How I Lost 50 Pounds Without Dieting… Literally Without Dieting. #health #wellness #chronicillness #sugar #insulinresistance

DROPs and Giveaways! Palia time!Questing, decorating and resource hunting! #mmo #palia #twitchpartner #mmogirlie #chronicillness Twitch.tv/tatsuya_inc

Amy Scoggins’ ‘The Caretaker And The Warrior’: Advocating for Ehlers-Danlos Syndrome After her teen daughter was diagnosed with Hypermobile Ehlers-Danlos Syndrome (EDS), American painter Amy Scoggins decided to use her platform to raise awareness of the rare inherited disease. She…

"After her teen daughter was diagnosed with Hypermobile Ehlers-Danlos Syndrome (EDS), American painter Amy Scoggins decided to use her platform to raise awareness..."

#Artist #Art #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #SelfCare
💕 #Wellness

Uncertainty can be one of the hardest parts of living with a chronic condition.

Watchful waiting often brings more questions than answers.

Dr. Gary McClain shares how to cope with that space in between.

👉 www.JustGotDiagnosed.com

#ChronicIllness #MentalHealth #WatchfulWaiting

they never told me that stress is literally touching my MS every single day 😤

did YOUR doctor explain this? YES or NO 👇

#multiplesclerosis #mstiktok #mswarrior #mssupport #invisibleillness #chronicillness #msfatigue #mslife #neurologicaldisease #livewithms

Against a bright coloured swirly background, black text reads: So often, enthusiasm is thwarted by how unwell I am. Ideas and desires are unattainable. But then I count up all the ways I have achieved, overcome and thrived - even in the depths of severe chronic illness - and I know I am living as well as I can. I am living a creative life. @craftingapaththroughillness

How do you live as well as you can amidst all that chronic illness brings with it?

#mecfs #ME/CFS #invisibleillness #chronicillness #chronicpain #creativity #fibromyalgia #autoimmune #glimmers #smallwins #achievements

ME: I’m going to clean the house in one day!

BODY: Hell no, you’re not.

ME: Yep, getting started right now.

*Do one thing*

BODY: You’re whole body is on Fire!

ME: Damn it!

#chronicpain #Chronicillness

I didn't feel sad or guilty even that I didn't do anything all day. I felt sad that I Couldn't do anything. Like even pacing couldn't save me now. I'm in limbo and all I can do is wait. And rest. And be sad a little that I can't function. #Chronicillness

Sight loss and grief - My Blurred World I've been losing my eyesight since I was 3 years old and I've found myself grieving for it at times, here's my personal experience of sight loss and grief

“Part of me quietly hoped for things to stabilise following a dramatic episode of deterioration, ‘This will be the last time’ I thought, but alas, [ #RetinitisPigmentosa ] had other ideas.”: buff.ly/Rd2cbsq

by @myblurredworld.bsky.social
#VisionLoss #disability #blind #ChronicIllness

Daily Spoon Count 6/10
Pain Level 2/10
It was colder and windier than expected y'day so no hanging out at the oval. Spring can't come soon enough to the East Coast, I'm going shack wacky. Come on convertible weather! Be a work in progress today and everyday #ibd #spoonie #chronicillness #stress

#ChronicIllness

I think most people who're giving suggestions of alternetive healthcare methods are really meaning well, and not trying to be condescending.

But understand 2 things:

1/3
continue⤵️

I know I shouldn't, but fuck this body. Out of spoons when I only got up. Spent it all on making breakfast.

#ChronicIllness #Spoonie #OutOfSpoons [2/2]

Traveling With Hope: An Interview With Nicola of Earth Balance Tai Chi ***** Have you ever tried tai chi or qigong? So many of us get asked if we’ve tried yoga (to the point where some of us want to scream when we hear that word) but it seems to me that Chinese …

Tai chi & qigong for people with #EhlersDanlosSyndrome? Yes, indeedy.

#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #TaiChi #QiGong 💕 #Wellness

🧵 2 Bear in mind when reading the above article, the figures cited are 2022 figures, but the logic remains the same.

