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Abra abracadabra
I wanna reach out and grab ya... #smokeandmirrors

Walking thru the #brainfog is like going thru a Fun House mirror minus the fun bit
🌫️🪞🌫️🥄

#fatiguechronique #CFS #spooniecommunity #spoonie #webcomics #chronicfatigue

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Support group links pets and people to ease isolation for chronic illness patients Cleveland Clinic’s human-animal bond group helps chronic illness patients, like Brianna Core, find community, comfort, and improved mental health.

Pets can do more than provide companionship🐾

A support group highlighted in this story connects patients through their shared love of animals, helping ease isolation and build community.

Watch:
www.cbs19.tv/video/news/l...

#ChronicIllness #SpoonieCommunity #PetsHelp #SupportGroups

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Fact-check: Do chronic illnesses account for 90% of U.S. health care spending? A federal government campaign that encourages Americans to avoid processed foods claims that "90% of U.S. healthcare spending goes to treating chronic disease — much of which is linked to diet and lif...

A viral stat claimed 90% of healthcare spending goes to chronic illness—but that’s not the full story.

It actually reflects spending on people with chronic conditions, not just treatment costs.

Read: www.wral.com/news/state/m...

#ChronicIllness #Healthcare #SpoonieCommunity

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#HAE #HereditaryAngioedema #RareDisease #RareDiseaseAwareness #ChronicIllness #InvisibleIllness #ChronicPain #SpoonieCommunity #RareDiseaseCommunity #Angioedema #DisabilityAwareness #BioNews #AngioedemaNews

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Adaptive clothing, but make it actually helpful and stylish!

Designed for comfort, easy access, and real-life routines — from appointments to everyday wear.

#AdaptiveFashion #SpoonieCommunity

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#Dissociation #DID #DissociativeIdentityDisorder #MentalHealthEducation #TraumaRecovery #CPTSD #ChronicIllness #SpoonieCommunity #Neurodivergent #MedicalTrauma

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For my chronically ill besties — what are your favorite HR/HRV trackers? 🩺
#MEcfs #POTS #TachyGirl #ChronicIllness #InvisibleIllness #SpoonieCommunity #SpoonieLife

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Connecting with others who understand makes such a difference. You're not alone in this journey. #chronicillness #spooniecommunity #support

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Choosing Honesty Over Optimism Why Positive Mindset and Manifestation Culture Can Be Harmful When You Live with Chronic Illness

No amount of affirmations can undo nerve damage, autoimmune disease, genetic conditions, or burnout caused by years of overcompensation. #toxicpositivity #chronicillnessawareness #disabledvoices #spooniecommunity #unlearninghustle

thequietfrequency.substack.com/p/choosing-h...

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#HAE #HereditaryAngioedema #HaeAwareness #HaeCommunity #ChronicIllness #RareDisease #InvisibleIllness #SpoonieCommunity #HolidaySeason #HappyHolidays #BioNews #AngioedemaNews

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#HAE #RareDisease #HereditaryAngioedema #HAEAwareness #ChronicIllness #PatientAdvocate #AdvocacyMatters #InvisibleIllness #SpoonieCommunity #ChronicIllnessCommunity #PatientsVoices #BioNews #AngioedmeNews

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12 Days of Spoonie Holiday Tips
12 Days of Spoonie Holiday Tips YouTube video by Spoonie Threads

The holidays don’t have to look perfect to be meaningful 💙

We created a 12 Days of Spoonie Holiday Tips video to offer support, reminders, and a little breathing room this season.

#SpoonieCommunity #ChronicIllness #DisabilityTwitter #HolidaysYourWay youtube.com/shorts/JSRta...

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Happy Thanksgiving, spoonies. 💛
Whether today is joyful, quiet, challenging, or restful — we’re grateful for you and all the strength you bring to this community.
— The Spoonie Threads Team 🧡 #Thanksgiving #SpoonieCommunity

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The October Slide is hitting, & we (& many of our chronically ill friends) are feeling it.
Please keep inviting us, including us, & being patient with us.
We still want to create & connect—just at a gentler pace. 💛
#SpoonieCommunity #ChronicIllness #OctoberSlide #TheCoterieCC #CraftingMagicTogether

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You’re not “bad at adulting.” You’re just managing anxiety in a world that never stops ringing. 💛

What’s your phone call survival trick? 👇
#MentalHealth #SpoonieCommunity #Relatable

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Hashtags: #pwME #MECFS #Spoonie #SpoonieCommunity #ChronicIllness

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#HAE #GeneTherapy #CRISPR #LonvoZ #ClinicalTrial #RareDisease #ChronicIllness #PatientAdvocacy #MedicalInnovation #AngioedemaAwareness #HopeForHAE #SpoonieCommunity #AutoimmuneSupport #HealthBreakthrough #BioNews #AngioedemaNews

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Here’s to growing together, raising awareness, and making sure every voice is heard. Learn more about our team by clicking the link in our bio!

