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You’re seeing 5% of the reality.

The other 95%?
It’s hidden — because no one makes space for it.

Before you judge someone’s pain… understand that survival often looks like “fine.”

#InvisibleIllness #ChronicPain

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You have overcome challenges that reveal your authentic strength. 🦁 #InvisibleIllness

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The mental load of managing a chronic condition is exhausting on its own. Appointments, medications, insurance calls, symptom tracking. It's basically a part-time job nobody signed up for.

#ChronicIllness #MentalHealth #InvisibleIllness

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Give yourself permission to move at your own pace.

Save this for when you need the reminder.

#MultipleSclerosis #MSAwareness #MSCommunity #ChronicIllness #InvisibleIllness

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The worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.

#ChronicIllness #ChronicPain #InvisibleIllness

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Hear more: https://bit.ly/4rq1LH3

#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior 

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Pacing With Chronic Illness: The Fundamentals That Make Everything Else Work Tired of the boom-and-bust cycle? Discover how pacing with chronic illness helps prevent crashes and create steadier, more sustainable days.

" #Pacing with #ChronicIllness asks you to leave margin, even on good days. It asks you to stop while you still feel #capable. It asks you to trust that protecting tomorrow is more important than maximizing today.": buff.ly/AMreIeo

by @thethrivingspoonie.com
#disabled #spoonie #InvisibleIllness

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Medical gaslighting occurs when a medical professional wrongly tells a patient that there is nothing wrong with them, or that their medical condition is less severe than it truly is.

Medical gaslighting can be extremely harmful to patients. The effects can include:

PTSD

Loss of self-confidence

Loss of trust in medical professionals

Not seeking needed medical care

Loss of family support (if the doctor doesn’t believe you’re sick, why should your family?)

Loss of support and accommodations at work

Medical gaslighting occurs when a medical professional wrongly tells a patient that there is nothing wrong with them, or that their medical condition is less severe than it truly is. Medical gaslighting can be extremely harmful to patients. The effects can include: PTSD Loss of self-confidence Loss of trust in medical professionals Not seeking needed medical care Loss of family support (if the doctor doesn’t believe you’re sick, why should your family?) Loss of support and accommodations at work

"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, & how it should be dealt with. Here’s where I’m at" by @kjohnstone.bsky.social

mecfs.substack.com/p/medical-ga...

#MedicalGaslighting #invisibleillness

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Video

send this to anyone who said 'I'd be so depressed if I had MS' 🧡

you are more than their worst case scenario.

#multiplesclerosis #mstiktok #mswarrior #mssupport #invisibleillness #chronicillness #msfatigue #mslife #neurologicaldisease #livewithms

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And hours later… it hits.

Be honest—

Have you felt okay… and then suddenly crashed for no reason?

Comment YES or NO 👇

#multiplesclerosis #msfatigue #msawareness #chronicillness #invisibleillness

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Navigating myasthenia gravis with mindfulness and hope Cindy Stralsoff, who has myasthenia gravis, shares the practices that help her find balance and resilience amid its challenges.

A calmer next step begins with releasing expectations: https://bit.ly/4q11NUt

#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior #Mindful #Hope

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You’re doing better than you think.

Save this as a reminder on the hard days.

#MultipleSclerosis #MSAwareness #MSCommunity #ChronicIllness #InvisibleIllness

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Medications: Part Fourteen I had a really good weekend. I’m feeling less anxious from the Honda’s airbags randomly deploying as the days pass. I’m noticing I’m still on edge a bit. I’m still needing my PRN anxiety medication…

#adelusionalpredisposition

#mentalillness #medications #prescriptions #pharmacy #RX #supplements #medicine #healthcare #doctors #functionalmedicine #advocate #selflove #anxiety #frustration #disability #chronicpain #invisibleillness #tapering #reducingdose #chronicillness #mentalhealth

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** youre too young to be [enter symptom] **
Picture of a little boy who looks "crazy" is holding a knife

** youre too young to be [enter symptom] ** Picture of a little boy who looks "crazy" is holding a knife

Tell us about it 🔪🙈
What are the different "You're too young" comments you have heard?

linktr.ee/thezebraalli...
#chronicillness #raredisease #invisibleillness #disability #dynamicdisability #mentalhealth #healthmeme #EDS #HSD #meme #memes #ehlersdanlossyndrome

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#HAE #HereditaryAngioedema #HAEawareness #RareDisease #RareDiseaseAwareness #ChronicIllness #ChronicIllnessAwareness #InvisibleIllness #PatientVoice #HealthAdvocacy #BioNews #AngioedemaNews

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The worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.

