My Anxiety Caused Motion Sickness and Other Shituations… I’m running on fumes. Emotionally, physically, financially. The whole picture is thin right now. The good thing is that I cleaned out the Pilot (on Friday afternoon last week). Got it ready for tod…

#adelusionalpredisposition

#mentalillness #motionsick #carsick #anxiety #mindandbody #interconnected #car #trauma #EMDR #therapy #doctor #healthcare #healthcareadvocate #chronicpain #disability #stabbing #flashbacks #suboxone #recovery #touchpoints #smartwatch #PTSD #invisibleillness

The worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.

#ChronicIllness #ChronicPain #InvisibleIllness

Some days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.

#ChronicIllness #InvisibleIllness #Spoonie

The worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.

#ChronicIllness #ChronicPain #InvisibleIllness

Some days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.

#ChronicIllness #InvisibleIllness #Spoonie

The worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.

#ChronicIllness #ChronicPain #InvisibleIllness

Some days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.

#ChronicIllness #InvisibleIllness #Spoonie

Some days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.

#ChronicIllness #InvisibleIllness #Spoonie

The worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.

#ChronicIllness #ChronicPain #InvisibleIllness

Perhaps this is yet another failing of medical training: doctors have no idea what is and isn’t reassuring to a patient. “There’s nothing wrong with you” is reassuring if I have a funny-looking mole and the doctor is telling me it’s not cancer. But if I’m so sick I’ve lost my job and my life is falling apart, then “there’s nothing wrong with you” isn’t reassuring, it’s nightmarish. It’s terrifying. It makes you feel like you’re living in a horror film.

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From:
"How medical training promotes medical gaslighting" by K. Johnstone @kjohnstone.bsky.social

mecfs.substack.com/p/how-medica...

#hiddenillness #invisibleillness

How medical training promotes medical gaslighting K. Johnstone Apr 11, 2026 Medical gaslighting occurs when a medical professional wrongly downplays or dismisses a patient’s symptoms. It can cause serious long-term harm: PTSD, loss of confidence in medical professionals, avoidance of needed medical care, loss of self-confidence and self-worth, and a loss of support and accommodations from family, friends and employers.

🧵
"How medical training promotes medical gaslighting" by K. Johnstone

mecfs.substack.com/p/how-medica...

This is not illness specific.

#chronicillness #hiddenillness #invisibleillness

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Helping loved ones with their MG challenges Cindy Stralsoff, who has myasthenia gravis, shares why support during flare-ups means asking, not assuming, what she needs.

A body that’s trying is a body worth honoring: https://bit.ly/3ZJy7QV

#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #MGCaregiver

The worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.

#ChronicIllness #ChronicPain #InvisibleIllness

Every decision becomes a calculation.

And most people never see that part.

#multiplesclerosis #ms #mscommunity #livingwithms #mslife #invisibleillness #mssymptoms

#multiplesclerosis #mstiktok #mswarrior #mssupport #invisibleillness #chronicillness #msfatigue #mslife #neurologicaldisease #livewithms

The Road to Recovery is the Longest of Them All — Read on A Chronic Voice .com

"one of the deadly #AutoimmuneDiseases that I live with is #AntiphospholipidSyndrome. It tends to hum along in the background most days, but when it strikes, it aims for the kill.": buff.ly/NqIh84f

#ChronicIllness #BloodClots #InvisibleIllness #disability #recovery #ChronicPain #NEisVoid

Leave a 😵‍💫 in the comments if you can’t keep calm because your symptoms have other plans. #InvisibleIllness

Here’s Some Much-Needed Advice for Saying No to Plans When You Have a Chronic Illness (Without Feeling Totally Lame) Canceling plans to take care of yourself can be one of the hardest parts about coping with a chronic disease like arthritis. These tips can make it easier.

One of the hardest parts of living with a chronic illness?
Saying no to plans—even when you really want to go.

You’re not alone—and there are ways to navigate it without guilt.

Here’s how to say no without guilt:
creakyjoints.org/living-with-...

#chronicillness #spoonie #invisibleillness

Myasthenia gravis and eye health – Myasthenia Gravis News Generalized myasthenia gravis often causes eye problems, but there are ways to protect your eye health and vision.

A soft reminder that visual fatigue deserves real compassion: https://bit.ly/49Fc5Fa

#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #OcularMG

Accepting and practically adjusting to MG’s uncertainty Aaron Francis, who has myasthenia gravis, shares tips for handling fatigue and vision issues with simple daily adjustments.

A gentle nudge that your worth has nothing to do with productivity: https://bit.ly/4q83GyW

#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior 

Chronic Pain & Mental Health : 5 Detrimental Effects Chronic pain & mental health are intricately interwoven. Here are just 5 ways life with pain can detrimentally affect our mental wellbeing.

#ChronicPain & #MentalHealth are intricately interwoven. Here are just 5 ways life w/ pain can detrimentally affect mental #wellbeing.
🔗
invisiblyme.com/chronicpain-...

Via @invisiblyme.bsky.social
#Spoonie #InvisibleIllness

Finding balance: Navigating the unpredictability of myasthenia... Three patients share life hacks and coping strategies that have helped them to weather the unpredictability of myasthenia gravis.

A reminder that resting isn’t a setback, it’s strategy: https://bit.ly/49CsoTd

#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior 

#multiplesclerosis #mstiktok #mswarrior #mssupport #invisibleillness #chronicillness #msfatigue #mslife #neurologicaldisease #livewithms

Advice That Could, Quite Literally, Kill (Unsolicited advice when you live with chronic illness)

"Even #patients with the same #ChronicIllness might not understand the full spectrum of their own disorder. For example, there are actually four different types of #Lupus, with many different #symptoms.": buff.ly/WLwaNKG

#MedSky #awareness #UnsolicitedAdvice #InvisibleIllness #ChronicPain #support

“What Weaver appreciates more deeply throughout her long ordeal is how much the #ArtOfHealing has to do with listening and being open to accompanying a #patient into off-road terrain.": buff.ly/HbccjCt

from @npr.com
#PatientCare #InvisibleIllness #disability #BooksToRead #Doctors

Fatigue is not simply being tired.

It is the kind of exhaustion that pulls you out of moments you want to be part of.

It is the heaviness that makes even simple tasks feel out of reach.

When does fatigue hit you the hardest during your day? 🌘

#ChronicFatigue #InvisibleIllness #AiArthritis

Myasthenia gravis support groups and resources – Myasthenia Gravis... Myasthenia gravis support groups can provide a sense of community, as well as be a place to share advice and learn about other MG resources.

Leave a ♥️ for the people who make your days a little lighter: https://bit.ly/4qUNvqj

#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGWarrior 

Discover Hollie's story: https://bit.ly/4lDaF0K

From patient to powerhouse, she’s now fighting for a healthcare system that truly sees rare disease patients.⁠ 👊⁠ 

#Angioedema #HAE #RareDiseaseWarrior #Bionews #HAEAwareness #AngioedemaAwareness #AngioedemaNewsToday #InvisibleIllness #Misdiagnosed

Anxiety doesn’t always look like panic. Sometimes it looks like overthinking, people-pleasing, exhaustion, and hiding behind “I’m fine.” Let’s normalize the full reality of mental health.


#AnxietyAwareness #MentalHealthTruth #InvisibleIllness #YouA #BreakTheSilence

The worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.

#ChronicIllness #ChronicPain #InvisibleIllness