Viele Studien zeigen längst: Mit jeder SARS-CoV-2-Reinfektion kumuliert das Risiko. Das bedeutet, mit jeder Infektion wird das Risiko (auf LongCovid, teils lebenslange Beeinträchtigungen) größer! Man spielt mit jeder neuen Covid Infektion jedes Mal Roulette (auf das zusätzliche, sich potenzierende Risiko LongCovid). Am besten bleibt daher: Infektionsvermeidung! Link zum Ausgangs-Beitrag von Ralf Wittenbrink über die 'Science'-Studie: https://bsky.app/profile/ralfwittenbrink.bsky.social/post/3l7ivtle74a2q

./4
Bedenke: Jede(!) weitere Reinfektion, auch asymptomatisch, ist eine erneute Lotterie-Teilnahme für #LongCovid !🧐

Mit jeder #Covid19 Reinfektion kumuliert das Risiko. Das bedeutet, mit jeder Infektion wird das Risiko größer (LongCovid, teils lebenslange Beeinträchtigungen)! Wird so hingenommen?🤬

Dr. Jonas Axelsson presents, “Clinical and Biochemical Phenotyping of Post-Viral Immunometabolic Disease,” with a focus on clinical strategies

youtu.be/O1dHgXpYNdY

Institute for Neuro-Immune Medicine

Stratifying #LongCOVID and #meCFS treatments

#medsky

Preprint: Microbiota-induced intestinal barrier disruption drives BAFF-mediated B-cell dysregulation and autoimmunity in long COVID #longCOVID
www.researchsquare.com/article/rs-8... @ircm.bsky.social

"Invisible No More": Exploring Dr. Ruhoy's New Treatment Guide for ME/CFS, Long COVID, etc. - Health Rising An in-depth exploration of Dr. Ruhoy's treatment guide "Invisible No More" for ME/CFS, long COVID and similar diseases

“Invisible No More”: Exploring Dr. Ruhoy’s New Treatment Guide for ME/CFS, Long COVID, etc. healthrising.org/blog/2026/03... #MECFS #LongCOVID

Preprint: Microbiota-derived extracellular vesicles mediate gut-brain axis dysfunction in long COVID
www.researchsquare.com/article/rs-8... #longCOVID

My parents, both in their 80s, appear to be suffering with undiagnosed #LongCOVID. Up until a "viral infection" of last year, they were active & relatively healthy. Now they both have extreme fatigue & overnight, my father lost hearing in one ear.

This is not normal aging. And it was preventable -

Design and rationale of RECOVER-AUTONOMIC: A randomized platform trial evaluating interventions for Long COVID postural orthostatic tachycardia syndrome Post‑acute sequelae of SARS‑CoV‑2 infection (Long COVID) affect a substantial proportion of individuals, and among the many reported symptom clusters,…

www.sciencedirect.com/science/arti...
This trial addresses a critical gap in #LongCOVID management by providing the largest source of evidence to guide medical care for #POTS in Long COVID patients.

#Medsky🧪 #iDsky #immunosky #Publichealth This trial addresses a critical gap in #LongCOVID management by providing the largest source of evidence to guide medical care for #POTS in LC patients
- Specific Interventions & Their Rationale
N

PEM is the hallmark symptom of #ME and also occurs in patients with #LongCovid who will meet the diagnostic criteria for ME.

It is not the same as what patients with MS experience, as this (otherwise good) article suggests.

A 2-day Cardiopulmonary Exercise Test (CPET) can show the difference.

Physical and social activities are healthy for everyone. What's life like when you can't tolerate them? Physical and social activities are healthy for everyone. What's life like when you can't tolerate them?

A great article in English from 2024 on Post Exertional Malaise (PEM) from ScienceNorway.

#ME/CFS #LongCOVID

www.sciencenorway.no/me/victoria-...

How many years do you have to be sick and unable to work for, until it is considered that you might not still recover in some undefined future?

Is the fact that a small % of people recover from #LongCovid and #ME enough to suggest that everyone can potentially recover?

screenshot of abstract

UK research funded by ME Association

Testing a Personalised Dysautonomia Management Protocol in Patients with Orthostatic Intolerance and a Diagnosis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or Long COVID

Free:
www.mdpi.com/2077-0383/15...

#MEcfs #LongCovid #PwME #ME #MyalgicE #POTS

Ich kenne eine Psychotherapeutin, die früher mit einem der größten PAIS-Psychologisierer Deutschlands gearbeitet hat. Ihre Erklärung:

"Soma kennen die gar nicht mehr. Davon sind die so weit weg, dass sie nur noch Psychogenese kennen und sehen. "

Sowas erklärt einiges...

