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Prevalence of various comorbidities in a cohort of individuals with hypermobile Ehlers-Danlos syndrome - Journal of Rare Diseases Journal of Rare Diseases - Hypermobile Ehlers-Danlos syndrome (hEDS) is a heritable connective tissue disorder primarily known to cause abnormalities in the joints and skin. A variety of conditions...

Recognize any of these comorbid conditions?

#ChronicIllness #ChronicPain #EDS #hEDS #MCAS #HolisticHealth #Acupuncture #TuiNa #LifestyleSupport 💕 #Wellness

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Ehlers-Danlos Syndromes and Autoimmune Disease Can you have EDS and an autoimmune disease?  Both at the same time?  Does a bear leave bowel movements in the woods?  Yes.  And yes, you most certainly can have EDS and an autoimmune di…

When being complicated is...complicated.

#NewBlogPost #AutoimmuneDisease #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #HolisticHealth #Acupuncture #TuiNa #LifestyleSupport 💕 #Wellness

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You Don't Have to be Strong, Just a Little Stronger Than Before Sometimes telling ourselves to be brave invokes fear. Here's why you don't have to be strong, just a little stronger than before.

"We often tell ourselves or others to be strong. Instead of instilling inspiration... it becomes another standard we have to meet. You don’t have to be strong all the time. One small step forward is still a powerful act." Via @achronicvoice.com
🔗
www.achronicvoice.com/2018/05/13/y...

#ChronicPain

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The worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.

#ChronicIllness #ChronicPain #InvisibleIllness

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The worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.

#ChronicIllness #ChronicPain #InvisibleIllness

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Universe give me the strength I need to get my watering done tonight.
My pain is at an 8.
I think I am going to urgent care tomorrow and begging for toradol and steroids. ♿ #ChronicPain #RA #fibromyalgia

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Weather changes, stress, sleep quality, food - they all affect how we feel. The tricky part is figuring out which ones matter most for YOU. That's where tracking comes in.

#SymptomTracking #ChronicPain #HealthPatterns

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Stress is a major contributing factor to autoimmune flares, in case you're wondering how we autoimmune girlies (and gents) are handling the constant influx of INSANE news every day. 🔥🔥🔥
#AutoimmuneFlare #PsoriaticArthritis #ChronicFatigue #ChronicPain

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The worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.

#ChronicIllness #ChronicPain #InvisibleIllness

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RobinReach

RobinReach

“If you handle it well, they tend to forget that you’re handling it at all… doesn’t mean that I’m okay… I still have to deal with my illnesses [&] handle everything… I still have way too many medical appointments and way too much pain.” https://buff.ly/4eCu91w #ChronicIllness #ChronicPain

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Three things that helped me manage flares better: 1) Identifying my personal triggers 2) Planning rest days in advance 3) Accepting that some days just won't go as planned

#FlareManagement #ChronicPain #Spoonie

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Reminder: rest is not giving up. Rest is how your body heals. You don't have to earn the right to take care of yourself.

#Spoonie #ChronicPain #SelfCare

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The worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.

#ChronicIllness #ChronicPain #InvisibleIllness

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#chronicpain girlies: do you have a pain/flare tracker app that you "like" enough to recommend? the one i have been using (painscale) is shutting down. features important to me are privacy, granular body area tracking, and tracking triggers

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How Social Media Benefits Disabled People When it comes to social media, people often say that it is toxic and that we should limit our time on it. I would agree that social media can be toxic if you are following the wrong kinds of people…

"I have learned more about #medical conditions from #disabled #advocates online than I have ever learned in real-life. #Doctors do not always tell you everything u need to know to manage a medical condition.": buff.ly/Fjr9drG

by sarahlynn358
#ChronicIllness #ChronicPain #disability #spoonies

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The Causes and Dangers of Malabsorption, and An Easy Way to Get Your Nutrients via Oral Spray Vitamins

The Causes and Dangers of Malabsorption, and An Easy Way to Get Your Nutrients via Oral Spray Vitamins

"Whilst #probiotics are generally good for #intestinal flora, some contain #prebiotics ..that..provide food for #GutBacteria. But they can also lead to overgrowth & aggravate #gastrointestinal symptoms.": buff.ly/LnlPpUl

for SpectraSpray
#malabsorption #nutrition #nutrients #ChronicPain #IBD #diet

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Alan Brewington | Personal Blog and Insights on Health, Lifestyle, and Beyond Healthcare talks about transformation, but patients are still left out of the team. As a chronic patient, I explore why true outcomes depend on collaborating with patients—not just treating them.

