10 Very Normal Things I am Grateful I Can Do — Chronic illness insights on A Chronic Voice .com

"With the increased ease in #lifestyle, I feel that we often forget that it is also a #blessing to be able to labour. I am sure that many of you #work very hard in your various #careers and I am not discounting those efforts one bit.": buff.ly/gbpESiH

#disability #mindfulness #ChronicIllness #human

Peter waited six months for a new wheelchair on the NDIS. By the time it arrived, it was obsolete Exclusive: Participants in the disability scheme are waiting more than 100 days for vital support due to delays in processing plan variations, documents show

Peter waited six months for a new wheelchair on the NDIS. By the time it arrived, it was obsolete www.theguardian.com/australia-news/2026/mar/... #Nationaldisabilityinsurancescheme #Australianews #Disability #Health #NDIS #AusPol

Screenshot from the Virtual No Kings Zoom chat. VG: One of my neighbors stole my Protect Democracy sign, but I found where they dump. RI: What about No Kings? Karistina Lafae: Disability justice is inherently opposed to this administration. Karistina's post has multiple blue heart and fire reactions.

#NoKINGS III ☮️ MARCH 28
#VIRTUAL🌐 Not Everyone Can Leave the House to Protest

rp AuDHD Bedbound Faerie Godmother‬
@karistinalafae.bsky.social
#Disability justice inherently opposed to this administration

#VirtualNoKings
#AltCitizen 🌐 #CripTheVote 🌐 #DisabilityRights

#NoKings3 #NoKings2026
54

Happy #solidaritySunday y'all.

HOLDING ON at $267/1360 since yesterday morning. 🐼🧸

Five days to go, y'all.

All is appreciated to uplift, spread the kind word and meet this vital ask.

#helpsky
#helpfolkslive2026
#mutualaid
#disability
💕💸
#Fundsky
#Blackmutualaid

I just want to thank the 1k people who follow me. I genuinely appreciate the support. Weather you are here for my #Disability #Chronicillness discussions, my #goat pics, or my #Art thank you.

My #Commisions are always open to those interested. I know my page is a bit of everything so thank you.

You Might Qualify for a Free Lifetime National Parks Pass. Here's How to Find Out. Learn about the National Parks Access Pass for people with permanent disabilities, including how chronic conditions like diabetes qualify for a lifetime pass.

"The #NationalParks & Federal Recreational Lands #AccessPass waives entrance fees for medically eligible U.S. citizens & residents, providing access to all 433 sites managed by the #NationalPark Service.": buff.ly/1p3gbSt

via outsidemagazine
#disability #accessibility #outdoors #ChronicIllness

The image displays a list of volunteer opportunities against a solid black background. The title, "Volunteer Opportunities," is prominently featured in a bold, white font at the top. Below the title is a list of volunteer roles, each marked with a bullet point. The roles include "Campaigns Lead," "Campaigns Co-Lead," "Framing Lead," "Grassroots Lead," "Grassroots Co-Lead," "Western Regional Legal & Policy Coordinator," "Nothing About Us Without Us Editor-in-Chief," "6 Social Media Content Creators," and "6 to 8 Contributors for Nothing About Us Without Us." The text is clean, well-organized, and easy to read, emphasizing the different avenues for individuals to contribute.

The image features white text on a black background, conveying an important message. The text reads: "If you are interested in learning more about the open volunteer opportunities and are an individual with a disability, please email info@disabilitycommunityfordemocracy.org." The message is designed to be informative and inclusive, specifically targeting individuals with disabilities who may be interested in volunteer opportunities. The use of white text against a black background provides high contrast, making the message easily readable. The overall design is simple and direct, ensuring the focus remains on the information being conveyed. The email address provided is meant to be a call to action for interested parties.

The work continues after the protest ends. If you are looking to continue the work after attending the No Kings protest yesterday, we have volunteer positions available. Send an email to info@disabilitycommunityfordemocracy.org. #DisabilitySky #Disability

Petition: Stop proposed changes to the Motability Scheme The recent budget has announced taxes on advanced payments and a decrease in mileage allowances. We believe this is unfair to the most vulnerable in society and could affect their independence.

Stop proposed changes to the Motability Scheme

#disability

Many disabled people earn considerably less than average and a cost increase could mean they struggle to get a car.

petition.parliament.uk/petitions/75...

MAD GIRL TRUTHS

they praise you
when you perform—

but disappear

when you need #support.

