It's #ocrevus infusion day. My MS has been on the bad side, so I'm curious to see if I'll feel better after this. I always refuse the steroids, so any improvement will be from the actual drug.

#ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune

CN Blut, Urin

Blutabnahme, Check!
Urinprobe, Check!
Kleiner Einkauf, okay wurd etwas größer aber, Check!
Ellie gekrault, Check Check!
Jetzt noch fertig ausräumen und dann bitte ein langes und ruhiges Wochenende, Check Check! 😌🙏

#MS #Ocrevus

Ocrevus means steroids. And steroids mean a week of baking my own bread. #speirghorm #MS #Ocrevus

#Ocrevus #5B. FU, #MS #MultipleSclerosis #thisism

Another awesome performance from my #MS team. Letter and booklet lands on the floor. IV #ocrevus is no more. Either go back to kesimpta or move to #briumvi
No choice, no discussion, just a crap photocopied letter and a shiny booklet.
#mssucks #autoimmune #chronicillness #chroniclife

Data builds on Roche's dominance in primary progressive MS Roche looks on track to add oral BTK inhibitor fenebrutinib to treatment options for primary progressive multiple sclerosis.

#Roche #primaryprogressiveMS #MS #phase3trial #oralBTKinhibitor #fenebrutinib #primaryprogressivemultiplesclerosis #PPMS #Ocrevus #ocrelizumab #FENtrepidtrial #disabilityprogression #CD20targetingantibody #FENhance1trial #FENhance2trial #clinicalbenefit #diseasemodifyingtherapy
zurl.co/MGaVR

#Ocrevus #5. FU, #MS #MultipleSclerosis #thisism

Ocrelizumab number two done ✔️

Here is a selection of amazing #art from the staff gallery at Charing Cross Hospital and the Imperial College Trust - grateful for amazing doctors, nurses and hospital staff 🙏🏼
❤️
#ocrevus
#gratitude
#gallery
#ms
#ocrelizumab

Preparing for tomorrow’s #ocrevus infusion. Back to the IV after a disastrous flirtation with the SC version in May. Comfies prepared. Amusement less so. Me and my kindle will probably be it, maybe my iPad to draw on. #ms #mssucks #autoimmune #chroniclife #chronicillness

#Ocrevus round 13!

It's infusion day! I look forward to my treatment every 6 months. It's slowed the disease progress so much and allowed me to fight Multiple Sclerosis.

This past 6 months I have had less fatigue due to finding the right combination of vitamin supplements. Let's go! #mswarrior

Well, hearing Mariah for the first time this year wasn't on my bingo card for today but fair play Merlin Park hospital 1! 😂
#MS #Ocrevus #TooEarly

Next iron infusion arranged for 4 weeks time, a week before my next #ocrevus infusion. I am going to be so fully charged by Christmas. Please.
#ms #mssucks #chroniclife #chronicillness #autoimmune #mslife

Pic of hoodie which is adapted for extra needs… this one has zips up the arms for when I have my ocrevus infusions👌

Excellent! Was looking for a cheap IV hoodie for when I have my #ms #ocrevus infusions as it’s always cold in the clinic..only size left is XL but got it on click and collect to my local branch so can return it easily if need be #adaptiveclothing 🤗

#MS #MSsucks
I've been on #Tecfidera since diagnosis.
Does fatigue improve with antibodies, like #ocrevus?
What about behavoural or emotional changes like refractory "inflammatory" depression?

PLEASE JUST TELL ME:
Will I get any better... or antibodies are just in order not to get worse?👀

I just caught that #ocrevus commercial again, which begat the same question from the first time I saw it: What the heck is a 10 minute injection!? It it a single injection from a very, very large syringe!? That lasts 10 minutes? Otherwise it seems to touch on a transfusion of some sort.

Chambre hôpital de jour. Bout du lit sur lequel j'ai posé un petit cahier, des jeux de mots fléchés, un stylo le chargeur du smartphone. Proche de la cloison en face, l'ordinateur qui permet aux infirmières de noter mes constantes (poids, température, tension) & qui suivra l'avancée de la perfusion(le débit augmente au fur et à mesure, on surveille que le patient supporte bien le produit -même si en l'occurrence, je n'ai jamais eu quelque réaction[allergie] que ce soit). À côté, la table pr midi sur laquelle j'ai posé ma gourde.

#hdj #perfusion #Ocrevus #SEP
Here we go... again

Ocrevus side effects: 5 key side effects Official answer: Common Ocrevus side effects are skin infections, infusion reactions, sore throat, blocked nose, fever, and sneezing...

#Ocrevus common side effects: cold-like symptoms, skin infections. Serious risks include infusion reactions, infections, and rare brain infection (PML). Pre-medications and close monitoring help prevent/manage infusion reactions. #MultipleSclerosis

Transfusion? That’s rad! My next is in October. No HALO so I’ll just have to eat all their snacks. Also I usually eat a large thin crust from Dominos by myself. Steroids make me hungry! Leather chairs. First class flight but when I walk outside I’m in the same place. #ocrevus #thuggedout #hobbylobby

#ms #ocrevus tomorrow after a few days delay thanks to Covid 🤦‍♀️🤦‍♀️

Does anyone else feel awful during and after their #ocrevus infusions? Mostly I see people saying they feel great afterwards so wondering why I never do... #MS

Really struggling with running, probably a number of reasons. It’s warmer, had my #ocrevus, had 3 colds in 3 weeks, life is stressful. But still doing it. #running #runningwithms #chroniclife #chronicillness

My 8th year on Ocrevus #Ocrevus #MSwarrior

The next couple of days are going to be a little rough for me. Today is #Ocrevus day (the infusion I get for my #MS or as I “affectionately” call it, The Brain Munching Disease since my version of it is literally making holes in my brain.) Tomorrow is MRI day. I’m already out of spoons. 🥄 🫩🤕😵‍💫😷🥱

Finding it much harder to get back to running after this infusion. Not drug side effects just how sore and bruised I am means I don’t want to move. Under on distance, met on pace. #running #runningwithms #chroniclife #multiplesclerosis #ocrevus

First sub-cut #ocrevus all in. No syringe drivers provided by the trust so the poor nurse had to chat to me for 10 minutes. Not sore at all, which is better than expected, a bit swollen but no more than expected. #multiplesclerosis #ms #chroniclife #chronicillness

First sub-cutaneous ocrevus infusion today. Premeds all in.
#ms #multiplesclerosis #chronicillness #chroniclife #ocrevus #subcutaneous #infusion

Infusion finishing up with a final flush of saline for 8 minutes and then I'm free! I fell asleep during it from the allergy medication, so not as many drawings as I hoped, the ones I made can be colored and such in the next while.

#MS #Ocrevus #artist

#Pokedex # 361 #Snorunt!

Good morning everyone! My appointment has begun, and so has my #sketch challenge for today. I'm going to attempt as many #ink #drawings as I can. It's cold in here, so I'm snugged up like this #Pokemon.

#MS #Ocrevus

Up early for advanced yoga. Admitting I’m getting a cold and it’s not hayfever 😢 just please be gone in time for my #ocrevus infusion #MS #chronicillness #chroniclife

Getting ready for bed.. big day tomorrow!
#Ocrevus infusion day to treat my #MS

I'm bringing my #sketch pad with me to draw some #Pokemon! I'm hoping to draw as many easy Pokemon as I can during the appointment. I will see you all tomorrow!