🩺 Good medicine isn't your doctor telling you what to do — it's your doctor giving you the information so *you* can decide.
#InformedConsent #PatientAdvocacy
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“Attention, empathy, and presence are not luxuries in clinical practice; they are necessities.”
remember to TEACH BACK!
#patientadvocacy
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Graphic from the National Patient Advocate Foundation (NPAF) with a soft blue gradient background. Large headline text reads, “Why do you love being part of our community?” Below is an illustration of a diverse group of people of varying ages, races, and abilities, including a person using a wheelchair. Text underneath says, “Share your story! Submit a photo and a response to be featured during National Volunteer Week.” At the bottom, the tagline reads, “Making healthcare work for all of us.”
As we gear up for National Volunteer Week,
what motivates you in your advocacy?
Take action using this link: national-patient-advocate-foundation.boast.io/form/why-vol...
#NationalVolunteerWeek #PatientAdvocacy #Voices4Change
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As a chronically ill human, there is no better feeling than finally scheduling with a specialist after fighting offices back and forth for referrals. Did I almost cry when the scheduler told me I could see someone next week? Maybe...
#chronicillness #IBD #patientadvocacy
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Melanie’s journey is a call to recognize that "tenderness is labor" and that true health equity requires an infrastructure designed to support the whole person.
🔗 Read the full post here: linktr.ee/NPAF
#HealthcareLeadership #PatientAdvocacy #CareCoordination #NeedsNavigation #CaregiverSupport
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A new bill in Louisiana could protect patients from aggressive medical debt collections, capping interest rates and banning liens on their homes—will it be enough to safeguard vulnerable families?
Click to read more!
#LA #CitizenPortal #HealthCareAccess #PatientAdvocacy #LouisianaMedicalDebt
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At the Genentech Experience Exchange for Patient Advocates this week in San Francisco, Ken Culver, our Executive and Medical Director, joined more than 120 organizations coming together to support the cancer community.
#ALKPositive #StrongerTogether #PatientAdvocacy
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#HAE #HereditaryAngioedema #RareDisease #ChronicIllness #InvisibleIllness #Spoonie #DisabilityAwareness #PatientAdvocacy #ChronicIllnessCommunity #RareDiseaseCommunity #BioNews #AngioedemaNews
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One week to go!
From April 22–29, we come together for World PI Week.
Because access to full care — from early diagnosis to timely treatment and support — cannot wait.
Join us!
Together, we will make this happen.
#WorldPIWeek #AccessToCare #WorldPIWeek2026 #PatientAdvocacy #WeCantWait
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I Fought, Tooth and Nail
By Barry Haslam
madintheuk.com/2026/04/i-fo...
#Benzodiazepines #BenzoWithdrawal #IatrogenicHarm #PatientAdvocacy #SurvivorStory
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Tip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.
#PatientAdvocacy #ChronicIllness #HealthTracking
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If your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.
#ChronicIllness #PatientAdvocacy #Spoonie
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Pain isn’t just a number on a scale.
It’s a sensation, a pattern, a disruption to daily life.
Learn how to talk about your pain with confidence at zurl.co/wP3oP
#PatientAdvocacy #PatientEducation #ChronicIllness #HealthEducation #AiArthritis
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I Fought, Tooth and Nail
By Barry Haslam
madintheuk.com/2026/04/i-fo...
#Benzodiazepines #BenzoWithdrawal #IatrogenicHarm #PatientAdvocacy #SurvivorStory
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“It is centered on preparing patients…to center their values, goals, and worries about their medical care within their present illness experience…”
#oncosky
#medsky
#patientadvocacy
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Tip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.
#PatientAdvocacy #ChronicIllness #HealthTracking
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Tip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.
#PatientAdvocacy #ChronicIllness #HealthTracking
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Tip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.
#PatientAdvocacy #ChronicIllness #HealthTracking
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Tip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.
#PatientAdvocacy #ChronicIllness #HealthTracking
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If your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.
#ChronicIllness #PatientAdvocacy #Spoonie
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Don’t forget to ask your doctor: “Is there a cheaper option?”
It could save you hundreds.
More here: 👉 theconversation.com/health-care-...
#Healthcare #HealthCosts #PatientAdvocacy #HealthPolicy #AffordableCare
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I Fought, Tooth and Nail
By Barry Haslam
madintheuk.com/2026/04/i-fo...
#Benzodiazepines #BenzoWithdrawal #IatrogenicHarm #PatientAdvocacy #SurvivorStory
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"Excuse vs. no excuse" is a false binary
Impairment explains why inhibitory control failed. It doesn't explain what content emerges.
Mania doesn't produce antisemitic fixations by default. That content comes from values, vulnerabilities, exposure.
Both truths hold. #PsychSky #DisSky #PatientAdvocacy
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Tip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.
#PatientAdvocacy #ChronicIllness #HealthTracking
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If your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.
#ChronicIllness #PatientAdvocacy #Spoonie
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I Fought, Tooth and Nail
By Barry Haslam
madintheuk.com/2026/04/i-fo...
#Benzodiazepines #BenzoWithdrawal #IatrogenicHarm #PatientAdvocacy #SurvivorStory
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If your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.
#ChronicIllness #PatientAdvocacy #Spoonie
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Join the World Orphan Drug Congress USA 2026! Connect with leaders, regulators, and patient advocates to advance rare disease therapies, clinical trials, and patient access strategies from June 9–11 in Boston.
For more info: buff.ly/qjKvjPO
#MedSky #OrphanDrugs #RareDisease #PatientAdvocacy
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💙 Did you know?
A Cure In Sight funds research to help bring treatments to patients faster — always with patient input. 👁️✨
💙 Donate: https://acureinsight.org/donate/
#ACureInSight #OcularMelanoma #Research #PatientAdvocacy
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