BREAKING NEWS for those suffering from the effects of Lupus!
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Living With Lupus : When I'm Down Music Gets Me Through #livingwithlupus #music #lupus #lupusblog
And people in my life since 2020 wonder why I've become a hermit, MIA introvert, disassociated. I was actually starting to venture out into public space a bit more and now this. #ImmuneCompromised #LivingWithLupus Thankful for my garden, small home, simple rural life.
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Steamy start to the day 🩵🧖🏽♀️
Just me and my @doterra.bsky.social
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Though ‘Grit’ isn’t on my fave list, it has a great reference to ‘having a (life) purpose’ through Jane Golden’s #lupus story (Ch.8)
Despite constant pain, her art activism shows how purpose (spirit of service) can transcend the here and now.
Lupus teaches us this, and much more #livingwithlupus
Wild to me that lupus has been known since at least the 13th century but didn't have effective treatment until the 1950s. Even today there is a very short list of medications that work. I've exhausted most of them. #lupus #disability #medical #livingwithlupus
I limped to bed today. I am so tired that my legs were shaking. I got online with my friends and laughed, saw @NursePatMacRN schooling folks and leading citizen science, and I am going to sleep happy. #LivingWithLupus is hard but it will not break my soul. I choose joy.