#ChronicIllness #ChronicPain #InvisibleIllness

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Some days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.

#ChronicIllness #InvisibleIllness #Spoonie

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if you have MS you know the exact moment a good day turns 💔

has this ever happened to you? 👇

#multiplesclerosis #mstiktok #mswarrior #mssupport #invisibleillness #chronicillness #msfatigue #mslife #neurologicaldisease #livewithms

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Bottom half alt text:
A distressed man sits at a cluttered desk buried in paperwork, bills, and multiple “DENIED” notices, with a crutch and medications nearby. He holds his head in frustration, surrounded by signs reading “appeal rejected.” The text emphasizes that injured and disabled people are barely surviving, overwhelmed by paperwork, financial stress

Bottom half alt text: A distressed man sits at a cluttered desk buried in paperwork, bills, and multiple “DENIED” notices, with a crutch and medications nearby. He holds his head in frustration, surrounded by signs reading “appeal rejected.” The text emphasizes that injured and disabled people are barely surviving, overwhelmed by paperwork, financial stress

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It’s appointments you can’t miss and pain you can’t escape !

It’s being treated like you’re lying just to survive !

NOBODY is “living it up” on benefits !

Full Stop !

They’re fighting to keep a roof over their head while their body is falling apart !

#Disability #InvisibleIllness

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RobinReach

RobinReach

“It can be even harder when you live with more than one type of #ChronicPain, or when #ChronicIllness adds extra layers to the struggle. Just when one part of your body starts to calm down a little, somewhere else flares up.” buff.ly/MGfPSsS @despitepain.bsky #Disabilities #InvisibleIllness

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Leave a 🎭 in the comments if you don’t do drama—just chronic illness. #InvisibleIllness

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nobody talks about mourning the version of you that existed before MS 🧡

type ME if you know exactly who she was 👇

#multiplesclerosis #mstiktok #mswarrior #mssupport #invisibleillness #chronicillness #msfatigue #mslife #neurologicaldisease #livewithms

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Talking to your children about myasthenia gravis – Myasthenia... When talking to children about a myasthenia gravis diagnosis, use age-appropriate ways to ease fear, build trust, and support understanding.

A tiny spark of strength deserves recognition, no matter how small: https://bit.ly/4hLgGYt

#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior 

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Oral health and myasthenia gravis: Key facts – Myasthenia Gravis News Oral health in myasthenia gravis requires tailored care, from managing jaw fatigue to preparing for safe and effective dental visits.

A quiet moment to honor how much you’re managing: https://bit.ly/3WFsqCi

#MyastheniaGravisNews #Bionews #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior 

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Save this for validation on hard days.

#MultipleSclerosis #MSAwareness #MSCommunity #ChronicIllness #InvisibleIllness

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Listen to their words: https://bit.ly/4q11NUt

#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior #Mindful #Hope

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Steve Irwin’s Daughter Bindi Gives Heartbreaking Update on 10-Year Chronic Illness Battle Bindi Irwin painted a vivid picture of the “indescribable, inescapable pain” caused by her condition.

Bindi Irwin is opening up about her decade-long battle with endometriosis—including years of pain, dismissal, and multiple surgeries.

Read more: thelooker.thedailybeast.com/steve-irwins...

#ChronicIllness #Endometriosis #InvisibleIllness

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Risks of taking magnesium with myasthenia gravis – Myasthenia... Magnesium supplements may worsen myasthenia gravis symptoms, so people with the disease should avoid them.

A gentle reminder: https://bit.ly/4qNtHF9

#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGWarrior #Neurology #Neurologist

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Image from @inmyhead_sharon (not sure which platform) about people who are not chronically ill, think folks with Chronic Illnesses arent doing enough to "fix it".

Image from @inmyhead_sharon (not sure which platform) about people who are not chronically ill, think folks with Chronic Illnesses arent doing enough to "fix it".

What would you add to this image?
🩵🦓🩵

Chronic Illness Resource Orgs:
Chronic Illness Coalition
Partnership to Fight Chronic Disease
NACDD
Good Days

linktr.ee/thezebraalliance
#chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability #dynamicdisability #mentalhealth

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The worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.

#ChronicIllness #ChronicPain #InvisibleIllness

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