Teal blue square graphic about EDS Awareness features a large black and white zebra striped looped awareness ribbon upper left. "EDS Awareness Month" in orange text over that. A graphic of a party horn or favor emitting sparks and stars. A text bubble reads "We have lots of ways to celebrate EDS Awareness!" in teal on white. A white circular logo bottom right reads: "EDS Awareness" and "Ehlers-Danlos Syndromes". Bottom black text reads: www.chronicpainpartners.com

We've got 22 Ways to Celebrate EDS Awareness Month in May! See if one or two suit you:

buff.ly/bhtQQQ2

#EDSAwareness #EDS #hEDS #Hypermobility #HSD #MedEd #Zebras #NEISvoid #Doctors #MedX #Spoonies

Cartoon drawing of a woman laying on a sofa with a pillow over her head and the words: “Chronic illness gang rise up. Or sit. Or lay down. Ya know what, just groan if you’re still alive.”

I know that there are tons of us on social media. Sending out some good vibes to all ⭐️💗

#chronicillness #mademelaugh #spoonies #chronicallyawesome #InvisibleDisabilities #disabled #disabledartist #smileithelps #feelbetterfriday

a man in a yellow and black shirt is dancing in a diner ALT: a man in a yellow and black shirt is dancing in a diner

Don't miss today's #DanceBreak in the #ChronicLoaf stream

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#neisvoid #mecfs #DisCo #ForTinu #spoonies #cannabiscommunity

A promotional graphic for “EDS Unplugged” with bold text, photos of three women, and a large gold number 3. The main headline at the top reads: “EDS, MEDICAL RESEARCH & NEURODIVERGENCE”. A large gold “3” appears on the right side. The words “EDS UNPLUGGED” are in the center-left, with “EDS” in large black letters and “UNPLUGGED” in white letters on a black slanted rectangle. The name “JAN GROH” appears near the bottom in large pink letters. The phrase “sponsored by” appears near the center-right, next to a circular logo that reads: “EDS Awareness” and “Ehlers-Danlos Syndromes”. On the left is a woman with medium-to-dark skin tone wearing a black sleeveless outfit, holding a megaphone to her mouth. Near the middle is another woman with dark skin tone wearing black, arms raised, holding a forearm crutch. On the lower right is a close-up portrait of Jan, a light-skinned person with short curly brown hair and large glasses, wearing a patterned jacket over a dark top.

EDS Unplugged Podcast Episode 3: Neurodivergence with Jan Groh, author of the OhTWIST blog and co-author of the EDS Toolkit for Doctors

buff.ly/9sZKVdD

#EDS #hypermobility #hEDS #HSD #NEISvoid #Zebras #Spoonies #Autism #ADHD #AuDHD #POTS #MCAS #MedEd #MedSky

The #HannahMontana20thAnniversarySpecial is playing now in the #ChronicLoaf stream

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#ThrowbackThursday #NEISvoid #DisCo #ForTinu #spoonies #DisabilityCommunity #mecfs

#NoKings #NoKing3Virtual #Spoonies #DisabilitySky join up! We need everyone to pitch in, all are welcome on Team Save Democracy!

Amazon.com: Miss Fitz Discovers Midlife Magic: A Cozy Fantasy Midlife Mystery (Miss Fitz at Midlife Book 1) eBook : Tash, Red: Kindle Store Amazon.com: Miss Fitz Discovers Midlife Magic: A Cozy Fantasy Midlife Mystery (Miss Fitz at Midlife Book 1) eBook : Tash, Red: Kindle Store

"It's nice to read about a character with health issues, and see how they impact her life, and also see that character have value and live a full life!" amzn.to/4csChSW #chronicillness #spoonies #realwomeninfiction #cozyfantasymidlifemystery #CozyMystery #BookLovers #cozyfantasymystery #m...

tests and possible treatment options. Or until you're in such a crash that going to appointments is impossible! Been there too. Anyway, that's my #spoonie check-in. I'll let you know how it goes tomorrow or the day after depending on energy levels.

#chronicillness
#NEISvoid #Spoonies

Every spoon counts, even the bent ones. #Spoonies

Hop in the #ChronicLoaf stream for an evening of #MutualAidMovies!

1st we're watchin the new movie #Anaconda

Hop in, watch w/ us, post ur MA requests & keep postin using our tag (#MutualAidMovies) to bring attn💚

mzelo.com/app/rooms/ch...

#WeedyWednesday #NEISvoid #mecfs #DisCo #ForTinu #spoonies

#Spoonies those with #ChronicDisease #DisabilitySky
@standupforscience.net is hostess with the mostess and has got you covered this Saturday. Join the fun, make some connections. #NoKings3

When Else to Suspect Ehlers-Danlos Syndrome - Oh TWIST When Else to Suspect Ehlers-Danlos Syndrome looks at additional signs and symptoms of the disease and its comorbid diseases.

When Else to Suspect Ehlers-Danlos Syndrome or #HSD
ohtwist.com/when-else-to...

#EDS #HMS #Fibromyalgia #MedEd #Doctors #Spoonies #Hypermobility #Zebras #MedTwitter #NEISvoid #Autistic #Autism #ADHD #MedX #MedSky

Promotional graphic for an EDS Awareness blog post on an orange background with a large photo and text blocks. At the top left, a white rounded rectangle says “New Blog Post.” At top right a circular logo reads “EDS Awareness” and“Ehlers-Danlos Syndromes.” In the central photo, a group of people are walking outdoors on a stone-paved area in front of a large building with tall stone columns and doors. Several people are carrying cardboard boxes. One person is seated in a wheelchair holding a box. Main headline below photo: “Netflix’s Run Away Quietly Gets EDS Right: Ambulatory Wheelchair Use”. Body text: “Run Away, Netflix’s latest Harlan Coben adaptation has many twists and turns. However, for the EDS community, the most meaningful revelation isn’t even a plot. It Is one of the first accurate depictions of an ambulatory wheelchair user.” At bottom left is a rounded button that says “Read More” with a right-pointing arrow icon. Website text at the bottom :“www.chronicpainpartners.com”

Netflix’s Run Away Quietly Gets EDS Right: Ambulatory Wheelchair Use

www.chronicpainpartners.com/netflixs-run...

#EDS #hEDS #HSD #Zebras #Spoonies #Disability #DisCo #MedSky #MedX

Spotify – Web Player

Happy Sunday #ChronicIllnessWarriors! Hope the day is being kind to you. Checkout my new podcast @spotify Diary of a #FibroWarrior, a space where we turn pain into power, isolation into connection. Let's connect, hit the subscribe button for updates! open.spotify.com/show/2xHqXC8...
#mecfs #spoonies

Disability History Month Reflections: Amplifying Powerful Voices - Honoring the legacies of trailblazing disabled LGBTQ+ activists for Disability History Month — visibility, community, and radical joy.

"These #activists remind us that visibility, storytelling & #community are powerful tools for change. Each of them brings a unique perspective, showing how #disability intersects with #identity, culture, and #creativity.": buff.ly/5S5aBUA

by @beverleybutterfly.bsky.social
#advocates #spoonies

40 People with Chronic Illness Share Their Best Pain Management Tips (What to Do if an Unforeseen Pain Flare Hits)

“When u realise a #PainFlare is happening u need to stop & realistically think what can u still do! Some plans are going to have to change- it sucks but..Yr #health has to take #priority or it’ll just keep getting worse. – Ruthy.": buff.ly/dTfNMIz

#ChronicPain #SelfCare #spoonies

My #spoonies know that when we have a "good" day we overdo it.I will pay for it tomorrow. I was excited to use this for the first time.So we walked first,then washed Sparky with the no rinse ONR that can be used inside & out & applied the hyperseal. I used a little too much. But isn't he handsome?

youtube.com/shorts/GZEMB... #disability #spoonies

Do you people have any idea how many spoons showering takes?

#spoonies plz do not answer on behalf of the ableds

Amazon.com: Miss Fitz Discovers Midlife Magic: A Cozy Fantasy Midlife Mystery (Miss Fitz at Midlife Book 1) eBook : Tash, Red: Kindle Store Amazon.com: Miss Fitz Discovers Midlife Magic: A Cozy Fantasy Midlife Mystery (Miss Fitz at Midlife Book 1) eBook : Tash, Red: Kindle Store

"It's nice to read about a character with health issues, and see how they impact her life, and also see that character have value and live a full life!" amzn.to/4csChSW #chronicillness #spoonies #realwomeninfiction #cozyfantasymidlifemystery #CozyMystery #BookLovers #cozyfantasymystery #m...

Chronic Stress, the Silent Assassin Chronic stress is often glorified in modern society, yet its effects are more harmful than you would believe, especially with chronic illness.

" #ChronicStress. It is an oft-forgotten factor in the equation to good #health. Often, the tolerance for it is even glorified in modern #society. More emphasis is placed on diet, exercise & sleep, with #StressRelief as a byproduct or afterthought.": buff.ly/WN2P02p

#stress #ChronicPain #spoonies

#1: Living Well with Fibromyalgia & ME/CFS | Free Trial + Community (My Story)
youtu.be/MIuW1F9VO34?...

#fibromyalgia #mecfs #spoonies

If I could not have any more unexpected medical issues requiring doctor's appointments for a month or two, that'd be swell.

I've had more than my share this past month.

#autoimmune #spoonies

Neurodiversity Celebration Week! #neurodivergent #neurodivergence #nd #autism #adhd #audhd #hiddendisabilities #invisibleillnesses #endometrilsisawarenessmonth #neurospicy #comorbidconditions #clusterconditions #pots #pcos #hypermobilespectrum #spoonies #march

We need your support to keep our media team going thank you! Can you help?

www.chronicpainpartners.com/chronic-pain...

#EDS #EDSAwareness #HSD #Zebras #Spoonies #NEISvoid #Support

“It’s in My Blood”: Bree Dixon — Paris Je T’aime, Even with Chronic Pain In the “It’s in My Blood” series — Bree Dixon shares her passion for travelling despite chronic pain and illness, especially with her sisters!

"Bree has an interest in #photography & combines them with her #passion for #writing on her blog. Back home, she spends..time with her beloved dogs, eating clean & also appreciates a good TV show or 2" — Learn more abt BreeDixon3 's #ChronicLife here: buff.ly/qL8g7Wo

#DisabledPeople #spoonies

We remember our late visionary founder John Ferman while continuing to uphold his EDS Awareness legacy…

www.chronicpainpartners.com/in-memory-of...

#EDS #EhlersDanlosSyndrome #Hypermobility #hEDS #HSD #Zebras #Spoonies #Doctors

a penguin hanging from a tree branch with the words let 's hang out written below it ALT: a penguin hanging from a tree branch with the words let 's hang out written below it

Hey Fam! It's Friday! 💚🎉💃🏽

We have to have fun! Before we're ya know... Dead!

So bring ur ass to the #ChronicLoaf stream sometime today to relax, laugh, dance or whatever! We'd love to see you!😍

mzelo.com/app/rooms/ch...

#NEISvoid #DisCo #ForTinu #spoonies #DisabilityCommunity #lgbtqia+

A promotional graphic with a calm lake landscape and text banners at the top and bottom. The main photo shows a person sitting on a rocky shoreline facing a wide, still lake, with tree-lined banks on both sides and early autumn colors (greens with some reds and yellows) under a cloudy sky. Text at the top on a teal background reads: “The Silence After Survival...” A circular logo at the top left reads: “EDS Awareness” and underneath: “Ehlers-Danlos Syndromes” Text at the bottom on a teal background reads: “Guest post by Debbie Hellenbrand” Below that: “www.chronicpainpartners.com"

The Silence After Survival - Guest post by Debbie Hellenbrand on surviving anaphylaxis with caring help for once…

buff.ly/o1idmfK

#EDS #hEDS #HSD #MCAS #masto #zebras #Spoonies #MedX

#Bugonia is starting next in the #ChronicLoaf stream

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#spoonies #ForTInu #neisvoid #cannabisculture #DisCo #mecfs #MutualAidMovies