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Posts by Lupus Foundation of America

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#Lupus was featured on @jeopardyofficial.bsky.social! The clue: "Guess what, TV's 'House'? It is in fact this autoimmune disorder; the discoid type affects only the skin, not organs." The answer: What is lupus?

#LupusAwarenessMonth is 2 weeks away, help make lupus visible: buff.ly/OMLTj2a

8 hours ago 1 1 0 0
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#LupusAwarenessMonth is two weeks away!ย Get ready to make #lupus visible with our toolkit โ€” sample posts, shareable graphics, and resources to help spread awareness all May long.

๐Ÿ“ฒ Explore the toolkit: buff.ly/OMLTj2a

15 hours ago 1 0 0 0
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Meet Who_Dat_Lady โ€” #GOTEL streamer and #lupus warrior. From streaming alongside her team to connecting with others touched by lupus, GOTEL has been a source of real community and support.

Join us and streamers like Who_Dat_Lady May 1-3 and all May long: buff.ly/uasrNSt

1 day ago 2 0 0 0
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๐Ÿ—“๏ธ Today is #NationalHealthcareDecisionsDay โ€” a reminder that your voice matters in every part of your care. If you live with #lupus, learning to speak up, ask questions, and make informed decisions is key. ๐Ÿ’œ

๐Ÿ“š Read our self-advocacy tips: buff.ly/8V6JjyF

1 day ago 2 0 0 0
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๐Ÿ’œ Meet Anna. From infusion days to everyday moments, she's living with #lupus on her own terms โ€” and she's not alone. Through the LFA community, she's found connection and confidence in her scars.

Help us show what life with lupus really looks like: buff.ly/A4yG3lW

2 days ago 1 0 0 0
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Managing #lupus while navigating work, disability benefits, or finances can be overwhelming. We've compiled a list of resources, from job accommodations to legal support, to help you find assistance.

Explore employment and disability resources: buff.ly/Rv3wsSI

3 days ago 3 0 0 0
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Meet @3llebelle.bsky.social โ€” #GOTEL organizer, streamer, & driving force behind the largest #lupus charity fundraiser on Twitch. 3llebelle and nearly 200 streamers raise awareness & change the lives of lupus warriors everywhere.

Join Elle May 1โ€“3 or all month long: buff.ly/YZHLe14

4 days ago 7 3 0 0

Absolutely honored and thrilled to be an ambassador for Game On! to End Lupus. I'll be fundraising all of May, but I've got a very special #GOTEL weekend planned to kick off the month. ๐Ÿฉท

1 week ago 26 2 1 0
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So I got some news for you all...

1 week ago 11 1 0 0

It is an absolute honor to represent the Lupus Foundation of America and #GOTEL as an Ambassador alongside these great people ๐Ÿ’œ Thank you for this amazing opportunity!

1 week ago 7 1 0 0

Such an incredible honor to be a part of this! Go check out all these wonderful folks and lets kick some butt this year! ๐Ÿ’œ

1 week ago 14 1 1 0

So excited to be part of this! Looking forward to kicking off the road to 2Million this year!!!

1 week ago 14 1 0 0

Here's to year #6 participating in 'Game On! To End Lupus'! #GOTEL

1 week ago 5 1 0 0

Oh hey I'm on there!

Ready for May to be here and help raise money for @lupus.org as a GOTEL Ambassador now!

1 week ago 3 1 0 0

OH HAI!

Yes, I am proud to announce that I am now a Game On To End Lupus Ambassador for the Lupus Foundation of America

This channel/platform whether I was The_Iron_Minotaur, Indiana_Minotaur, and now my current handle NyyxVeil has gone to bat for charity since 2022

1 week ago 24 8 2 0

I am so honored to get to also announce I'm a GOTEL Ambassador now as well ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ

1 week ago 13 1 1 0

So excited and honored to be an ambassador for GOTEL ๐Ÿฅณ

As a lupus warrior, Iโ€™m passionate about raising awareness and helping us get closer to a cure ๐Ÿ’œ

1 week ago 7 1 2 0

I'm honored to announce that I've been chosen as one of the #GOTEL 2026 Ambassadors! We're excited to work with y'all to raise funds for #lupus research, patient support, and disease awareness! Join our team and we'll get you running. First stream ever? Never fundraised before? Everyone is welcome!

