#Bones is playing in the #ChronicLoaf stream tonight
mzelo.com/app/rooms/ch...
#MidnightMysteries #insomnia #DisCo #MurderMystery #NEISvoid #ForTinu #spoonies #cannabisculture
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Hashtag
#Spoonies
Advertisement · 728 × 90
A Roundup of Biggest Pain Flare Triggers — 40 people in the chronic illness community share their opinions, insights, and support.
"“ #Exercise. It never fails to flare the worst #MuscleSpasms due to my peripheral #NerveDisease.” - SaltyBurdNurd": buff.ly/9lZqgPd
#ChronicPain #FlareUps #ChronicIllness #disability #spoonies
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Dr.: Any side effects with the new medication?
Me: (reports a new thing happening since I started the med)
Dr.: I'm not sure that's from the med. (Looks it up on the computer) Oh. Yes. Only 2% of patients, though.
Me: ...
Dr.: ...
Me: ...
Dr.: Well, if it gets worse, let us know.
#Spoonies
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'The more useful question isn’t “why can’t I stick to a system?” It’s “why are the available systems so poorly suited to how I actually live?”'
Well worth reading for us #spoonies.
#ChronicIllness #autoimmune #Sjogrens
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Why Nervous System Regulation Matters During High Activity Social Times Like Easter (Especially with Chronic Illness) open.substack.com/pub/chikocfm...
#fibromyalgia #chronicillness #mecfs #spoonies #womenshealth
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It's almost time for a little #DanceBreak in the #ChronicLoaf stream
Hop in and decompress with us @ mzelo.com/app/rooms/ch...
#ThrowbackThursday #NEISvoid #DisCo #ForTinu #spoonies #cannabisculture #music #mecfs
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“Do NOT be afraid to rest. Your heart is effectively running a marathon any time you’re upright - it’s OK to be tired. Give yourself the permission u need to put your legs up & take a break.": buff.ly/pXIv5F2
by @Broadwaybabyto.bsky.social
#POTS #dysautonomia #ChronicIllness #spoonies #disabled
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"It's nice to read about a character with health issues, and see how they impact her life, and also see that character have value and live a full life!" amzn.to/4csChSW #chronicillness #spoonies #realwomeninfiction #cozyfantasymidlifemystery #CozyMystery #BookLovers #cozyfantasymystery #m...
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Endorsement of All That Is Made by Keren Dibbens-Wyatt "I love reading Keren Dibbens-Wyatt's work" - Richard Rohr
Are you interested in #contemplative #prayer ? In my book "All That Is Made" you will find out what it is, why it helps those of us who feel small, sick or confined, and why, like #JulianofNorwich I find it deeply comforting. #spoonies #SevereME #chronicillness #ME #faith see pinned post
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"Trying to remember what I have done and wondering if I did what I wanted/needed to do. Asking my dog, ‘Did I feed you yet?’ (He always answers, ‘No.’) — Wiesel": buff.ly/rtzKjxT
via CarolynSpring
#DissociativeIdentityDisorder #MentalIllness #InvisibleIllness #spoonies
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Teal blue square graphic about EDS Awareness features a large black and white zebra striped looped awareness ribbon upper left. "EDS Awareness Month" in orange text over that. A graphic of a party horn or favor emitting sparks and stars. A text bubble reads "We have lots of ways to celebrate EDS Awareness!" in teal on white. A white circular logo bottom right reads: "EDS Awareness" and "Ehlers-Danlos Syndromes". Bottom black text reads: www.chronicpainpartners.com
We've got 22 Ways to Celebrate EDS Awareness Month in May! See if one or two suit you:
buff.ly/bhtQQQ2
#EDSAwareness #EDS #hEDS #Hypermobility #HSD #MedEd #Zebras #NEISvoid #Doctors #MedX #Spoonies
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Cartoon drawing of a woman laying on a sofa with a pillow over her head and the words: “Chronic illness gang rise up. Or sit. Or lay down. Ya know what, just groan if you’re still alive.”
I know that there are tons of us on social media. Sending out some good vibes to all ⭐️💗
#chronicillness #mademelaugh #spoonies #chronicallyawesome #InvisibleDisabilities #disabled #disabledartist #smileithelps #feelbetterfriday
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Don't miss today's #DanceBreak in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#neisvoid #mecfs #DisCo #ForTinu #spoonies #cannabiscommunity
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A promotional graphic for “EDS Unplugged” with bold text, photos of three women, and a large gold number 3. The main headline at the top reads: “EDS, MEDICAL RESEARCH & NEURODIVERGENCE”. A large gold “3” appears on the right side. The words “EDS UNPLUGGED” are in the center-left, with “EDS” in large black letters and “UNPLUGGED” in white letters on a black slanted rectangle. The name “JAN GROH” appears near the bottom in large pink letters. The phrase “sponsored by” appears near the center-right, next to a circular logo that reads: “EDS Awareness” and “Ehlers-Danlos Syndromes”. On the left is a woman with medium-to-dark skin tone wearing a black sleeveless outfit, holding a megaphone to her mouth. Near the middle is another woman with dark skin tone wearing black, arms raised, holding a forearm crutch. On the lower right is a close-up portrait of Jan, a light-skinned person with short curly brown hair and large glasses, wearing a patterned jacket over a dark top.