#MECFS #LongCovid

We weten nog te weinig. En dus doen we ons best om er zo min mogelijk over te weten te komen. Want als we het wel weten, kunnen we niet meer zeggen dat we te weinig weten. En dan moeten we er iets mee. En dat willen we natuurlijk niet. #longcovid #kabinet #bezuiniging

Nicht verzagen, während alte Männer lieber ihr ärztliches Ego im Netz pflegen, stellen kompetente junge Frauen G93.3x - Diagnosen aus. Das Sozial- und Rentenwesen wird irgendwann die richtigen Fragen an die richtigen Adressaten stellen müssen.

#mecfs #longcovid #postvac

Sagt mal. Was gibt euerm Leben Sinn? Bin da echt viel am überlegen gerade.
Gerade Menschen mit stärkeren Einschränkungen.

#hEDS #MECFS #Longcovid #DIS #kPTBS #chronicpain

This makes me concerned. No mention of Covid here, as usual. Wonder how long it will be before they try claiming that #LongCovid is not 'long term' and that we'll get better if we just 'try harder' and take up CBT & breathing exercises, or some anti-science quackery.

‘A cruel penalty’: disabled people face lower benefit payments if conditions not deemed lifelong Forthcoming rules mean debilitating conditions may not meet strict ‘severe and lifelong’ criteria, say charities

#longcovid

Original post on mastodon.nl

In het populaire gezelschapsspel “waarom voelt Anna zich vandaag zo kut” is de leidende theorie momenteel “Anna heeft gestofzuigd”. Maar ik weiger dat te accepteren. Ik ga niet een potje overbelast zijn door suffe huishoudelijke mini-klusjes. Laat het op z’n minst iets zijn waarbij ik bewust […]

Stekker uit longcovid-nazorg: duizenden patiënten de dupe Het besluit om C-support per direct te stoppen zorgt voor onrust. Volgens betrokkenen is de reguliere zorg nog niet klaar om longcovidpatiënten op te vangen.

Kijk het item terug via: www.hartvannederland.nl/milieu-gezon... 🧵2/2

#terugkijktip #csupport #sbs6 #hartvannederland #longcovid #zorg

Learn more about #LongCOVID and community allies here: https://youtu.be/Y0V-tWZO1Hw

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

The cruelty of Long Covid Podcast Episode · Quiet Riot · S3, E28 Bonus · 49min

A most comprehensive assessment of the current situation around #LongCovid in the UK - highly recommended to anyone who wants to get a better grasp of it.

It would be great if it were to reach people who don’t much think about Long Covid now.

Do share!

podcasts.apple.com/gb/podcast/q...

Reactie van een huisarts, op het verdwijnen van échte ondersteuning voor #LongCovid patiënten.
Dit mág niet gebeuren.
Behoud #C-support. Het kan wél.

Um Patient:innen zu den richtigen Fachärzt:innen lotsen zu können, müssen sowohl Haus- als auch Fachärzt:innen wenigstens die Grundlagen der Erkrankung kennen.

Im Fall von #ME #MEAwareness #MEkills #LongCovid #PostCovid #PAIS sehe ich da erheblichen Weiterbildungsbedarf im Gesundheitssstem.

I'm already seeing posts bitching about the ppl who didn't show up to make that magic 3.1 number, or whatever. As of 2024, there's an est 37.8 million adults in the US with #LongCovid. That's ONE debilitating disease. Have you checked in on your #disabled friends, neighbors, coworkers? Offer a ride?

I want to give a big shout out to researchers at @latrobe.edu.au who are working hard on #longcovid. But they still need a few more people for this study!! Please, please, get in touch using the details on this flyer.

Why isn’t Johnson in jail ?

Credit @ukcovid-19inquiry.bsky.social

#LongCovid

COVID-19 Could Alter Your Blood Vessels, Finds New Study One large group appears to be at greatest risk for this vascular stiffness that ages the veins and increases heart disease risk.

COVID-19 Could Alter Your Blood Vessels, Finds New Study.
I´m reading the column of a #LongCovid woman in a 2-weekly, free pharmacy customer magazine, she has similar symptoms as me who probably has #PostVac, I´ve never been Covid-infected.
www.thehealthy.com/news/covid-b...

Migraine. Burning nerves. Can’t be upright. Moving feels like fighting double gravity. This is a normal Sunday with Long COVID and ME/CFS. There is nothing inspiring about it. It just hurts.
#LongCOVID #MECFS #ChronicIllness #InvisibleIllness #PwME

The impact of #longCOVID on the workforce, regardless of origin, is essential context.

The decision to ignore that in service to special interests means workers are treated as consumables - disabled, cast aside and replaced.

Immigrants make handy scapegoats, but they're not the cause. #polisky

🧵: