#FirstDoNoHarm #ChronicAllies #CdnEd #ChronicIllness #InvisibleIllness #ChronicAllies #SchoolAccommodations #SchoolSupport #InclusiveEducation #TeacherTips #TeacherPD #EducationCanada #Pacing

Disabled people, self management, and 'being controlling' Disabled people are often seen as demanding and controlling - here I look at an example of why this might be, and what is really going on.

“The thing is: this approach requires me to have complete #control over my schedule & a lot of control over my environment. Not because I like or want control, but because I need it in order to maintain my #ability to function.": buff.ly/fi8Rmul

By @stickmancomms.bsky.social
#ChronicIllness #pacing

KiActiv movement summary of data. 5 and a half hours sedentary, 1 hour 23 minutes Light Movement and 48 minutes of Moderate movement so far today

Three-quarters of my daily 'Moderate Movement' budget used in a few gardening tasks and a visit to the Recycling Centre. Not enough left in the tank even for a walk in the sunshine.

( #KiActiv smartwatch data)

#LongCovid #Pacing to avoid debilitating Post-Exertional-Malaise #PEM

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

Is Rest the Most Underrated Part of Chronic Illness Management? Gain insights into chronic illness management and find out why rest is the key factor you need to focus on for improvement.

"When you live with a fluctuating condition..your #body is already doing so much behind the scenes. And that means you need #RecoveryTime built into your day, not just #recovery days after a crash.": buff.ly/8i8R7bz

by @thethrivingspoonie.com
#ChronicIllness #SelfCare #pacing #disability #resting

Visible Health heartrate graph showing short periods of exertion but mostly light activity and REST

The Man Who Lies Down For Most Of His Gym Session

#LongCovid #Pacing #Micropacing

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

Talking about escalation and plot momentum and pacing -

#screenwriting #writing #pacing #afwnews #scriptsky

youtu.be/jRn4_HiwJU8?...

Stick seat on grassy riverbank

My @nationaltrust.org.uk stick-seat is a Godsend

#Pacing to avoid debilitating #LongCovid #PEM symptoms 🙏

#Dartington #RiverDart #Devon

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

Sleep Is a Currency Sleep Is a Currency             I was lying in bed this week, awake well before my alarm as is often the case. I was practicing my habit of recent years, which is to stay in bed resting...

“Sufficient, good quality #sleep can also help us avoid some #health problems in the first place.
We must pay the sleep piper in exchange for sleep’s beneficial #healing properties.”: buff.ly/0shAISN

by @hikingautism.bsky.social
#SelfCare #ChronicIllness #pacing #disabled

Visible Health heartrate graph - tagged by activity

Experimenting with what works.

Arrived early for an appointment, so decided to go for a level stroll.

10 minutes in, and my feet are starting to feel heavy (my earliest early-warning system).

Bench found. Legs are crossed.

I'd better turn around and get back to the dentist.

#Pacing #LongCovid

10.6 out of today's 30 Visible Health pacepoints - 13 behind today's pacesetter. Well below my pacesetter line on the graph.

Well-within my 'energy envelopes' for movement and for #VisibleHealth pacepoints.

Still RESTING all evening, for sure.

I really hope this continues.

#Pacing to avoid the #PostExertionalMalaise associated with my #LongCovid 😊

#LongCovidAwarenessWeek #LongCovid #ChronicIllness #InvisibleIllness #ChronicFatigue #PEM #PESE #Pacing #Spoonie #ChronicAllies #PatientAdvocacy #CaregiverSupport #FamilySupport

Learning to say no was one of the hardest things chronic illness taught me. But it was also one of the most freeing. Protecting your energy isn't selfish, it's survival.

#Spoonie #ChronicIllness #Pacing

No, You Don’t Just Need a Better Planner—Why Chronic Illness Demands a Different Kind of Structure Most planners fail your chronic illness routine. Here’s what actually works—and why energy-based planning makes all the difference.

"I don’t just #plan once and hope for the best. Each #morning (or sometimes the night before), I do a quick check-in: What’s my #energy like today? Any warning signs from my body? What feels doable and worth doing?": buff.ly/039u58B

by @thethrivingspoonie.com
#SelfCare #ChronicIllness #PACING

#LongCovidAwarenessWeek #LongCovid #ChronicIllness #InvisibleIllness #ChronicFatigue #PEM #PESE #Pacing #Spoonie #ChronicAllies #PatientAdvocacy #CRA #TaxTipsCanada #CdnTax #FinancialWellness

Visible Health graphic showing that I'm almost 10 pacepoints behind today's Pacesetter

Heartrate graph shows lots of Activity (blue) but very little Exertion (red) today

LOVING the new #VisibleHealth graphics to further help me to watch my #pacing and to guide my further activities.

