Teal blue square graphic about EDS Awareness features a large black and white zebra striped looped awareness ribbon upper left. "EDS Awareness Month" in orange text over that. A graphic of a party horn or favor emitting sparks and stars. A text bubble reads "We have lots of ways to celebrate EDS Awareness!" in teal on white. A white circular logo bottom right reads: "EDS Awareness" and "Ehlers-Danlos Syndromes". Bottom black text reads: www.chronicpainpartners.com

We've got 22 Ways to Celebrate EDS Awareness Month in May! See if one or two suit you:

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#EDSAwareness #EDS #hEDS #Hypermobility #HSD #MedEd #Zebras #NEISvoid #Doctors #MedX #Spoonies

A promotional graphic for “EDS Unplugged” with bold text, photos of three women, and a large gold number 3. The main headline at the top reads: “EDS, MEDICAL RESEARCH & NEURODIVERGENCE”. A large gold “3” appears on the right side. The words “EDS UNPLUGGED” are in the center-left, with “EDS” in large black letters and “UNPLUGGED” in white letters on a black slanted rectangle. The name “JAN GROH” appears near the bottom in large pink letters. The phrase “sponsored by” appears near the center-right, next to a circular logo that reads: “EDS Awareness” and “Ehlers-Danlos Syndromes”. On the left is a woman with medium-to-dark skin tone wearing a black sleeveless outfit, holding a megaphone to her mouth. Near the middle is another woman with dark skin tone wearing black, arms raised, holding a forearm crutch. On the lower right is a close-up portrait of Jan, a light-skinned person with short curly brown hair and large glasses, wearing a patterned jacket over a dark top.

EDS Unplugged Podcast Episode 3: Neurodivergence with Jan Groh, author of the OhTWIST blog and co-author of the EDS Toolkit for Doctors

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#EDS #hypermobility #hEDS #HSD #NEISvoid #Zebras #Spoonies #Autism #ADHD #AuDHD #POTS #MCAS #MedEd #MedSky

Missed our prior newsletters? You can catch up on all of them here in our archives, any time you like:

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#EhlersDanlosSyndrome #EDS #hEDS #HSD #Hypermobility #Zebras #NEISvoid #Doctors #MedEd #Medicine #POTS #MCAS #Dysautonomia #Genetics #MedSky

Jen Kain about her new EDS doc “Exhausted Existence” – EDSAwareness.com Chronic Pain Partners’ Karina Sturm spoke with Jen Kain, the filmmaker behind “Exhausted Existence”. Kain’s documentary delves into the world of Ehlers-Danlos syndrome (EDS) and the lived experiences…

Our interview with Jen Kain about her new EDS doc “Exhausted Existence”:

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#EhlersDanlosSyndrome #EDS #hEDS #HSD #Hypermobility #Zebras #Documentary #Medicine #Doctors #NEISvoid #Film #MedTwitter #MedSky

Hertha BSC lässt völlig überraschend Punkte liegen und patzt im Kampf um die Krone. Für den MSV Duisburg bedeutet das: Volle Attacke! 💥

HERTHA patzt SCHON WIEDER! 👋 | FC 26 - KARRIERE MSV DUISBURG ⚽ S02E29
youtu.be/N8IplVYSbto

#FC26 #YouTube #msvduisburg #zebras #LetsPlay #gaming #careermode

The Extra Mile: Why This 79-Year-Old Pioneering Physician Is Running the Boston Marathon – EDSAwareness.com Dr. Hollick runs the Boston Marathon for two of his patients with Ehlers-Danlos Syndrome who have recently died.

The Extra Mile: Why This 79-Year-Old Pioneering Physician Ran the Boston Marathon Again in 2025

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#EDS #EhlersDanlosSyndrome #hEDS #HSD #Hypermobility #Doctors #Advocacy #Marathon #Zebras #NEISvoid #POTS #Dysautonomia #MCAS #BostonMarathon

When Else to Suspect Ehlers-Danlos Syndrome - Oh TWIST When Else to Suspect Ehlers-Danlos Syndrome looks at additional signs and symptoms of the disease and its comorbid diseases.

