunidad y visibilidad 🤝🌍 #Lupus #HistoriasReales #FELUPUS #Conciencia

Pregnancy brings unique challenges for people with autoimmune diseases – but with early planning, pregnancy outcomes can be greatly improved Advances in research and medicine have given doctors helpful tools to assess a person’s individual risk and to help prepare them for pregnancy.

" #Preeclampsia .. preterm birth & #stillbirth all occur at higher rates in women with #AutoimmuneDiseases. This is esp true for women with #lupus &.. #AntiphospholipidSyndrome.": buff.ly/pAu8IEB

via @theconversation.com
#ChronicIllness #WomensHealth #fertility #pregnancy

Myatt's Fields Park.

#lastdayofthemonth (March)🙌🏾London #indoor #outdoor #park #nature #spring #active www.gelliottservices.com Lupusfit™️ #freelance #mind #body #yoga #fitness #health #wellbeing #muscle #tone #strength #stretch #heart #exercise #goals #Motivation General & #Lupus #raynauds #CKD #advocate #awareness

🎉 Here are March's top 20 Facebook birthday fundraisers! We’re so grateful for your dedication and impact.

🎂 Got a birthday coming up? Celebrate with a fundraiser for the Lupus Foundation of America! Fuel #lupus research, support, education, and more: lupus.org/facebook

Biogen Reports Positive Phase 2 Results for Litifilimab for Treatment of Cutaneous Lupus Erythematosus Biogen announced positive results from the Phase 2 part of the AMETHYST Phase 2/3 study (part A) of investigational therapy, litifilimab at the 2026 American Academy of Dermatology Annual Meeting.

Update: Phase 2 results for litifilimab for treatment of cutaneous #lupus erythematosus show a significant reduction in skin disease activity and continued improvement over time in trial participants. Read the announcement:

Amplification cycles through ILC at the onset of lupus nephritis @frontiersin.bsky.social #SLE #Lupus
www.frontiersin.org/journals/imm...

As #NationalKidneyMonth comes to a close, kidney health matters all year long 💜 For people living with #lupus, understanding #lupusnephritis & knowing when to get screened can make a difference.

Learn more about symptoms, testing, & treatment options: buff.ly/DubOrPM

There is a strong link between poor sleep and lupus. If you have an autoimmune disease like #SLE, #lupus, or #Sjogrens, getting enough good-quality sleep is really important. Learn more here: www.youtube.com/watch?v=4uP0...

Thanks to KALEIDOSCOPE FIGHTING LUPUS

#MondayMotivation ✌🏾London #indoor #outdoor #park #spring #active www.gelliottservices.com Lupusfit™️ #freelance #mind #body #yoga #fitness #health #wellbeing #muscle #tone #strength #stretch 🫀 #exercise #goals maintenence consistency #Motivation General & #Lupus #raynauds #CKD #advocate #awareness

This #NationalDoctorsDay, we celebrate the health care teams who support people with #lupus. Having the right team matters!

💜 Our free SELF app helps you build a team. Start today and select “working with your health care team”: buff.ly/Pveb73z

Donate to Gathering love and support for Lizzie, organized by Savanna DuBose I am Savanna. My best friend Lizzie and I have been friends since 2008. We were f… Savanna DuBose needs your support for Gathering love and support for Lizzie

My daughter has Lupus. The Lupus is attacking her heart. She got double pneumonia and sepsis and while in the hospital for that she found out the has CHF (Congestive Heart Failure) She can no longer work and has a young son. Please share this fundraiser. #Lupus #CHF #Sepsis
gofund.me/32db452df