6 days ago 5 1 1 0
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๐Ÿ’œNEVER GIVE UP AGAINST LUPUS๐Ÿ’œ

For every shirt sale, $12 will be donated to our @lupus.org Game On! To End Lupus campaign! Any additional piece of merchandise you buy will have its profits donated as well!

Go to valkariye-shop.fourthwall.com/products/lup... and get yours today!

5 days ago 4 2 0 0
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The nationโ€™s largest #LupusAdvocacy event is just one week away and thereโ€™s still time to register for the livestream! If you canโ€™t attend, you can join us virtually and stream several sessions live on April 20.

Check out the agenda and sign up here: buff.ly/kR4x2xw

4 days ago 3 0 0 0
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If your company has an employee matching gift program, you can maximize your support for the #lupus community throughout the year by doubling or even tripling your next donation to the Lupus Foundation of America!

Visit our site to learn if your company has a similar program: buff.ly/FPQHIAz

5 days ago 2 0 0 0
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๐Ÿ’œ Congratulations to everyone who conquered their 6 in this year's Virtual 6 Challenge!

โžก๏ธ Swipe to see the impact โ€” 345 challengers logged 2,000+ miles, 300,000+ steps, and 2,000+ hours getting active โ€” raising over $60,000 for #lupus research, education, and support services.

1 week ago 1 0 0 0
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๐Ÿ’œ What does your life with #lupus look like? As we head into #LupusAwarenessMonth in May, we want to honor YOUR journey โ€” the hard days, the quiet wins, and everything in between.

๐Ÿ“ท Submit photos and help us show the unfiltered experience of lupus: buff.ly/cTPbG4F

1 week ago 2 0 0 0

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1 week ago 0 0 0 0
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I'm proud to announce that I am an ambassador #gotel @lupus.org ! GOTEL is being held may 1st-3rd, but we have events going all month long! this is my GOTEL schedule for this year! I'll be releasing individual announcements for that day's incentives and overall incentives soon! so excited!

1 week ago 8 1 1 0
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๐ŸŽฎ ๐Ÿ’œ Meet your #GOTEL 2026 Ambassadors! These creators show continued dedication to the cause, championing #lupus awareness and inspiring their communities.

Ready to join them? Sign up for the main event May 1โ€“3 or keep the momentum going all May long: buff.ly/YZHLe14

1 week ago 36 16 0 11
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New Study Finds Potential Biomarker Linking Fat Imbalance to Systemic Lupus Erythematosus A new study explored molecules carried within blood exosomes to see if changes in fat metabolism contribute to lupus.

New study highlights plasma exosomal fibroblast activation protein as a potential biomarker in #lupus, linking disrupted fatty acid metabolism to disease activity. Read the study: buff.ly/aXAnT5C

1 week ago 1 0 0 0
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Community Health Workers play a vital role in connecting people to care. ๐Ÿ’œ LFAโ€™s CHW Lupus Education & Resource Hub offers on-demand training to increase #lupus awareness, recognize signs & symptoms, & connect communities to resources.

Learn more: buff.ly/c8X1htY

1 week ago 3 0 0 0
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One of the things announced yesterday was our @lupus.org Game On! To End Lupus campaign of this year!

We will have our fundraiser on May 16th in an extra long stream! Make sure to clear your calendars!

If you want to participate, signups are still open! Scan the QR code to get all the information!

1 week ago 3 1 0 0
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After his sister was diagnosed with #lupus, Andrew found his way to make a difference โ€” one mile at a time. The LFA is building our inaugural team for the 2026 Philadelphia Marathon Weekend! 5 spots per distance.

Join us and apply by April 13th: buff.ly/LVO9aVt

1 week ago 2 0 0 0