#ChronicIllness

I think most people who're giving suggestions of alternetive healthcare methods are really meaning well, and not trying to be condescending.

But understand 2 things:

1/3
continue⤵️

I know I shouldn't, but fuck this body. Out of spoons when I only got up. Spent it all on making breakfast.

#ChronicIllness #Spoonie #OutOfSpoons [2/2]

Traveling With Hope: An Interview With Nicola of Earth Balance Tai Chi ***** Have you ever tried tai chi or qigong? So many of us get asked if we’ve tried yoga (to the point where some of us want to scream when we hear that word) but it seems to me that Chinese …

Tai chi & qigong for people with #EhlersDanlosSyndrome? Yes, indeedy.

#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #TaiChi #QiGong 💕 #Wellness

🧵 2 Bear in mind when reading the above article, the figures cited are 2022 figures, but the logic remains the same.

Here is the Medicare current link.

#health #chronicillness #disability #invisibleillness

www.servicesaustralia.gov.au/medicare-saf...

I Was a Diabetic. Now I’m Not. Here’s the Part No One Tells You. #health #wellness #chronicillness #sugar #insulinresistance

Rest isn't the opposite of productivity. For spoonies it IS the productivity. Without it nothing else happens. 🌿 #SpoonieLife #AntiHustle #Dreamspace #CozProductivity #ChronicIllness #NeurodivergentLife

"Please know we're still here. We’re...buried under heating pads, symptoms, + the emotional weight of...bodies that constantly betray us. We’ll come back when we can...And if you can meet us w grace, patience, and memes instead of guilt trips? Youll have our undying gratitude."

#chronicillness

Millions Missing & why I've been missing from arts on Kauai & my life in general... - Donia I haven’t sent out a newsletter in over a year because after the intense amount of work & energy I put into the Kauai Art Tour I became very ill. We live in a society that constantly tells us: Go! Go!...

Yup. 71 yrs later &we’re still diagnosed w/ modern versions of “hysteria” (severe somatic pain disorder)😒

I wrote this in 2016 (& tried to warn ppl online not to overexert in spring 2020 when I read their laundry list of mysterious symptoms “after” Covid💔)
#pwME #SevereME #LongCovid #chronicillness

I GOT APPROVED FOR A BONE MARROW TRANSPLANT!

#pnh #disability #chronicillness

#multiplesclerosis #mstiktok #mswarrior #mssupport #invisibleillness #chronicillness #msfatigue #mslife #neurologicaldisease #livewithms

Somewhere in the world a tree sprouted the same day you were born and has been growing alongside you and I think this is my favorite nature fact. 🥰

We love this 💖🌳💖

linktr.ee/thezebraalliance #mentalhealth #chronicillness #inspirationalquotes

Antiphospholipid Syndrome Emergency — Ovarian Cyst Ruptures. www . a chronic voice .com (A stethoscope has been laid flat in the shape of the pelvis, and joins with a paper cut-out of a pink uterus. Flowers and a menstrual cup are scattered everywhere.)

"It can be tricky to perform #surgery on a patient with #AntiphospholipidSyndrome, as I had the potential to clot whilst still #bleeding. That can quite literally, make a bloody mess of things.": buff.ly/YPGzS6U

#MondayBlogs #BloodClots #ChronicIllness #RareDisease #EmergencyDepartment #NEisVoid

Original post on mastodon.me.uk

Spent today editing and uploading a video for WheelyHappyDays — Sha shaving her head. Hair's been thinning for months due to FND, ME/CFS, fibromyalgia, menopause, and stress. She decided to take control of it rather than keep watching it go.

The blog post is up with the full story. Worth a read […]

Chronic illness reshapes relationships, but connection can still thrive. 

#ChronicIllness

So I have been shut down by Meta on Insta, Threads and Facebook for not following community guidelines. My crime? Posting about chronic illness and links to my podcast. Weirdos
#chronicillness #sarcoidosis

Catch a moment, catch a smile, catch a snap. #Chronicillness is not a fragment it is a life.

