Your mental health matters: https://bit.ly/4jEt387

Self-care, mindfulness, support groups, and therapy can all help you cope 💙

#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness  #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews

#HAE #HereditaryAngioedema #AngioedemaAwareness #RareDisease #RareDiseaseAwareness #Ekterly #HAEAwareness #PatientChoice #HealthNews #RareDiseaseCommunity #BioNews #AngioedemaNews

Hereditary angioedema (HAE) is a rare genetic condition that causes unpredictable swelling in the body, including the face, abdomen and airway. Early diagnosis and care matter. Learn more: https://ow.ly/nKM050YK662

#HereditaryAngioedema #AllergyAwareness

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A single treatment that could end HAE attacks for good: https://bit.ly/3FHecMk

Gene therapy research is bringing us closer to that reality.

#HAE #HereditaryAngioedema #GeneTherapy #CRISPR #RareDisease #AngioedemaNews #Bionews

Test Your Knowledge About the Care Team for HAE - Rare Disease Advisor Test your knowledge about the care team for HAE with this short quiz and see how your responses compare to those of others.

🧠 How well do you know the #HAE care team?

Put your knowledge of #HereditaryAngioedema to the test with this quick quiz and see how your answers stack up against others.

👉 Take the quiz: https://bit.ly/4t2Ncua

💬 Drop your score in the comments!

#RareDisease #MedSky #MedicalQuiz

#HAE #HereditaryAngioedema #HAEAwareness #RareDisease #RareDiseaseAwareness #Angioedema #AngioedemaNews #HAECommunity #ChronicIllness #InvisibleIllness #TravelWithHAE #RareDiseaseCommunity #BioNews #AngioedemaNews

Your mental health matters: https://bit.ly/4jEt387

Self-care, mindfulness, support groups, and therapy can all help you cope 💙

#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews

Your mental health matters: https://bit.ly/4jEt387

Self-care, mindfulness, support groups, and therapy can all help you cope 💙

#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews

#HAE #HereditaryAngioedema #HAEawareness #RareDisease #RareDiseaseAwareness #ChronicIllness #ChronicIllnessAwareness #InvisibleIllness #PatientVoice #HealthAdvocacy #BioNews #AngioedemaNews

#HAE #HereditaryAngioedema #RareDisease #RareDiseaseAwareness #Angioedema #Bradykinin #AllergyAndImmunology #PatientEducation #HealthAwareness #GeneticDisease #HAEAwareness #BioNews #AngioedemaNews

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Sebetralstat Shows Promise for Younger Patients With Hereditary Angioedema Children aged 2 to 11 years with HAE may soon benefit from sebetralstat, the first oral on-demand treatment option for their age group.

The KONFIDENT-KID trial is evaluating a weight-based orally disintegrating tablet formulation in younger children, using 4 dosing tiers. Presented at the 5th #ITACA National Congress in Venice.

Read more: https://bit.ly/4bHjJQ9

#RareDisease #HereditaryAngioedema #HAE

#HAE #HAENewsToday #HereditaryAngioedema #ChronicIllnessCommunity #PatientStories #RareDiseaseAwareness #RareDiseaseCommunity #InvisibleIllness #YouTubeChannel #BioNews #AngioedemaNews

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Donidalorsen Reduces Creatine Kinase and Points to Muscle Instability in HAE Long-term prophylaxis with donidalorsen every 4 weeks significantly reduced creatine kinase in patients with hereditary angioedema.

Long-term prophylaxis with #Donidalorsen administration every 4 weeks was associated with a significant reduction in creatine kinase levels in patients with #HereditaryAngioedema (HAE). Study in World Allergy Organization Journal.

Read more: https://bit.ly/4sgeQDm

#RareDisease #HAE

Discover Natalie's story: https://bit.ly/4ecE1Ra

She learned firsthand the importance of always having rescue medication ready—and how quickly it can make a difference.

#HAE #HereditaryAngioedema #RescueMedication #ChronicIllness #AngioedemaAwareness #PatientVoice #AngioedemaNews #Bionews

Discover more: https://bit.ly/4env73h

Besides swelling, HAE can bring fatigue, tingling, rashes, stomach pain, mood changes, and more. Every journey is different.

#Angioedema #HAE #HAESymptoms #HereditaryAngioedema #AngioedemaNews #Bionews

Share below!

#Angioedema #HAE #HereditaryAngioedema #AngioedemaAwareness #AngioedemaNews #Bionews

Mental health matters with HAE: https://bit.ly/4jEt387

Self-care, mindfulness, support groups, and therapy can all help you cope.

#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #AngiedemaNews #Bionews

If you’re an HAE caregiver, your load is real — and you deserve support, too. ✨ Read more about the hidden toll of HAE caregiving at the link in bio.

#HereditaryAngioedema #HAE #RareDisease #AngioedemaNewsToday #Bionews

Discover more: https://bit.ly/4env73h

Besides swelling, HAE can bring fatigue, tingling, rashes, stomach pain, mood changes, and more. Every journey is different.

#Angioedema #HAE #HAESymptoms #HereditaryAngioedema #AngioedemaNews #Bionews

Your mental health matters: https://bit.ly/4jEt387

Self-care, mindfulness, support groups, and therapy can all help you cope 💙

#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness  #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews

Your mental health matters: https://bit.ly/4jEt387

Self-care, mindfulness, support groups, and therapy can all help you cope 💙

#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews

Alexithymia Linked to Depression in HAE Cohort Higher alexithymia scores correlated with greater depressive symptoms, worse fatigue, and reduced mood-related quality of life in HAE.

Definite #Alexithymia was observed in a minority of adults with hereditary angioedema (#HAE), but overall abilities in emotion regulation were not globally deficient. Study in the Orphanet Journal of Rare Diseases.

Read more: https://bit.ly/3Oxw54o

#RareDisease #HereditaryAngioedema #MedSky

#HAE #HereditaryAngioedema #RareDisease #RareDiseaseAwareness #ChronicIllness #InvisibleIllness #ChronicPain #SpoonieCommunity #RareDiseaseCommunity #Angioedema #DisabilityAwareness #BioNews #AngioedemaNews

Your mental health matters: https://bit.ly/4jEt387

Self-care, mindfulness, support groups, and therapy can all help you cope 💙

#HereditaryAngioedema #HAEAwareness #MentalHealthMatters #ChronicIllness  #RareDisease #PatientSupport #AngioedemaNewsToday #Bionews

#HAE #HereditaryAngioedema #Angioedema #ChronicIllness #ChronicFatigue #InvisibleIllness #RareDisease #RareDiseaseAwareness#SpoonieCommunity #DisabilityAwareness #ChronicIllnessCommunity #BioNews #AngioedemaNews

A single treatment that could end HAE attacks for good: https://bit.ly/3FHecMk

Gene therapy research is bringing us closer to that reality.

#HAE #HereditaryAngioedema #GeneTherapy #CRISPR #RareDisease #AngioedemaNews #Bionews

#HAE #HereditaryAngioedema #HaeAwareness #ChronicIllness #ChronicIllnessHumor #InvisibleIllness #RareDisease #RareDiseaseAwareness #ChronicLife #ChronicIllnessCommunity #Spoonie #SpoonieMemes #KnowYourTriggers #PatientAdvocacy #BioNews #AngioedemaNews