EDS Unplugged Podcast Episode 3: Neurodivergence with Jan Groh, author of the OhTWIST blog and co-author of the EDS Toolkit for Doctors
buff.ly/9sZKVdD
#EDS #hypermobility #hEDS #HSD #NEISvoid #Zebras #Spoonies #Autism #ADHD #AuDHD #POTS #MCAS #MedEd #MedSky
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The #HannahMontana20thAnniversarySpecial is playing now in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#ThrowbackThursday #NEISvoid #DisCo #ForTinu #spoonies #DisabilityCommunity #mecfs
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#NoKings #NoKing3Virtual #Spoonies #DisabilitySky join up! We need everyone to pitch in, all are welcome on Team Save Democracy!
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"It's nice to read about a character with health issues, and see how they impact her life, and also see that character have value and live a full life!" amzn.to/4csChSW #chronicillness #spoonies #realwomeninfiction #cozyfantasymidlifemystery #CozyMystery #BookLovers #cozyfantasymystery #m...
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tests and possible treatment options. Or until you're in such a crash that going to appointments is impossible! Been there too. Anyway, that's my #spoonie check-in. I'll let you know how it goes tomorrow or the day after depending on energy levels.
#chronicillness
#NEISvoid #Spoonies
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Every spoon counts, even the bent ones. #Spoonies
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Hop in the #ChronicLoaf stream for an evening of #MutualAidMovies!
1st we're watchin the new movie #Anaconda
Hop in, watch w/ us, post ur MA requests & keep postin using our tag (#MutualAidMovies) to bring attn💚
mzelo.com/app/rooms/ch...
#WeedyWednesday #NEISvoid #mecfs #DisCo #ForTinu #spoonies
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#Spoonies those with #ChronicDisease #DisabilitySky
@standupforscience.net is hostess with the mostess and has got you covered this Saturday. Join the fun, make some connections. #NoKings3
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When Else to Suspect Ehlers-Danlos Syndrome or #HSD
ohtwist.com/when-else-to...
#EDS #HMS #Fibromyalgia #MedEd #Doctors #Spoonies #Hypermobility #Zebras #MedTwitter #NEISvoid #Autistic #Autism #ADHD #MedX #MedSky
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Promotional graphic for an EDS Awareness blog post on an orange background with a large photo and text blocks. At the top left, a white rounded rectangle says “New Blog Post.” At top right a circular logo reads “EDS Awareness” and“Ehlers-Danlos Syndromes.” In the central photo, a group of people are walking outdoors on a stone-paved area in front of a large building with tall stone columns and doors. Several people are carrying cardboard boxes. One person is seated in a wheelchair holding a box. Main headline below photo: “Netflix’s Run Away Quietly Gets EDS Right: Ambulatory Wheelchair Use”. Body text: “Run Away, Netflix’s latest Harlan Coben adaptation has many twists and turns. However, for the EDS community, the most meaningful revelation isn’t even a plot. It Is one of the first accurate depictions of an ambulatory wheelchair user.” At bottom left is a rounded button that says “Read More” with a right-pointing arrow icon. Website text at the bottom :“www.chronicpainpartners.com”
Netflix’s Run Away Quietly Gets EDS Right: Ambulatory Wheelchair Use
www.chronicpainpartners.com/netflixs-run...
#EDS #hEDS #HSD #Zebras #Spoonies #Disability #DisCo #MedSky #MedX
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Happy Sunday #ChronicIllnessWarriors! Hope the day is being kind to you. Checkout my new podcast @spotify Diary of a #FibroWarrior, a space where we turn pain into power, isolation into connection. Let's connect, hit the subscribe button for updates! open.spotify.com/show/2xHqXC8...
#mecfs #spoonies
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"These #activists remind us that visibility, storytelling & #community are powerful tools for change. Each of them brings a unique perspective, showing how #disability intersects with #identity, culture, and #creativity.": buff.ly/5S5aBUA
by @beverleybutterfly.bsky.social
#advocates #spoonies
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40 People with Chronic Illness Share Their Best Pain Management Tips (What to Do if an Unforeseen Pain Flare Hits)
“When u realise a #PainFlare is happening u need to stop & realistically think what can u still do! Some plans are going to have to change- it sucks but..Yr #health has to take #priority or it’ll just keep getting worse. – Ruthy.": buff.ly/dTfNMIz
#ChronicPain #SelfCare #spoonies
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My #spoonies know that when we have a "good" day we overdo it.I will pay for it tomorrow. I was excited to use this for the first time.So we walked first,then washed Sparky with the no rinse ONR that can be used inside & out & applied the hyperseal. I used a little too much. But isn't he handsome?
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Do you people have any idea how many spoons showering takes?
#spoonies plz do not answer on behalf of the ableds
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"It's nice to read about a character with health issues, and see how they impact her life, and also see that character have value and live a full life!" amzn.to/4csChSW #chronicillness #spoonies #realwomeninfiction #cozyfantasymidlifemystery #CozyMystery #BookLovers #cozyfantasymystery #m...
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