©️ꁅ!ꋪ꒒🙂

#disability #mentalhealth #nfl #accessibility

a cartoon man leaning against a wooden wall Alt: a cartoon man who is tulio from road to El Dorado hitting head gainst a wooden wall over and over in frustration

I've been talking about this for years, but it feels like no one cares as much as they care about other things they deem more urgent and important. My survival is kinda important to me at least

My current plan to fix the system :see gif👇🏻

#NEISVoid #Chronicillness #Disability #Medsky #SSA #ImTired

Plan for $3,000 direct payments to Americans gets boost: List of sponsors The plan is part of the Make Billionaires Pay Their Fair Share Act, a sweeping progressive package.

Crap like this pisses me off a lot, I'll tell you why.

1. This is once a year 3k payment to everyone who earns up to $150,000 a year.

2. People who make 150k don't need near as much as those of us on SSI who get a cruel 12k a year.

3. See 1 and 2

#Disability

www.newsweek.com/plan-for-300...

staying a while lately my body has been shaking in ways i cannot ignore.

i wrote something about what it has been like to live inside a body that is breaking down.

it’s about what it means to keep choosing to stay while the future feels less predictable.

#ActuallyAutistic #AutismWhileBlack #QueerWriter #ChronicIllness #Disability #MentalHealth #Parenting #AuDHD

How To Avoid Or Delay A Second Hip Replacement Hip replacement surgery is a common and very painful medical procedure that will not be necessary for everyone, but is something that some disabled people with hip dysplasia or anyone experiencing …

"I had #HipReplacement #surgery a few years ago because I have #HipDysplasia and was born with both of my #hips fully #dislocated, and one of my hips started to give me incredible pain that could only be fixed with surgery.": buff.ly/pEHDjKX

by sarahlynn358
#ChronicPain #disability #dislocation

Autistamatic: "When Autistic Questions Go Wrong!" | #TeatimeWithQuinn #Disability #Miscommunication #Misunderstood #Confusion #ClarifyingQuestions #SeekingInformation #NotAHint #Veracity #Assumptions #Interpretation #CulturalDifferences #Insecurities
www.youtube.com/watch?v=j_Aj...

Disability Justice graphic with a skull and walking sticks. By Ms Deathwish #Exist2Resist

Reminder that this is a #DisabilityJustice account
#Disability #Art #DisabledArtist #AnarchistArt

The rear window of a blue Ford Focus with handwritten messages in high-contrast white and green markers. The text reads: "HELP DISABLED NEIGHBOR" in large white letters; "START CO / EXIT SSDI" in green; "Ugiftable.com G3H-92X" in large white letters; and "KS TAX DEDUCTIBLE" in green at the bottom.

I’m turning my car into a mission for the Sunday park crowds. Starting from zero to build a platform that breaks the trap for us all. Help a neighbor stay means-protected while I build the infrastructure. Ugiftable.com Code: G3H-92X
#SmallBusiness #Disability #MutualAid #Trans

Episode 47: Acceptance Is Power with Sheryl Chan — Lauren Selfridge EPISODE OVERVIEW In this episode of This Is Not What I Ordered, I’m joined by Sheryl Chan — a web developer, writer, and travel enthusiast living with multiple chronic illnesses. Suffering from a…

“I think you learn many #LifeLessons [from being #ChronicallyIll ]. I don't think it's one big revelation, but many little ones along the way.”: buff.ly/wL2ihRl

#ChronicIllness #podcast #MentalHealth #disability

I have changed my bedcovers, cleaned my bathroom, made myself lunch, mushroom omelette with avocado, tomato and a little Turkish pide. Just had a shower. I am totally stuffed. Hopefully somebody is making a cup of tea. 😣🥱 My brain wants to do much more... #ChronicPain #ChronicIllness #Disability

Thank you for remembering us. #MillionsMissing #disability

Also literally having trouble holding up the (paperback) book, just due to, ironically, #Disability. I would laugh if it wasn’t so deeply annoying. My Dr did mention some possible mitigations for the rather severe intermittent tremor I’ve developed the past few years. But, it is slow in arriving.

Things Chronically Ill People Do Just To Function Every Day - Cracked Nails & Split Ends A personal look at the invisible labour of chronic illness, pain and fatigue. The quiet coping strategies people use just to get through the day.