When Else to Suspect Ehlers-Danlos Syndrome or #HSD
ohtwist.com/when-else-to...

#EDS #HMS #Fibromyalgia #MedEd #Doctors #Spoonies #Hypermobility #Zebras #MedTwitter #NEISvoid #Autistic #Autism #ADHD #MedX #MedSky

Promotional graphic for an EDS Awareness blog post on an orange background with a large photo and text blocks. At the top left, a white rounded rectangle says “New Blog Post.” At top right a circular logo reads “EDS Awareness” and“Ehlers-Danlos Syndromes.” In the central photo, a group of people are walking outdoors on a stone-paved area in front of a large building with tall stone columns and doors. Several people are carrying cardboard boxes. One person is seated in a wheelchair holding a box. Main headline below photo: “Netflix’s Run Away Quietly Gets EDS Right: Ambulatory Wheelchair Use”. Body text: “Run Away, Netflix’s latest Harlan Coben adaptation has many twists and turns. However, for the EDS community, the most meaningful revelation isn’t even a plot. It Is one of the first accurate depictions of an ambulatory wheelchair user.” At bottom left is a rounded button that says “Read More” with a right-pointing arrow icon. Website text at the bottom :“www.chronicpainpartners.com”

Netflix’s Run Away Quietly Gets EDS Right: Ambulatory Wheelchair Use

www.chronicpainpartners.com/netflixs-run...

#EDS #hEDS #HSD #Zebras #Spoonies #Disability #DisCo #MedSky #MedX

#Zebras #Forming #Lines

#BlackandWhite #WildLife #Nature #Photgraphy #EastCoastKin

Krüger hat sich in ein absolutes Monster verwandelt – aber leider auf eine Art und Weise, die sich komplett unrealistisch anfühlt. Macht diese Karriere so überhaupt noch Sinn? 🤔

ABBRUCH wegen REALISMUS-SCHOCK?! 🤯 | FC 26 - KARRIERE MSV DUISBURG ⚽ S02E28
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#FC26 #YouTube #zebras

Alles oder Nichts! Wir haben Hertha BSC direkt im Visier und wollen endlich am Hauptstadtclub vorbeiziehen, um uns den 1. Platz in der 2. Bundesliga zu krallen 🏰

JAGD auf PLATZ 1! 📈 | FC 26 - KARRIERE MSV DUISBURG ⚽ S02E27
youtu.be/qPdyG3c_EIg

#FC26 #YouTube #msvduisburg #zebras #LetsPlay

We need your support to keep our media team going thank you! Can you help?

www.chronicpainpartners.com/chronic-pain...

#EDS #EDSAwareness #HSD #Zebras #Spoonies #NEISvoid #Support

We remember our late visionary founder John Ferman while continuing to uphold his EDS Awareness legacy…

www.chronicpainpartners.com/in-memory-of...

#EDS #EhlersDanlosSyndrome #Hypermobility #hEDS #HSD #Zebras #Spoonies #Doctors

A promotional graphic with a calm lake landscape and text banners at the top and bottom. The main photo shows a person sitting on a rocky shoreline facing a wide, still lake, with tree-lined banks on both sides and early autumn colors (greens with some reds and yellows) under a cloudy sky. Text at the top on a teal background reads: “The Silence After Survival...” A circular logo at the top left reads: “EDS Awareness” and underneath: “Ehlers-Danlos Syndromes” Text at the bottom on a teal background reads: “Guest post by Debbie Hellenbrand” Below that: “www.chronicpainpartners.com"

The Silence After Survival - Guest post by Debbie Hellenbrand on surviving anaphylaxis with caring help for once…

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#EDS #hEDS #HSD #MCAS #masto #zebras #Spoonies #MedX

#3 #March #WorldWildlifeDay
‘Africa – Fly TWA’ David Klein (1918-2005). Ca. 1960s.
#wildlife #Africa #grasslands #savannah #zebras #poster #DavidKlein #GraphicDesign #IllustrationArt

Die 1. Bundesliga ist zum Greifen nah! Verlieren wir, rückt uns die Konkurrenz gefährlich nah auf die Pelle. Also heißt es alles geben! 🚀

AUFSTIEGS-KRIMI an der WEDAU! 🔥 | FC 26 - KARRIERE MSV DUISBURG ⚽ S02E26
youtu.be/HprJ5cN2ME0

#FC26 #YouTube #msvduisburg #zebras #LetsPlay #gaming #careermode

A smiling woman sitting on an exercise ball with arms outstretched, wearing a white tank top and black shorts. There is a cat lying on a nearby chair with a striped blanket. Behind her, banners on the wall say "AWOL Zebra." On the table next to her are towels, some white models or tools, and a glass. The top of the image displays the website "www.chronicpainpartners.com." Text at the bottom reads: "Interview with CHristie @AWOL Zebra" In the lower right corner is a logo that says "EDS Awareness Ehlers-Danlos Syndromes."

AWOL Zebra Podcast: Building Community (and Laughs) Around EDS

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#EDS #EhlersDanlosSyndrome #Hypermobility #HSD #hEDS #Zebras #Spoonies #NEISvoid #ChronicIllness #Patients #Support

Infographic about Cerebral Outflow Disorder, related to Ehlers-Danlos Syndromes (EDS). At the top left is a circular EDS Awareness logo. The text reads: “Cerebral Outflow Disorder: Signs can include: Pulsatile Tinnitus Pressure Headaches IIH Brain Fog Vision Problems” There is an image of a person’s head in profile with a glowing neural network over the brain, and graphic icons of upward and downward arrows suggesting blood flow. The bottom text on a teal background reads: “What it is and Why EDS Patients Should Know About it chronicpainpartners.com”

Cerebral Venous Outflow Disorders: What it is and Why EDS Patients Should Know About it

www.chronicpainpartners.com/cerebral-ven...

#EhlersDanlosSyndrome #EDS #hEDS #HSD #Hypermobility #IIH #CSFLeak #Chiari #AAI #CCI #Headache #Spoonies #Zebras #MedEd #MedSky #Doctors #neurology

The Hellenbrand family of four standing together outside next to a military-style vehicle. The family includes a woman with short red hair, wearing glasses and light green clothes, a man in a maroon hoodie and jeans, a boy in a suit and tie with white sneakers, and a girl in a long pink dress with glasses.

“Watch Out For Mum” – Wrongful Child Abuse Allegations Harms Whole Family in the Netherlands

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#EDS #hEDS #HSD #Hypermobility #EhlersDanlosSyndrome #Zebras #Spoonies #NEISvoid #Medicine #Doctors #Nurses #FII #MedicalKidnap #MedSky #Genetics #Autism #ADHD

Die Sensation an der Wedau geht weiter! In dieser Folge von FC 26 festigt der MSV Duisburg seinen Ruf als Überraschungsteam der Saison 🤯

HERTHA-JÄGER NR. 1! 🚀 | FC 26 - KARRIERE MSV DUISBURG ⚽ S02E25
youtu.be/xoImeuukQKQ

#FC26 #YouTube #msvduisburg #zebras #LetsPlay #gaming #careermode

3 #March #WorldWildlifeDay
‘Burchell’s Zebras - By Louis A. Sargent’
Frank Finn, *The Wild Beasts of the World* Vol. 2 (T. C. & E. C. Jack, London [1909?])
#wildlife #zebras #biodiversity #ScientificIllustration #illustration #illustrationartists
#LouisAugustusSargent (1881-1965)

#photography #landscape #photos #nature #naturephotography #giraffes #impalas #zebras #africandogs #wildafricandogs

Gefährliche Premiere an der Wedau! Vorsicht ist geboten: Die Niedersachsen reisen mit einem brandneuen Coach an! 🧐

