Excellent walk today. My #MS had me a little wobbly, but I met FOUR new neighborhood #dogs. My favorite is when I ask the owner if I can pet them and they say, "You can try, she's really shy," and then we become best friends.
#multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune
Having a chronic illness means learning to make joy small but mighty. #ChronicLife
The next person who tells me my chronic pain can be cured by yoga, some herb, or fresh air is going to get punched in the neck. #Spoonie #ChronicLife
"The true heartbreak of living with chronic illness is being forced to relive the worst moments of it over and over again." via @serenebutterfly.bsky.social at My Brain Lesion and Me
🔗
Read it: www.brainlesionandme.com/reliving-hea...
#Spoonie #ChronicIllness #ChronicPain #Disability #ChronicLife
Beautiful start to days off. #insomnia #stress #chronicillness #chroniclife #ms #mssucks #sleep
Good #MS day. Had a nice, long (for me) walk, including a visit from my favorite neighborhood #cat. I've never had a direct effect on symptoms from my Ocrevus infusion before, so maybe it's in my head. In any case, I'll take it.
#multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune
Every doctor's appointment feels like a game of medical bingo. #ChronicLife
Joy may look different now, but it still matters.
#ChronicLife
It's #ocrevus infusion day. My MS has been on the bad side, so I'm curious to see if I'll feel better after this. I always refuse the steroids, so any improvement will be from the actual drug.
#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune
Not sure if it’s a trauma history or #ms thing but it’s easy to see the effect of one threatening incident on my body. Starting the day pretty much in a deficit. #mssucks #chroniclife #chronicillness
You start appreciating the little things when they take maximum effort. #ChronicLife
I measure time in flares, fatigue, and the rare moments of calm. #ChronicLife
One step at a time still moves you forward.
Save this as a reminder.
Share with someone who needs this today 🤍
#MultipleSclerosis #LivingWithMS #MSAwareness #ChronicIllnessSupport #MSCommunity #WellnessJourney #SelfCareMatters #InvisibleIllness #ChronicLife #HealthHabits
I’ve had to learn to celebrate what I can do instead of mourning what I lost. #ChronicLife
Had the best sleep for ages but still starting the week on empty. Urgh.
#ms #mssucks #autoimmune #fatigue #chroniclife #chronicillness
Pace yourself today. The finish line isn’t going anywhere. #ChronicLife
"Bree has an interest in #photography & combines them with her #passion for #writing on her blog. Back home, she spends..time with her beloved dogs, eating clean & also appreciates a good TV show or 2" — Learn more abt BreeDixon3 's #ChronicLife here: buff.ly/qL8g7Wo
#DisabledPeople #spoonies
My body and I are still learning how to live together. #ChronicLife
“During my month of cannulas, needles, tests and scary procedures, I sought #beauty where I could find it. Through the #hospital #windows. I woke the first morning to a beautiful pink #sunrise.": buff.ly/0b11CVQ
by @ailishsinclair.bsky.social
#ChronicIllness #disability #spoonie #ChronicLife
In a world that demands hustle, I honor the stillness that my body requires. #ChronicLife
“Beth. 30 years together & she’s the foundation everything else builds on. The #relationship that survives every reduction, every #accommodation calculation, every moment when #ChronicIllness makes me difficult to #love.”: buff.ly/YTpZgGU
by @darthfoo.bsky.social
#ChronicLife #disability #spoonie
Having a very retro movie evening with Shirley Valentine.
I feel really up & down & unsteady so not sure why I’d watch this but it seemed like a good idea at the time.
#movie #moviesky #chroniclife
My invisible illness made me visible to myself. #ChronicLife
Chronic illness doesn’t come with a user manual, but boy do I have enough experience to write one. #ChronicLife
Joy may look different now, but it still matters.
#ChronicLife
"Rest and let it ride. I don’t fight flares or try to push through them. I find that by allowing them to happen and resting into them, I can limit how long they last." achronicvoice.com/pain-managem... via @achronicvoice.com
#ChronicPain #PainManagement #ChronicallyIll #ChronicLife
A medical thing actually worked out. My ferritin is 135!!! And it’s stayed there since November!
I’m so glad I advocated for myself to get treatment after 10yrs of being brushed off by GPs.
#chronicillness #autoimmune #chroniclife
Learn about MG limits: https://bit.ly/4rj7kXu
#MyastheniaGravis #MyastheniaGravisNews #MGJourney #DisabilityAwareness #ChronicLife #Bionews
I don’t need comparisons. I need understanding. #ChronicLife
I wish “doing nothing” healed things as fast as people think it does. #ChronicLife