“Functioning is not the same as #thriving. & #functioning usually comes with a long list of small, barely noticeable things u do just to get thru the day. Things other people dont clock. Things that r actually #survival tools.”: buff.ly/I0880pQ

by Tanyahindes
#disability #ChronicIllness #NEisVoid

The 'Paperwork Flood': How I Drowned a Bureaucrat before dinner. Mood: Maliciously compliant. I can't express how much I utterly hate the "Continuing Disability Review." It is a letter that arrives every few years from the government, asking a question that is medically absurd and philosophically insulting: _"Are you still disabled?"_ As if my blindness were a seasonal allergy. As if I might have woken up last Tuesday, blinked, and realized that my optic nerves had decided to regenerate spontaneously. This week, I received The Letter. It demanded "updated medical evidence" to prove that I—a man who has been blind since birth—am, in fact, still blind. I called the number. I navigated the phone tree hellscape. I finally reached a human being. Let’s call her "Karen from Compliance." "I have the documents in PDF format," I told her, using my polite, I haven't had my morning tea so make this easy on me, voice. "I can email them to you right now. You’ll have them in ten seconds." "We cannot accept email," Karen said. Her voice was flat, dry, and sounded like stale coffee and rigid adherence to a rulebook written in 1994. "It is a security risk. You must mail physical copies, or you can fax them." "Fax them?" I asked. "You want me to fax you medical records when you could just delete the email after saving the attachments?" "Those are the options, sir. If we don't receive them by Friday, your benefits will be suspended." I didn't understand why they couldn't just look back in my file, noticed nothing had changed in decades, and update it based on past data. She said it with a challenge in her tone. She knew who she was talking to. She was talking to a blind man living below the poverty line. She assumed that "fax it" was an impossible hurdle. She assumed I would have to find a ride to a library, pay twenty cents a page, and struggle with a physical machine I couldn't read. She was counting on the friction of the physical world to make me give up. She forgot one thing. I am a nerd. And I have an internet connection. "Okay," I said, my voice dropping into the cool, smooth, ‘Let’s systemically tango,’ tone of a man with a plan. "I will fax them. What is the number?" I hung up. And then, I went to work. She wanted evidence? Oh boy, I would give her evidence. I didn't just pull the recent files. I went into the archives. I dug into the deep, digital bedrock of my hard drive. I pulled records from when I was five. I pulled the surgical notes from my cerebral palsy treatments. I pulled the intake forms from every specialist, every therapist, every social worker who has ever written a note about my "deficits." I compiled a single, monolithic PDF. It was a monument to medical trauma. It was a library of diagnosis. It was five hundred and twelve pages long. Single-spaced. I opened my preferred internet faxing service. This is a tool that allows me to send a fax purely through digital data. It would cost $20, exactly the amount someone had donated to the blog last week, but if I didn't do this, I would lose all my benifits. It costs me zero paper. It costs me zero toner. By the way, your tips keep me writing. But for the recipient? For the recipient, a fax is a physical reality. It requires paper. It requires ink. It requires time. I imagined Karen’s fax machine. It was probably an old, beige beast sitting in the corner of a gray office. It was likely low on paper. It was almost certainly low on patience. I uploaded the file. The file size was massive. The progress bar on my screen reader ticked up. _Uploading... 20%... 50%... 80%..._ I hit "Send." And then, I sat back and listened to the most beautiful sound in the world. "Your fax has been sent," my screen reader announced. I grinned. I imagined the scene in that office. At first, it would just be a single page. _Whirrr. Chunk._ A standard medical form. Karen would ignore it. Then, page two. _Whirrr. Chunk._ Page three. _Whirrr. Chunk._ By page fifty, the machine would be heating up. The smell of hot toner would start to fill the cubicle. The rhythmic _chunk-chunk-chunk_ of the printing would become a drone, a mechanical chant of malicious compliance. By page one hundred, the paper tray would run out. The machine would start beeping. That high-pitched, insistent _beep-beep-beep_ that demands attention. Karen would have to get up. She would have to find a ream of paper. She would have to feed the beast. And the beast would not stop. Because I had set the retry limit to "Infinity." If the line busied out? It would call back. If the paper ran out? It would wait. It was a digital siege engine. I sent them everything. I sent them the eye charts that prove I can’t read eye charts. I sent them the physical therapy logs. I sent them the blurry scans of notes written by doctors who are long since dead. I sent them the Tsunami of Truth. I wanted them to hold the weight of it. I wanted them to physically feel the burden of proof they place on disabled bodies. They want us to document our existence? Fine. Here is my existence, one sheet of hot, curled paper at a time. Two hours later, my phone rang. "Mr. Kingett?" It was Karen. She sounded breathless. She sounded like she was standing next to a machine that was hyperventilating. In the background, I could hear a rhythmic _whir-chunk, whir-chunk_. "Yes?" I answered, my voice the picture of innocent helpfulness. "Sir, please. You have to stop the fax. It’s… it’s been printing for an hour. It’s jamming the machine. We’re out of toner." "Oh, you're out of toner? It's jammed? Oh my! Oh, I’m so sorry," I said, putting exactly zero percent sincerity into the apology. "But you said you couldn't accept email. You said I had to provide _complete_ documentation. I’m just following the rules, Karen. I wouldn't want my benefits to be suspended because I missed documentation, so here's documentation all the way back to when I'm five years old." "Jesus Christ, We have it!" she snapped. "We have enough! Please, just… cancel the rest." "I’m afraid I can’t do that," I lied. "It’s an automated process. Once it starts, it has to finish. Security protocols, you understand." There was a long, strangled silence on the line. Then, a defeated sigh. "Fine! Fine," she snapped. "We will mark your file as updated." "Thank you," I said. "Have a wonderful day." I hung up. I sat there in my quiet apartment, eating a cookie. I imagined the pile of paper in that office, a physical mountain of evidence testifying to the fact that yes, I am blind, and yes, I am smarter than your bureaucracy. If you enjoyed this tiny victory in a hostile world, you might enjoy, Seven Days in June by Tia Williams