 #HAE #HereditaryAngioedema #HAECommunity #ChronicIllnessAdvocacy #HealthAwareness #PatientSupport #SpoonieCommunity #HaeAware #BioNews #AngioedemaNews

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Login • Instagram Welcome back to Instagram. Sign in to check out what your friends, family & interests have been capturing & sharing around the world.

🔗 Full raffle post & prizes: www.instagram.com/p/DOtj3ifjAP...

Image description: Mo (white, long ginger hair, blue glasses) sits on her bed and talks directly to camera. Images of the prizes pop up on screen as they are discussed.

Hashtags: #pwME #MECFS #Spoonie #SpoonieCommunity #ChronicIllness

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Over a pale background of an aerial view of coloured fields is a poem by Cath Jevon:

The Power
When untethered from routines in a body that can't keep up our spirits rise free to vision the world we want to live.
We see a patchwork field of memories, dreams, wishes
with a river of life-force flowing through.
Feeding the soul landscape
with the inspiring joy of our talents.
Like tributaries, our tides find each other, pulsing in recognition increasing our capacities expanding our possibilities
collective momentum rolling wild and free, as we commune with clouds
and circle with stars
Exploring the realms of imagination
dancing, laughing, revelling in our creative strength.
This how we uphold ourselves.
This is how we serve each other.
This is how we change the world.
This is the power of art.

Over a pale background of an aerial view of coloured fields is a poem by Cath Jevon: The Power When untethered from routines in a body that can't keep up our spirits rise free to vision the world we want to live. We see a patchwork field of memories, dreams, wishes with a river of life-force flowing through. Feeding the soul landscape with the inspiring joy of our talents. Like tributaries, our tides find each other, pulsing in recognition increasing our capacities expanding our possibilities collective momentum rolling wild and free, as we commune with clouds and circle with stars Exploring the realms of imagination dancing, laughing, revelling in our creative strength. This how we uphold ourselves. This is how we serve each other. This is how we change the world. This is the power of art.

The Power - a poem by Cath Jevon, housebound with M.E. but expressing her inner power.

#chronicillness #chronicpain #mecfs #me/cfs #poetry #nature #art #innerpower #creativity #spooniecommunity #creativewriting

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Being sick shouldn’t be a business model. Patients deserve better.

💬 What would YOU change first about the system?

#SpoonieCommunity #MedicalTrauma #SoftGritLife

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💛 Today is #WorldSuicidePreventionDay — a reminder that every story matters and no one has to struggle alone. Let’s continue breaking the stigma and showing up for one another. You are not alone. #SpoonieCommunity #EndTheStigma

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Top 13 Signs You Might Be a Spoonie | Funny Spoonie List Wondering what a spoonie is? This funny list breaks down 13 relatable signs of spoonie life, from pajama pants over real pants to rescheduling the doctor because you’re too sick.

What would you add to this Letterman-style list?

#spoonie #spoonies #spooniecommunity #spoonielife #spooniehumor #chronicillness #chronicillnesshumor #chronicillnesscommunity

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Got this idea from a follower.

Let’s make a thread about all the #spoonie things that suck. A cathartic spoonie scream into the void.

I'll start with... It sucks how you can do everything right, and still have a flare.

#autoimmune #spooniecommunity

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I cannot tell you how sick I am of hearing some of these. Particularly "But you LOOK good." How one looks is no indication of how they feel. We can hide it in a way that others never could. No one sees us on the worst of days. #invisibleillness #disability #spooniecommunity #chronicpain

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The Paradox of Invisible Disabilities “You don’t look disabled.” In this post, I expose the painful truth behind that phrase and the double bind of living with an invisible disability.

“You don’t look disabled.”
That dismissive line sums up the cruel catch‑22 of invisible disabilities—masking rewarded, pain dismissed.

🔗 www.psychologytoday.com/us/blog/brin...

#InvisibleDisability #DisabilityVisibility #ChronicIllness #SpoonieCommunity #SpoonieLife

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August is National Gastroparesis Awareness Month 💚

In honor of everyone living with this slow-moving nightmare, we just dropped a brand-new collection.

sickhumorsupplyco.com/collections/...

#gastroparesis #gastroparesisawareness #spoonie #spoonies #spoonielife #gastrowarrior #spooniecommunity

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#SpoonieSky #DisabledOnSky #SupportGroup #ChronicallyFabulous #SpoonieCommunity

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July is Chronic Illness Awareness Month—a reminder that not all conditions are visible.

📰 www.yourcentralvalley.com/cvt/july-is-...
#ChronicIllnessAwareness #InvisibleDisabilities #SpoonieCommunity #DisabilityPrideMonth

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