STOPPT den TRAINER-EFFEKT! 🛑 | FC 26 - KARRIERE MSV DUISBURG ⚽ S02E24
youtu.be/QZV6fXOiG34

#FC26 #YouTube #msvduisburg #zebras #LetsPlay #gaming #careermode

A promotional graphic for EDS (Ehlers-Danlos Syndromes) awareness about head and neck research. The design has a teal background with white text and several images: an X-ray of a neck with orange measurement lines and arrows, a medical spine model being pointed at with a pen, and an illustration of a woman shrugging with palms up. Yellow question-mark icons appear on the left and right. Text shown: EDS Awareness Ehlers-Danlos Syndromes Measuring the unmeasured... What two new studies say about the head, neck and hEDS Some results may be unexpected.... www.chronicpainpartners.com

Measuring the Unmeasured - What Two New Studies Say About the Head, Neck, and hEDS

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#EDS #hEDS #Zebras #CCI #Medicine #MedSky

#NairobiNationalPark #wildlife #ostrich #zebras #savannah #Africa #travel #Kenya

Es ist das Spiel, auf das alle Fans gewartet haben: Der MSV Duisburg reist zum großen FC Schalke 04. In dieser Folge von FC 26 knistert es an jeder Ecke 🔥

RUHRPOTT-BEBEN! 🔥 | FC 26 - KARRIERE MSV DUISBURG ⚽ S02E23
youtu.be/U9epkjYJq4k

#FC26 #YouTube #msvduisburg #zebras #LetsPlay #careermode

RobinReach

Today, I am joining the #ShowYourStripes campaign in honour of #RareDiseaseDay and the millions of people all over the planet living with a #RareDisease. Visit rarediseaseday.us To learn more and get involved @RareDiseases (@nord_rare) 🤍🖤🤍🖤 #Zebras

Overcoming Barriers With Creativity: Watch Lego Oma – EDSAwareness.com Rita Ebel, the focus of the new Chronic Pain Partners (CPP) short film Lego Oma, has found one of the most innovative ways to fix inaccessibility: she builds wheelchair ramps from Lego!

Overcoming Barriers With Creativity: Watch Lego Oma by @KarinaSturm

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#EDS #HSD #hypermobility #Disability #DisCo #Zebras #Spoonies #Accessibility #Access #NEISvoid #POTS #MCAS #Lego #Legos

Chronic Illness Apps: Why Use Them and Ones to Try for EDS Management – EDSAwareness.com List of the best health apps for managing the complexities of chronic illness - why they're helpful and ones to try, especially with EDS.

Chronic Illness Apps: Why Use Them and Ones to Try for EDS Management - our team reviewed and listed the top 25 for you:

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#EDS #EhlersDanlosSyndrome #hEDS #Hypermobility #HSD #NEISVoid #Spoonies #Zebras #Disability #Patients #Dysautonomia #POTS

Orange promo poster about scoliosis care and the Schroth Method. Top text: “Introducing the Schroth Method for scoliosis care”. Top-left logo reads: “EDS Awareness” and “Ehlers-Danlos Syndromes”. Left side graphics show a large white outline of a curved spine & pelvis illustration, with gray lightning-bolt shapes and two large question marks. Photo on the right shows two adult women in an exercise/therapy room. One (light skin) in black athletic shorts and a black sports bra is barefoot and facing a wooden wall-bar, with arms raised holding the bars; knees are bent in a partial squat. Dr. Campesi (light skin) is behind her, wearing a black long-sleeve top, teal leggings, and black sneakers and appears to be guiding her posture with hands at the upper back and hip area. Small white text reads: “Here we share an expert Q&A on scoliosis care in EDS featuring Caroline Campesi, DPT” Teal text at bottom: “chronicpainpartners.com”

Introducing Schroth Therapy: An Expert Q&A on Scoliosis Care in EDS with Dr. Campesi

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#EDS #HSD #zebras #Scoliosis #Physio #MedSky #MedEd