The 'Paperwork Flood': How I Drowned a Bureaucrat before dinner., Sightless Scribbles sightlessscribbles.com/posts/the-paperwork-floo... #Fax #Disability #ReadingCommunity #Blog #Blogs

We could also maybe use money to order food because we're feeling sick and executive dysfunction is at a high ebb right now. #mutualaid #disability

Alt Text**: Emotional first aid crisis intervention with guided breathing exercises and immediate coping strategies - 3mpwrApp

1/3

Emotional First Aid = Crisis mode, activated 🚨💚

When you're spiraling:

🫁 Box Breathing (guided, timed, animated)

🖐️ 5-4-3-2-1 Grounding (sensory focus)

❄️ Ice Cube Technique (intense sensation redirect)

#Injuredworkers #disability #wellness #3mpwrapp

A Killarney Kaleidoscope Muckross Lake The purpose of this trip was to compensate for and be funded by the refund I got from the cancelled Christmas trip to Tenerife Dublin to Kerry with Ryanair Flew the public service obl…

msmartinecom.wordpress.com/2026/03/28/a...

#multiplesclerosis #travel #blog #ireland #kerry #killarney #disability

How Invisible Chronic Illness Adds an Extra Burden to Life Personal Perspective: I live with the extra burden of looking healthy. I’m one among millions of people who live every day with sickness and or pain that is invisible.

“Bcos I was repeatedly told that I looked fine, in the early years of my #illness, I thot it was my #fault that I couldnt get better. 1 of the conditions of life is that we’re subject to #pain & illness..often..it’s invisible.”: buff.ly/EAJ3f1j

via @psychologytoday.com
#disability #ChronicIllness

Hi! I'm late. I Hope it's ok that I add mine on a Saturday?

I'm sitting at 267/1360 with just 6 days to go.

Every dime counts. I can't be late. 😣

Linktr.ee/khernandez

#helpsky
#helpfolkslive2026
#mutualaid
#disability
💕💸
#Fundsky
#BlackMutualaid
#BIPOCMA

OP: bsky.app/profile/kswr...

Hi Juno! Thank you so much!

I'm at 267/1360 for April shelter costs.

No movement all day. Just 6 days to go. :( Please chip in?

Linktr.ee/khernandez

#helpsky
#helpfolkslive2026
#mutualaid
#disability
💕💸
#Fundsky
#BlackMutualAid
#BIPOCMA

OP: bsky.app/profile/kswr...

BOOSTING! PLEASE, HELP THEM WITH HOUSING, EVER DONATION HELPS!

#helpsky
#helpfolkslive2026
#mutualaid
#disability
💕💸
#Fundsky
#BlackMutualaid

Hey y'all. No movement all day today. I'm hoping to at least get half-way there by EOD. i only have 6 days left. That's no time at all for such a large balance.

Every dime matters.

Linktr.ee/khernandez

#helpsky
#helpfolkslive2026
#mutualaid
#disability
💕💸
#Fundsky
#BlackMutualaid