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Hashtag
#MECFS
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#MECFS 😢
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![Relapse
by Heather Gill, proud mother and carer of Sarah (16)
have been asked to share with you one of the awful parts of ME - The Relapse. My daughter, Sarah, has had many of these in the last couple of years, some not too bad, some very bad. Let's look at this together.
Reflect
A time to Reflect. Have we been overdoing things? We must now rest and let our bodies Recover.
୧
en
nergy
Laughter
A
P
atience
S
urvival
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Conserve your Energy to give you the resources to get back.
Laughter is one of the best therapies. I know it is hard when you feel so down, frightened and ill but, believe me, a laugh will make you feel better. [To find out why laughter is good medicine read Dr Darrel Ho-Yen's HOW TO: Float (and not drown!) on page 12. Ed.]
Achievement Achievements, however small, are important. Celebrating the little achievements every day gives a welcome boost.
Patience, with yourself and others, is important at this time. Give yourself and others time for you to feel better.
Learn the art of Survival. No matter how bad things get, remember you can get through the endurance test that is ME.
ncouragement This is a very upsetting time, for sufferers and carers. Encouragement is so valuable. Always be prepared to listen to how the other feels.
The TYMES Magazine Issue 31 Winter 2000](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:43rudsv62fuwsmnk7oppgtdy/bafkreiat7uubgk3xq433jxqtucbzbjpn7obqbbs5g2naxthvb6jp2swwsi)
Relapse by Heather Gill, proud mother and carer of Sarah (16) have been asked to share with you one of the awful parts of ME - The Relapse. My daughter, Sarah, has had many of these in the last couple of years, some not too bad, some very bad. Let's look at this together. Reflect A time to Reflect. Have we been overdoing things? We must now rest and let our bodies Recover. ୧ en nergy Laughter A P atience S urvival 14 Conserve your Energy to give you the resources to get back. Laughter is one of the best therapies. I know it is hard when you feel so down, frightened and ill but, believe me, a laugh will make you feel better. [To find out why laughter is good medicine read Dr Darrel Ho-Yen's HOW TO: Float (and not drown!) on page 12. Ed.] Achievement Achievements, however small, are important. Celebrating the little achievements every day gives a welcome boost. Patience, with yourself and others, is important at this time. Give yourself and others time for you to feel better. Learn the art of Survival. No matter how bad things get, remember you can get through the endurance test that is ME. ncouragement This is a very upsetting time, for sufferers and carers. Encouragement is so valuable. Always be prepared to listen to how the other feels. The TYMES Magazine Issue 31 Winter 2000
A teenager with ME reflects on relapses that are unfortunately part of ME
Old but timeless
I came across it when doing a clear out. From the magazine of the Tymes Trust
#MEcfs #PwME #CFS #MyalgicEncephalomyelitis
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今日は過日の青空をお届けします😃
筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。
#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge
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Pedal for Power “How it works” graphic showing four steps in a 2x2 grid: Create, Choose, Share and Log, each with an icon. Emerge Australia Pedal for Power logo is at top right. Bottom text reads “Paced actions. Real care.”
Pedal For Power: Paced Actions 💙
How to take part:
1️⃣ Create/join a team (or go solo)
2️⃣ Choose your “pedal” (rest, movement or creative)
3️⃣ Set a gentle goal
4️⃣ Share your page
5️⃣ Log minutes
Join now: zurl.co/rTPuT
#PedalForPower #MECFS #LongCOVID
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Just in case you’re wondering how bad and easily my muscles cramp now:
My spouse was gently rubbing my legs cause they hurt, forgot he can‘t press hard on them, gently grabbed my calf muscle and my whole left leg went into spasm and my foot started to claw.
#mecfs #longcovid #pots #mcas
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#Challengers just started in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#WomensHistoryMonth #NEISvoid #mecfs #SexTalkSunday #ForTinu #MutualAidMovies #ChronicPain
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Mar. 23-29:
Topics:
News, advocacy, articles
Coming events
Research news and commentary
Published research
www.s4me.info/threads/news...
#MEcfs #LongCovid
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I got worse after a ten day trial (of which I only last 8 days).
#longcovid #mecfs
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#TheSecretsoftheTwelveTribesCult documentary is playing in the #ChronicLoaf stream now
mzelo.com/app/rooms/ch...
#NEISvoid #mecfs #DisCo #ForTinu #spoonie #MutualAidMovies #cannabiscommunity
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#TeamVernunft #chronicillness #mecfs #longcovid #postcovid #liegenddemo
Ganz wichtige Solidarisierung, ganz wichtiges Engagement!⬇️
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Abstract Research suggests that people with chronic fatigue syndrome tend to suppress emotions more than healthy individuals. However, whether there are also changes in the neural substrates of emotional regulation in people with chronic fatigue syndrome remain unexplored. Specifically, it is unclear whether there is a neural delineation in how fatigue and anger-related memories are recalled or supressed in people with chronic fatigue syndrome. This study investigated this hypothesis using functional magnetic resonance imaging. We compared blood oxygen level-dependent signal changes between people with chronic fatigue syndrome (N=20) and matched controls (N= 20) during a novel task that involved the recall or suppression of fatigue (or anger-related memories). Results revealed a dissociation in the contribution of striatal subregions and the insula when recalling and suppressing anger and fatigue-related memories according to diagnostic status. Principally, patients showed higher blood oxygen level-dependent signal in the left and right rostral caudate during the suppression of fatigue and anger-related memories, respectively. Different patterns were also observed in the way each group recruited the posterior putamen when recalling (or suppressing) anger or fatigue-related memories. In contrast to its prominent suppression in striatal regions, blood oxygen level-dependent signal in the insula was increased in the patient group during the active recall of anger or fatigue-related memories. Cumulatively, these results reveal that chronic fatigue syndrome is associated with demonstrable, physiological changes in the way emotional information is processed and implicate the rostral caudate and insula as targets for further investigation.
UK research
Aberrant recruitment of the striatum & insula are associated with recalling & suppressing fatigue- & anger-related memories in CFS/ME
Free:
www.mdpi.com/2077-0383/15...
Don't know what or who will solve #MEcfs but pretty sure it won't be Trudie Chalder & this type of research
#PwME
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Dr. Jonas Axelsson presents, “Clinical and Biochemical Phenotyping of Post-Viral Immunometabolic Disease,” with a focus on clinical strategies
youtu.be/O1dHgXpYNdY
Institute for Neuro-Immune Medicine
Stratifying #LongCOVID and #meCFS treatments
#medsky
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Just checked and I don't even have an option to reply to the GP. Should I contact the surgery again? I feel like it would backfire on me. If anybody has advice please let me know #MECFS
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“Invisible No More”: Exploring Dr. Ruhoy’s New Treatment Guide for ME/CFS, Long COVID, etc. healthrising.org/blog/2026/03... #MECFS #LongCOVID
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Don't be afraid of change. Beautiful things can grow when you're willing to let go. #recovered #Anxiety #nevergiveup #AlwaysKeepFighting #fibromyalgia #MECFS #Erythromelalgia #tinybuddha
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S1E1 of #Insecure is starting in the #ChronicLoaf stream
mzelo.com/app/rooms/ch...
#comedy #WomensHistoryMonth #ForTinu #NEISvoid #mecfs #DisCo #ChronicPain #cannabisculture
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Screenshot eines Springer-Artikels („Der Nervenarzt“, 2026) mit dem Titel „Der Stellenwert der Psychiatrie in der Versorgung und Forschung von Post-COVID“, inkl. Hinweis auf Open Access, Download-Button und Autorenliste.
Screenshot der Springer-Seite zur Zeitschrift „Der Nervenarzt“. Sichtbar sind die Fachgesellschaft DGPPN, Journal-Kennzahlen (Impact Factor 1,1; 5-Jahres-IF 0,9), schnelle Entscheidungszeit (3 Tage) sowie die Angabe „Hybrid Publishing“.
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„Der Stellenwert der Psychiatrie in der Versorgung und
Forschung von Post-COVID"
- so der Titel eines neuen
Konsensuspapiers im
Nervenarzt.
In der Zusammenfassung heißt
es:
„Abgrenzung zu anderen psychischen Erkrankungen." Damit ist der Referenzrahmen gesetzt.
#MECFS #PEM
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screenshot of abstract
UK research funded by ME Association
Testing a Personalised Dysautonomia Management Protocol in Patients with Orthostatic Intolerance and a Diagnosis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or Long COVID
Free:
www.mdpi.com/2077-0383/15...
#MEcfs #LongCovid #PwME #ME #MyalgicE #POTS
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Haben Ärzt*innen jemals live #PEM bei ihren Patient*innen miterlebt?
ICH DENKE NICHT.
Wären Ärzt*innen während eines Zusammenbruchs, der Std., Tage, Wochen anhalten kann anwesend, sie würden deutlich weniger herablassend über diese Erkrankung urteilen bzw. sachlich falsch argumentieren.
#MECFS
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Mit Partner von K1 über MEcfs, PEM und PoTS gefachsimpelt. Wie jeden Sonntag.
Würde mir ja schon dringend wünschen, dass wir irgendwann einfach über das letzte Konzert reden können.
#MECFS #postCovid
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Ich kenne eine Psychotherapeutin, die früher mit einem der größten PAIS-Psychologisierer Deutschlands gearbeitet hat. Ihre Erklärung:
"Soma kennen die gar nicht mehr. Davon sind die so weit weg, dass sie nur noch Psychogenese kennen und sehen. "
Sowas erklärt einiges...
#MECFS #LongCovid
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Nicht verzagen, während alte Männer lieber ihr ärztliches Ego im Netz pflegen, stellen kompetente junge Frauen G93.3x - Diagnosen aus. Das Sozial- und Rentenwesen wird irgendwann die richtigen Fragen an die richtigen Adressaten stellen müssen.
#mecfs #longcovid #postvac
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Sagt mal. Was gibt euerm Leben Sinn? Bin da echt viel am überlegen gerade.
Gerade Menschen mit stärkeren Einschränkungen.
#hEDS #MECFS #Longcovid #DIS #kPTBS #chronicpain
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1/ Bin mal wieder an dem Punkt, wo ich merke, wie die #MEcfs Minimiser versuchen einem wegen der Erkrankung die Wissenschaftlichkeit abzusprechen. Denkt ihr wirklich, wir machen auf eure methodischen und therapeutischen Fehler aufmerksam, weil wir euch schaden wollen?
Wir wollen einfach, dass ihr
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I´ll go offlne until tomorrow morning due to #MECFS, also do I have to sit down, I´m a little bit dizzy, circulation problems.
I´ll watch some more TV now, so #ByeBye furriends & friends.
💖💖💖
en.wikipedia.org/wiki/Myalgic...
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@meassociation.org.uk
Good quotes from my 'soft spot' charity here (I worked for them for 24 years!) | The Guardian | 29 March 2026:
www.theguardian.com/politics/202...
#mecfs #MyalgicEncephlomyelitis #Benefit #wefarerights #universalcredit #TimmsReview
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Energy Firms Dodge £1 Billion Debt Relief Bill After Corporate Lobbying.
Again I won´t be able to work up some newsletters of yesterday or Friday due to #MECFS, new newsletters keep bombing in at Gmail, sorry.
www.desmog.com/2026/03/27/e...
@johnrplatt.bsky.social
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