My Recovery Time for Simultaneous Bilateral Patellar Tendon Rupture — What happens when you have Lupus, and are on long-term steroid therapy.

"To me, it was just part of a regular #Lupus or #Sjogrens #PainFlare. That is a huge problem with chronic, #autoimmune disorders..You often get so used to living with pain that you sometimes don’t notice when a pain is ‘not normal’ anymore.": buff.ly/Tpp5EEN

#ChronicPain #MondayBlogs #disability

40 People with Chronic Illness Share Their Best Pain Management Tips (What to Do if an Unforeseen Pain Flare Hits)

“When u realise a #PainFlare is happening u need to stop & realistically think what can u still do! Some plans are going to have to change- it sucks but..Yr #health has to take #priority or it’ll just keep getting worse. – Ruthy.": buff.ly/dTfNMIz

#ChronicPain #SelfCare #spoonies

How to Cope with Flare-Ups & Setbacks of Chronic Pain—with Tools to Finding ways to live with severe pain and complex chronic illness — when so much is altered by their constant presence — is a process we must learn again and again, especially with flare-ups and set

“with #allodynia translating even the most innocuous sound and stimuli to pain, it’s hard to think of anything at all beyond the moment, beyond that pain.": buff.ly/Y4UsZMH

by @apainprincess.bsky.social
#PainFlare #ChronicPain #CRPS #ChronicIllness #InvisibleIllness

12 Visible Evidence of a Body Gone Rogue (Is Invisible Illness Truly Invisible?)

"My hands are a favourite target & warning signs of an upcoming #PainFlare tend to start from there..if someone is able to hide their #pain when it is bad, imagine what it must be like when it becomes visible.": buff.ly/OtV0QGG

#ChronicPain #ChronicIllness #awareness #InvisibleIlllness

ok one of the few things helping is heat on my ribs and eating hot food. #painFlare #chronicpain

On flare days, be ready: playlists, breathing tools, and favourite comforts help your body find calm again. ➜ bit.ly/Tipsoftheday #CRPS #PainFlare #ChronicPainAwareness #SelfSoothing #Mindfulness #CalmNervousSystem #Neuroplasticity #ChronicPainSupport #InvisibleDisability #TheLongPain #burningnights

Keep a simple diary of pain triggers & flares 📓 It reveals patterns, guides care & empowers you. bit.ly/Tipsoftheday

#CRPS #CRPSAwareness #PainManagement #DailyTips #SupportCircle #MindBodyConnection #TrackYourProgress #InvisibleIllness #PainFlare #PacingStrategies #HealingJourney #PainToolkit

Painkillers - Why They're One Of My Biggest Allies For A Decent Quality Of Life

"If I can nip #pain in the bud, it saves me fr a bigger #PainFlare, where I wld need steroids instead to control it. That solution isn’t any better, as steroids come w its own set of nasty & sometimes permanent #SideEffects.": buff.ly/YeSQfcy

#ChronicPain #MondayBlogs

Hopefully this week I can be squeezed in for my #MobilityAids!

If things align & I gain some more small wins. I would like to start being able to do the things I have been missing. Small goals being reached in the positive direction mean the world to me ATM.

#ChronicIllness #Fatigue #PainFlare

A Roundup Of Biggest Pain Flare Triggers (from 40 People With Chronic Illness) In this three part series we’ll be investigating pain flares. The first part is a roundup of pain flare triggers for people in the chronic pain community.

"If I do too much or surpass my daily step count, I can count on a #PainFlare ..My 2nd trigger..is stress. When I’m #stressed, flares hit much quicker & equally as hard as activity-related flares do.” - @carriekellenberger.bsky.social ":

buff.ly/L9C102O
#ChronicPain #ChronicFatigue #spoonie

6 Energy Saving Tips for Chronic Illness to Help You Handle Energy Fluctuations Without Guilt Explore energy saving tips for chronic illness to help you manage unpredictable energy levels and stay flexible throughout your day.

"[A crash] might change the shape of your day, but it doesn’t have to erase its value..Instead of spiraling into #guilt or self- #judgment, try asking: “What’s 1 small thing I can do right now that supports me?”": buff.ly/7R9l4Bw

#ChronicPain #PainFlare #SelfCare
by @thethrivingspoonie.com

How Curiosity Can Help You Feel Less Pain! youtu.be/HMUo4voi8zg?... #CRPS #PainCare #MindBody #ChronicPain #Neuroplasticity #Pacing #Healing #TraumaInformed #Resilience #PainFlare #CRPSAwareness

Will A Virus Impact My Long-Term Function? 4th Feb, two days after a brilliant day’s photography at the London Chinese New Year celebrations, I was absolutely floored by a temperature of 38.8C. I slept for almost two days, and for the first…

“I’m not sharing this for sympathy, but to share a major challenge & unknown for those of us who live with #Fibro when other #illnesses strike, namely ‘how long will it take to get back to my pre virus levels of function..?’”: buff.ly/gr3oPkx

#ChronicPain #fibromyalgia #PainFlare
By FibroAndPhotos

Is Rest The Secret To Feeling Better? youtu.be/RaLMo1EHyY0?... v#CRPSawareness #invisibleillness #spoonielife #chronicpainwarrior #mentalhealthmatters #protectyourpeace #boundariesarehealthy #flaredays #selfpreservation #neuropathicpain #traumainformedcare #calmspace #painflare

Alt Text: A silhouette of a person in a dark cloak and hat stands before a moonlit ocean, with text "SLEEP SCHEDULE RUINED" above, evoking a moody, reflective tone.

In pain, due to severe cramps..

So my sleep cycle has been absolutely decimated.

#chronicpain #insomnia #period #cramps #depression #disabled #painflare #fibromyalgia

Adaptability is your CRPS superpower youtube.com/shorts/jQmUb...
#ChronicPain #FlareUp #Adaptability #PainManagement #InvisibleIllness #MindBody #Resilience #SelfCare #Spoonie #Wellness #YouAreNotAlone #DailyTips #PainFlare #StayFlexible #ChronicWarrior #HealthHacks #LivingWithPain #CRPSSupport

Can I just go rot in the bed? My pain is flaring. My depression is flaring.
I just want to hold my breath under water until my lungs burn, if that makes any sense.
#chronicillness #chronicpain #painflare #depression

#Endometriosis has floored me for an entire week. wtf body?

#endo #endometriosis #womenshealth #1in10 #chronicillness #painflare

Ugh. Three loads of laundry and pots and pans in the dishwasher. I'm ready for bed. #stupidbody #chronicillness #painflare

easter video youtu.be/t-ZVkeInusg?... #burningnights #CRPS #Crpswarrior #meandmycrps #thelongpain #billyandme #wagthedog #k9searchmedicaldetection #mindfuleating #painflare #chronicpain #painrelief #spoonietips #selfkindness #flarefriendly #eastercrps #crpsnutrition #healthtip

40 People With Chronic Illness Share Their Best Pain Management Tips. (A work desk with flowers, gold and pink stationery is above.)

"Those who live w #ChronicIllness are often on a #neverending life quest for balance. They need to be aware at all times of the #balance in their energy banks, to ensure that they don’t overdraw. Yet sometimes they find themselves in a #PainFlare anyway": buff.ly/MmyqQDm

#ChronicPain

Treating myself to chocolate cake in an effort to quiet all the aches & pains I caused by doing all the cleaning this week. #spondylitis #psoriaticarthritis #fibromyalgia #hEDS #painflare #chocolatetherapy

Long week. Laundry x2, dinner cooked nearly every night (dishes done too), vacuumed & shampooed living room, grocery shopped, deep cleaned kitchen, picked up my new glasses, and that mohair sweater still sleeveless because my body is a wreck. Chronic pain illnesses suck goat balls! #painflare

Allowing myself to feel shit after waking up to the second day of a pain flare after a night of poor, interrupted sleep. Sending solidarity to anyone else who might be suffering at the moment. #chronicpain #eds #painflare #painexhaustion

"When people do not understand the state that I’m in, it makes me feel even worse during a flare. So whenever I’m in such a state, I accept it & know that it’s only temporary. It will pass and I will regenerate": https://buff.ly/2I00xg6 #PainFlare #ChronicPain #InvisibleIllness #resilient #spoonie

#ChronicIllness #LifeHasShatteredMyHopesAndMyDreams #ImFine #IAmNotOkay #SomebodySaveMe #SendingOutAnSOS #PainFlare #FibroFog #BrainFog #MemoryLoss #INeedRelief #IWantMyLifeBack #Disabled #MedicallyRetired #NoDisabilityBenefits #FormerSmallBusinessOwner #ChronicPainAwareness #ChronicPainAdvocate

Text: Doctor: Wow! You must have a really high pain tolerance! Most people in you condition would be screaming in agony. Me: That s my secret, doc. I'm always in pain. Image: the Hulk looking backwards right before he hulks

#painflare lyfe

I'm in so much pain at the moment, in so many joints. I can wait for this flare to pass!It's exhausting!😩
#hEDS #EDS #painflare

Am I A Warrior? No, I Am Just Enduring Those living with a chronic illness are often referred to as warriors? But am I a warrior? No sometimes it doesn't seem so. I am just enduring

“often the use of such descriptions can add a lot of pressure for those living w a #chronicillness ..amid an extremely severe..flare; unable to fight..there is the suggestion that we hv somehow lost": https://buff.ly/2vuNHFU by @serenebutterfly.bsky.social #ChronicPain #spoonies #PainFlare #spoonie

Do not Touch Without Consent - Why It Matters for the Disabled, Chronically Ill, and Everyone Else - The Disabled Diva Blog Learn why touch consent is crucial for the disabled, chronically ill, and everyone else. Understand the physical, emotional, and health impacts of unwanted touch and how to foster respect and safety

“For those of us with #chronicillness, #touch can trigger excruciating pain. Even a well-meaning gesture—a hand on the shoulder, a pat on the arm—can ignite an unbearable #painflare": https://buff.ly/4eiMSjb #ChronicPain #spoonies