Here is the Medicare current link.

#health #chronicillness #disability #invisibleillness

www.servicesaustralia.gov.au/medicare-saf...

I Was a Diabetic. Now I’m Not. Here’s the Part No One Tells You. #health #wellness #chronicillness #sugar #insulinresistance

Rest isn't the opposite of productivity. For spoonies it IS the productivity. Without it nothing else happens. 🌿 #SpoonieLife #AntiHustle #Dreamspace #CozProductivity #ChronicIllness #NeurodivergentLife

"Please know we're still here. We’re...buried under heating pads, symptoms, + the emotional weight of...bodies that constantly betray us. We’ll come back when we can...And if you can meet us w grace, patience, and memes instead of guilt trips? Youll have our undying gratitude."

#chronicillness

Millions Missing & why I've been missing from arts on Kauai & my life in general... - Donia I haven’t sent out a newsletter in over a year because after the intense amount of work & energy I put into the Kauai Art Tour I became very ill. We live in a society that constantly tells us: Go! Go!...

Yup. 71 yrs later &we’re still diagnosed w/ modern versions of “hysteria” (severe somatic pain disorder)😒

I wrote this in 2016 (& tried to warn ppl online not to overexert in spring 2020 when I read their laundry list of mysterious symptoms “after” Covid💔)
#pwME #SevereME #LongCovid #chronicillness

I GOT APPROVED FOR A BONE MARROW TRANSPLANT!

#pnh #disability #chronicillness

#multiplesclerosis #mstiktok #mswarrior #mssupport #invisibleillness #chronicillness #msfatigue #mslife #neurologicaldisease #livewithms

Somewhere in the world a tree sprouted the same day you were born and has been growing alongside you and I think this is my favorite nature fact. 🥰

We love this 💖🌳💖

linktr.ee/thezebraalliance #mentalhealth #chronicillness #inspirationalquotes

Antiphospholipid Syndrome Emergency — Ovarian Cyst Ruptures. www . a chronic voice .com (A stethoscope has been laid flat in the shape of the pelvis, and joins with a paper cut-out of a pink uterus. Flowers and a menstrual cup are scattered everywhere.)

"It can be tricky to perform #surgery on a patient with #AntiphospholipidSyndrome, as I had the potential to clot whilst still #bleeding. That can quite literally, make a bloody mess of things.": buff.ly/YPGzS6U

#MondayBlogs #BloodClots #ChronicIllness #RareDisease #EmergencyDepartment #NEisVoid

Original post on mastodon.me.uk

Spent today editing and uploading a video for WheelyHappyDays — Sha shaving her head. Hair's been thinning for months due to FND, ME/CFS, fibromyalgia, menopause, and stress. She decided to take control of it rather than keep watching it go.

The blog post is up with the full story. Worth a read […]

Chronic illness reshapes relationships, but connection can still thrive. 

#ChronicIllness

So I have been shut down by Meta on Insta, Threads and Facebook for not following community guidelines. My crime? Posting about chronic illness and links to my podcast. Weirdos
#chronicillness #sarcoidosis

Catch a moment, catch a smile, catch a snap. #Chronicillness is not a fragment it is a life.

Weigh in with yours: https://bit.ly/4p0s853

#MyastheniaGravis #MyastheniaGravisNews #Bionews #MGWarrior #ChronicIllness #RareDisease

In August, I was scared to travel alone for the first time since my #MS got worse. I did it, it was fine. In two days, I face a new test: traveling alone in order to be a caregiver for over a week. Oh the #anxiety. But I did that. I can do this, too.

#multiplesclerosis #chronicillness #autoimmune

Insomnia and MG: https://bit.ly/46hwiP0

😴 Trouble sleeping with MG? 

#MyastheniaGravis #MyastheniaGravisAwareness #ChronicIllness #InvisibleIllness #RareDisease #MGStrong #MyastheniaGravisNews #Bionews

Discover how to navigate intimacy and angioedema: https://bit.ly/43DYuLc

Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time. 

#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews