#longcovid #covidpersistente
Hoy se pone en marcha la web de la Asociación LongCovid Andalucía:
longcovidandalucia.org
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Hashtag
#longcovid
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Updated link:
midatlanticreview.com/two-poems-by...
#LongCovid #ChronicIllness #Disability #Poetry
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www.contrariannews.org/p/what-they-...
Megan Armstrong developed serious #LongCovid after a second infection, post-vaccine, in 2024. A call to action.
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"Those doctors, among others, thought my suffering was all in my head. But the only ones playing make-believe are those who perpetuate the idea that #LongCOVID isn’t a real threat to all of us":
@cmadocs.bsky.social
open.substack.com/pub/contrari...
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"When we combine the neglect of actual common biomedical diseases with the scientifically unjustified belief that physical illness often has psychological causes, we have a perfect storm of medical gaslighting":
@cmadocs.bsky.social
#LongCOVID
#ME/CFS
open.substack.com/pub/mecfs/p/...
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Does anyone with #LongCovid #mecfs #pots #mcas have problems with their vision? I have blurry vision from about 2-5 meters distance, my left eye seems to be more affected than my right eye. It is not always the same: sometimes it's worse. Mainly after food or physical exertion it seems. I wonder […]
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En dan ga ik nu even dealen met de frustratie dat ik de tuinklus niet kan afmaken want er moet gepaced worden #LongCovid #mecfs
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We need to have the conversation /public health campaign, on how to minimize the chances of #covid19 --> #LongCovid. Rest and fully recover helps. Paxlovid? (Dubious). Metformin (BMI dependent?). See thread here: bsky.app/profile/ibal...
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August 5, 2020: “Is it just me, or do a lot of the things people talk about re: #LongCovid sound an awful lot like EDS/POTS/MCAS?” The medical establishment caught up in 2021-2022. I knew because I live it.
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PacePoints summary for today. 0.0 out of my current daily quota of 22.0.
Visible Health pacepoints graph showing mostly resting heartrate this morning and horizontal pacing line below.
What careful #pacing looks like, this lazy Sunday morning 🙏
NO #VisibleHealth PacePoints used at all so far today 😄
Saving myself for a more active afternoon.
#LongCovid
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Today would be amazing, as we have a chance to get a bonus £200 donation if we gain more supporters by midnight! Thank you.
#LongCovid #LongCovidKids
join.easyfundraising.org.uk/long-covid-k...
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Add in the cost of #ME/CFS a chronic illness with many similarities to #LongCovid - estimated EUR annual cost of $40b. US annual cost $20b. Australian annual cost - $10b.
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Pfff 🥵 Warme nacht. PEM koorts rillingen bovenop de menopauze warmte. Geen aanrader.
Waar zijn mijn grenzen, kan iemand ze even zoeken want ik heb geen idee waar het nu zo mis ging.
Of zou het een optelsom zijn?
Stomme #LongCovid
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Picture of my stick seat on a cycle path nearer to home
Stick seat at the ready! We have high hopes of what we might explore together here in the Yorkshire Dales @yorkshiredales.org.uk National Park 😊
#LongCovid #Disability #Pacing #GeographyTeacher
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Visible Health pacepoints graph for each day over the past 3 months. Much lower than it was in January...
Here's the longer-term context:
Over the past THREE MONTHS, I have managed to avoid inflammation in my #LongCovid body, despite the additional challenges of repeated dental infections 🙏
This lack of overexertion has made me more mobile and I have been focused on making the most of this week away 🤞
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#TheNicotineTest Runde drölfundzwanzig. Nach Monaten mal wieder ein Versuch; vielleicht geht ja noch ein bisschen was. Heute ist Tag 7, und ich habe nicht einen einzigen Tag vergessen, das Pflaster zu erneuern. 💪
#LongCovid
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Visible Health Pacepoints graph for the past 2 weeks showing drop from 15-17 pacepoints a day down to around 5 per day.
As someone with #LongCovid I have to Pace myself constantly.
Over the past TEN DAYS, I have focused on keeping my heartrate particularly low. This has been made possible by my Easter Break from teaching 👇
My #VisibleHealth PacePoints (PP) use has dropped from around 15-17 PP down to 5 PP per day 👇
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Wort zum Sonntag:
Es gibt #mecfs - Betroffene, die kein(e)
- Eltern,
- Partner,
- Erspartes,
- EWMR,
- Privatärzte
haben. Von mitbetroffen Kindern ganz zu schweigen. Dies sollte man immer mitdenken, wenn man sich zur Sache äußert.
#longcovid #postvac
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Wha would make school life easier for the young person you care for ? Blue background. White writing.
This is an important opportunity to ensure that the lived experiences of children and #youngpeople with #LongCovid are reflected in national guidance and future #policy. The DfE is currently consulting on updates to its statutory guidance, Supporting pupils with #medicalconditions at #school.
#SEND
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Performative concern about learning loss from COVID mitigations (and make no mistake, anything that doesn't address #longCOVID is purely performative) is like complaining a fire alarm and evacuation were stressful for children without mentioning that the school was on fire at the time.
Dishonest.
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This #LongCovid website from the Washington State Department of Health is worth a look. And 🙏 for mentioning masks and IAQ.
doh.wa.gov/emergencies/...
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"Journalists covering teacher and student absenteeism without talking about COVID are ignoring an elephant in the room & gaslighting many people suffering from #LongCOVID and illnesses that may have developed from getting COVID":
@teachrprecarity.bsky.social
www.thespec.com/opinion/cont...
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As for all that relentless guff in the media about chronic school absenteeism & "lazy teachers" setting a poor example, turns out it was actually #LongCOVID -
www.cidrap.umn.edu/covid-19/res...
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Another head-shaking media article, without a single mention of #COVID or #LongCOVID. Mercifully the article avoids blaming lockdowns, but (like many media articles) erroneously places the pandemic in the past -
www.washingtonpost.com/education/20...
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No mention of #LongCOVID, but "Number of students missing at least 10% of school year rising since pandemic":
www.cbc.ca/news/canada/...
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Symposium on Long COVID and Society at Columbia Columbia University is hosting a free symposium on Long COVID and Society on Monday, April 20 from 9:30 AM to 5:00 PM (ET). Speakers include sociologists, historians, anthropologists, patient advocates, clinicians, and scientists working around issues related to Long COVID's impact on social inequalities. Attendance can be in-person or virtual. Learn more here or register here.
Symposium on Long COVID and Society at Columbia (also online)
longcov.id
docs.google.com/forms/d/e/1F...
Image is from the Massachusetts ME/CFS & FM Association April 2026 newsletter
#LongCovid #PASC
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And in this article that refers to the pandemic in the past, no mention #LongCOVID to account for chronic absenteeism in US schools -
Via @teachplus.bsky.social
www.the74million.org/article/chro...
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No mention of #LongCOVID in this article that frets about significant declines in children’s executive functioning (even though we know that even a "mild" bout of #COVID can cause a three-point loss of IQ -
www.cidrap.umn.edu/covid-19/kid...
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...there's zero mention of #COVID or #LongCOVID, in this article pointing to poverty as the underlying driver of chronic respiratory diseases such as asthma -
@dailymaverick.co.za
www.dailymaverick.co.za/article/2026...
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