It's a rare Thursday afternoon and evening with no Parents' Evening and also no orchestra rehearsal, so I have an extra six hours to play with...

...AND I'm well-behind my Pacesetter 😊

Fake-Energie bei ME/CFS – Wenn Adrenalin Energie vortäuscht Bei ME/CFS fühlt sich ein Adrenalinschub oft wie echte Energie an – bis der Crash folgt. Wie sich diese „Fake-Energie“ anfühlt und wie ich gelernt habe, sie früher zu erkennen.

Manchmal fühlt sich mein Körper plötzlich wieder „normal“ an.
Früher dachte ich: Ein guter Tag.
Heute weiß ich: Oft ist das nur ein Adrenalinschub – Fake-Energie vor dem Crash.
pacing-mecfs.de/fake-energie...
#MECFS #Pacing #chronischkrank #unsichtbarekrankheit #LebenMitMECFS

Wer ME/CFS sagt muss auch Pacing sagen!

Bei meinem Sohn steht nun auch #ME/CFS als Verdachtsdiagnose im Raume. Ausgesprochen von der Kinderärztin. Was jedoch nicht benannt wurde ist #Pacing

Aufklärungskampagne wann???

Low-Energy Living: A Gentle Routine for Flare Days - A gentle look at flare days and low-energy living with chronic illness. Realistic routines, and small rituals that make the day feel manageable.

“over the last few months I have been trying to let go of such rigid living. I have instead started to see #life as a flexible rhythm, I have things I would like to do, but I can move things around should I need to.”: buff.ly/mQENBY5

by @Beverleybutterfly.bsky.social
#ChronicIllness #pacing

#LongCovidAwarenessWeek #LongCovid #ChronicIllness #InvisibleIllness #ChronicFatigue #PEM #PESE #Pacing #Spoonie #ChronicAllies #PatientAdvocacy #OccupationalTherapy

The film’s pacing is solid, though the real-world sequences sometimes drag; the fantasy sequences deliver pure spectacle.
#Pacing #Blockbuster #FilmPace #FilmReview

How to Catch Yourself Before You Burn Out: Pacing With Chronic Illness Made Simple Learn simple ways to pace with chronic illness using a weekly self-check-in to manage energy, prevent burnout, and plan with awareness.

"Even with the best #pacing intentions, life shifts. A flare might hit, a task might take longer, or your #emotional energy might drop unexpectedly. When that happens, #midweek adjustments are essential.": buff.ly/8RmGFe6

by @thethrivingspoonie.com
#SelfAwareness #ChronicIllness #unpredictable

Visible screenshot. 4 out of 5. Looking Stable. HRV up, Resting HR down.

EliteHRV Balance between Sympathetic and Parasympathetic activity. 10 out of 10 Readiness

Kubios 66% Normal

Plenty of Rest and a good night's sleep.

Body is back in balance and Ready for Wednesday 👇

#VisibleHealth Stable

#EliteHRV In Balance and Ready

#KubiosHRV Normal Readiness

#Pacing to avoid the debilitating #PEM associated with my #LongCovid

Visible Health pacepoints 7.8 out of 30. 17 behind today's pacesetter

Felt quite tired today; linked to yesterday's overexertion at the start of my school day?

A gentle gym session, a slow supermarket shop and cooking a healthy soup for our evening meal. Otherwise plenty of physical and mental REST.

Hoping to be back on form for Wednesday 🙏

#Pacing #LongCovid

#LongCovidAwarenessWeek #LongCovid #ChronicIllness #InvisibleIllness #ChronicFatigue #PEM #PESE #Pacing #Spoonie #ChronicAllies #PatientAdvocacy

Managing Energy Not Time: The Science-Backed System High-Achievers Use to Escape Burnout - LifeHack Discover how managing energy not time prevents burnout. Learn the 4-dimension framework and science-backed strategies high-achievers use for sustainable peak performance.

"But here’s what most #productivity advice misses: everyone’s #energy profile is unique. What drains one person may energize another..The key is honoring YOUR pattern, not fighting it.": buff.ly/E5s5gGp

by @leonho.bsky.social
#working #pacing #PersonalDevelopment #ChronicIllness #burnout #career

Pacing looks different for everyone.

It’s about creating habits that work for your health, not against it.

How do you pace yourself? 🤔
Find out how to get started 👇
bit.ly/3KXMBcc

#MondayMotivation #Pacing #SelfManagement #ChronicPain