Weigh in with yours: https://bit.ly/4p0s853

#MyastheniaGravis #MyastheniaGravisNews #Bionews #MGWarrior #ChronicIllness #RareDisease

In August, I was scared to travel alone for the first time since my #MS got worse. I did it, it was fine. In two days, I face a new test: traveling alone in order to be a caregiver for over a week. Oh the #anxiety. But I did that. I can do this, too.

#multiplesclerosis #chronicillness #autoimmune

Insomnia and MG: https://bit.ly/46hwiP0

😴 Trouble sleeping with MG? 

#MyastheniaGravis #MyastheniaGravisAwareness #ChronicIllness #InvisibleIllness #RareDisease #MGStrong #MyastheniaGravisNews #Bionews

Discover how to navigate intimacy and angioedema: https://bit.ly/43DYuLc

Your condition doesn’t define your worth—take charge of your sexual and emotional well-being, one step at a time. 

#Angioedema #SexualHealth #ChronicIllness #PatientSupport #RareDisease #AngioedemaNews #Bionews

#COVID #disability #chronicillness #healthcare #cleantheair

&yes, I have called the front desk re: adult son verbally abusing his dying mother & throwing things at the wall as he shouts at 5am (I even recorded once &sent to manager) as well as him blasting TV at 2am…
They said there’s nothing they can do/call 911 😔

TW: audio
#abuse #Homeless #chronicillness

Had a really bad health crash yesterday but I'm alive...ish
Feeling really fragile tho 😴
#wip #traditionalart #dotart #stiplingart #monsterhunter #monsterhunterstories #versapietru #makilipietru #chronicillness

Boosting quality of life: https://bit.ly/4bVrjWj

#ChronicIllness #RareDisease #SpoonieSupport #MyastheniaGravisNews #Bionews

#LupusAwareness

#LivingWithLupus

#ChronicIllness

#AutoimmuneWarrior

#LupusSupport

#HealthJourney

#InvisibleIllnessLUPUS CAN'T DEFINE ME

The Messy Middle: Finding Hope When Life Refuses to Be Tidy I am in the messy middle of my life. Not the beginning, when everything still feels like clay. Wet, moldable, brimming with possibility. And not the end, when threads have been tied off and stories…

“Even sitting at the #piano. The place that once felt like oxygen became something my #body could no longer hold. Notes I used to float through now feel heavy, unsteady, often impossible.”: buff.ly/6zmzSaK

by sunbeamacres
#ChronicIllness #NEisVoid #disabled #hope #despair #grief #human

The Wyrm Workbench #2: Progress Doesn’t Always Look Like Word Count Progress doesn’t always look like word count. Sometimes it looks like scattered notes, unfinished thoughts, and a world quietly taking shape behind the scenes. And sometimes… it looks like sitting still, coffee in hand, while your service dog sleeps at your feet and the words finally come easy.

Progress doesn’t always look like word count. Sometimes it’s quiet, messy, and still worth everything. 🕯️🐾 #WritingCommunity #ChronicIllness linktr.ee/skylanarissa

A to Z Antiphospholipid Syndrome Guide - H is for Hughes’ Syndrome, Herbs, Haemorrhage and HITS (Heparin-Induced Thrombocytopenia).

"Having experimented with common Chinese and Indian #herbs in soups and foods – sometimes unintentionally – I was surprised to find out how quickly my #INR (blood clotting time) could swing.": buff.ly/wrQ752Z

#MondayBlogs #AntiphospholipidSyndrome #MedSky #BloodClots #ChronicIllness

DROPs and Giveaways! Palia time!Questing, decorating and resource hunting! #mmo #palia #twitchpartner #mmogirlie #chronicillness Twitch.tv/tatsuya_inc

Chronically ill people, during their journeys with chronic illness may resist first,then expect and finally accept reluctantly .
So they may pass through three stages , resistance, expectancy and acceptance .
#chronicillness