Next in the #ChronicLoaf stream we're watchin the #AmericasNextTopModel20YearsLater special
Then we're starting the new #SomethingVeryBadisGoingToHappen netflix series
Hop in and watch with us @ mzelo.com/app/rooms/ch...
#WomensHistoryMonth #NEISvoid #ForTinu #chronicpain #DisCo
@achronicvoice.com this article misses the mark
This article has a TON of preaching, toxic postivity, and even humblebragging.
It doenst belong under #neisvoid which was created NOT to do these things.
Waiting for my anti nausea meds to kick in so I can try to get some sleep #neisvoid
#Challengers just started in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#WomensHistoryMonth #NEISvoid #mecfs #SexTalkSunday #ForTinu #MutualAidMovies #ChronicPain
Groceries delivered! I have food for the next few days. Now I can sleep. #NEISvoid
#TheSecretsoftheTwelveTribesCult documentary is playing in the #ChronicLoaf stream now
mzelo.com/app/rooms/ch...
#NEISvoid #mecfs #DisCo #ForTinu #spoonie #MutualAidMovies #cannabiscommunity
“Some days my #life feels like a series of unfortunate events. Many of those events are inconsequential to the general population. But to my loose joints they are devastating.": buff.ly/Zb79ilO
by sunbeamacres
#ChronicIllness #ChronicPain #disability #NEisVoid
I am so tired today. I need to stay awake enough for a small grocery delivery this afternoon, but I fall asleep every ten minutes or so. I'll sleep and set an alarm. #NEISvoid
S1E1 of #Insecure is starting in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#comedy #WomensHistoryMonth #ForTinu #NEISvoid #mecfs #DisCo #ChronicPain #cannabisculture
I've been talking about this for years, but it feels like no one cares as much as they care about other things they deem more urgent and important. My survival is kinda important to me at least
My current plan to fix the system :see gif👇🏻
#NEISVoid #Chronicillness #Disability #Medsky #SSA #ImTired
S1E1 of #TheResidence just started in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#insomnia #MurderMystery #NEISvoid #spoonie #cannabisculture #WomensHistoryMonth
“Functioning is not the same as #thriving. & #functioning usually comes with a long list of small, barely noticeable things u do just to get thru the day. Things other people dont clock. Things that r actually #survival tools.”: buff.ly/I0880pQ
by Tanyahindes
#disability #ChronicIllness #NEisVoid
I was so tired today. I wanted to go to the protests, but there was no way. Some days it is just really depressing being this tired. #NEISvoid
#GirlFromNowhereTheReset is playing in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#NEISvoid #mecfs #DisCo #ForTinu #spoonie #ChronicPain #cannabiscommunity
Lactose may makes it worse. That part I don’t get. Last time it was milk chocolate, this time it was paneer cheese. This is new post Covid and was why I thought I might have food intolerances or MCAS. Pain for two days in the gut, and two in the neck 🤕 #NEISVoid
The new #Anaconda movie is playing next in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#NEISvoid #comedy #mecfs #DisCo #MutualAidMovies #ForTinu #spoonie #cannabisculture
“Losing over a decade of #memories is like having the foundations of your house ripped away..I lost shared history with my #family, the #context of my adult life, &, in many ways, the continuity of who I was.”: buff.ly/a9Dpv82
by Dusty1wentworth
#FND #aneurysm #NEisVoid
Doing everything "right"?
Diet, prep, discipline.
But still crashing?
For me meds were like a leak in a bucket...
Draining nutrients faster than I could replace them.
My experience with the "Chronic Illness Tax" nobody mentions:
buff.ly/ESH2UGh
#ChronicIllness #NEISvoid #Spoonie #MedBison
the cherry on top is when "being excited about doing something fun" is apparently the last straw that triggers the flare that makes you miss the cool thing
#NEISvoid
istg one of the hardest things about chronic illness is the constant
"I made plans and I was really excited...
BUT my body decided to veto them so now I have to cancel
Now today's agenda is:
1. survive
2. try to feel less shitty"
#NEISvoid
How Many Times Can You Hit Rock Bottom with Chronic Illness? a chronic voice .com
"I adopted a nature driven to #succeed, fueled by #fear. The fear of being alone at 40 in excruciating pain, with no means to support myself (p.s. I'm here now, and this fear has materialised...)": buff.ly/cOANscc
#ChronicIllness #ChronicPain #NEisVoid #disability
It’s rude of my disabilities to disable me, but at least I have my eight (8) library books to keep me company 🙂↕️
#NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #Tubie #FeedingTube #WheelchairUser #EDS #EhlersDanlosSyndrome #AmReading #BookSky #LibraryKid #Libby #AmReadingFantasy
Teal blue square graphic about EDS Awareness features a large black and white zebra striped looped awareness ribbon upper left. "EDS Awareness Month" in orange text over that. A graphic of a party horn or favor emitting sparks and stars. A text bubble reads "We have lots of ways to celebrate EDS Awareness!" in teal on white. A white circular logo bottom right reads: "EDS Awareness" and "Ehlers-Danlos Syndromes". Bottom black text reads: www.chronicpainpartners.com
We've got 22 Ways to Celebrate EDS Awareness Month in May! See if one or two suit you:
buff.ly/bhtQQQ2
#EDSAwareness #EDS #hEDS #Hypermobility #HSD #MedEd #Zebras #NEISvoid #Doctors #MedX #Spoonies
When someone specifically says no platitudes or advice, for fuck's sake, don't tell them to be grateful! 🙄🤦😒 #chronicpain #spoonie #disability #neisvoid
““Just do your best” becomes harmful not because people mean badly, but because it assumes an outdated premise: “If you try hard enough, you can go back to how you were.””: buff.ly/FdOuoL8
by kenken02122000
#disabilities #ChronicPain #ChronicIllness #NEisVoid #awareness
needed to rant. Rant over. #chronicpain #spoonie #neisvoid #pem #disability #medsky
One of our favorite series to repeatedly binge has been #JuryDuty
Season 2 has begun so hop into the #ChronicLoaf stream to watch #JuryDutyPresentsCompanyRetreat with us tonight
mzelo.com/app/rooms/ch...
#TellyTavern #comedy #NEISvoid #spoonie #insomnia #DisCo #cannabisculture #MutualAidMarathon
Join us in the #ChronicLoaf stream for a #ReadyorNot & #ReadyorNot2HereICome double feature tonight
mzelo.com/app/rooms/ch...
#NEISvoid #mecfs #DisCo #ForTinu #spoonie #MutualAidMovies #horror #WomensHistoryMonth
“Simon Gordon seemed the perfect person to trust with her #health: his practice was branded as "Endo Health". He charged more than other #gynaecologists we've spoken to & was recommended by #endometriosis #influencers online.”: buff.ly/DKfxkR8
from abcnews
#NEisVoid #ChronicIllness