Healthcare loves "profound transformations" of itself, these changes almost never include patients like me though. These "new" models are just a reshuffling of the hierarchal care (paternalist care) that we have always have. #Healthcare #ChronicPain
www.alanbrewington.com/blog/2026/4/...

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Ehlers-Danlos Syndromes and Autoimmune Disease Can you have EDS and an autoimmune disease?  Both at the same time?  Does a bear leave bowel movements in the woods?  Yes.  And yes, you most certainly can have EDS and an autoimmune di…

Yes, you can have both.

Unfortunately.

#NewBlogPost #AutoimmuneDisease #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #HolisticHealth #Acupuncture #TuiNa #LifestyleSupport 💕 #Wellness

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#MedicalGaslighting #MedicalAppointmentTrauma #ChronicIllness #ChronicPain #EhlersDanlosSyndrome

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A digital painting of a figure slightly from above  being lit from below

A digital painting of a figure slightly from above being lit from below

Things have been tough the last little while and it’s difficult to find the motivation to make art but I’m trying to embrace the darkness instead of hiding it away struggle is as much a part of life as joy is…
#digitalart #digitalpainting #chronicpain #mentalhealth

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The worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.

#ChronicIllness #ChronicPain #InvisibleIllness

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a man in a blue shirt is sitting on a couch with a tv land logo in the corner Alt: a man in a blue shirt is sitting on a couch with a tv land logo in the corner

Well... if I wasn't in enough pain already, I've been fighting with sciatica for a week now ... Yay... NOT!

#chronicillness #chronicpain #jeezfuckithurts #sciatica

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Three things that helped me manage flares better: 1) Identifying my personal triggers 2) Planning rest days in advance 3) Accepting that some days just won't go as planned

#FlareManagement #ChronicPain #Spoonie

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Chronic Illness Memes (Tell Me You’re Chronically Ill Without Telling Me You’re Chronically Ill)

Chronic Illness Memes (Tell Me You’re Chronically Ill Without Telling Me You’re Chronically Ill)

"You need 5 minutes to mentally prepare yourself just to sit up, when you need to use the toilet at night." - Pesky #ChronicPain problems.... Can you relate to any of these #memes ?: buff.ly/2rh0x4p

#NEisVoid #spoonie #ChronicIllness #disability #awareness #ChronicLife #arthritis #Lupus #sjogrens

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Chronic Pain Art مجموعة كبيرة من الصور -Chronic Pain Art

Discovered this collection of art for #chronicpain. A lot of beautiful pieces.

#disability #chronicillness

ar.inspiredpencil.com/pictures-202...

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Ehlers Danlos Syndrome and Men: Three Key Issues Men and their experiences living with hypermobile Ehlers Danlos syndrome is a whole topic…one that doesn’t get nearly enough attention in my opinion.  When you look online for info…

Yes, indeed. Guys live with #EhlersDanlosSyndrome too.

#BlogPost #MensHealth #GuysWithEDS #ChronicPain #ChronicIllness #EDS #hEDS #MCAS #POTS #HolisticHealth 💕 #Wellness

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It has not been a good week. But, I have been able to pick my hook up again. I have frogged it sobmany times, my yarn is fuzzy!
#crochet #chronicpain #chronicillness

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S1E1 of #TheXFiles is playing now in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#SciFi #insomnia #DisCo #ForTinu #spoonie #neisvoid #ChronicPain #cannabisculture #90sNostalgia

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The twist? Blocking abnormal immune cell activity in this region in rats stopped depression-like behaviours.

Another example of how studying animals can lead to mental health solutions.

#ChronicPain #Neuroscience #AnimalResearch #MentalHealth

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S1E1 of the new series #BigMistakes is playing next in the #ChronicLoaf stream tonight

mzelo.com/app/rooms/ch...

#comedy #insomnia #DisCo #ForTinu #spoonie #MutualAidMarathon #cannabiscommunity #ChronicPain

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