C19LAP has opened up our 2026 Volunteer form. We are seeking committed individuals who can help expand our capacity, strengthen our operations, and support the continued growth and impact of our mission.
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Posts by COVID-19 Longhauler Advocacy Project
At C19LAP, we believe one thing is clear: education is the foundation of an effective, scaled response to #LongCOVID. This is how we move from awareness → action → impact.
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The COVID-19 Longhauler Advocacy Project’s (C19LAP) founder, Karyn Bishof, recently joined the Association of State and Territorial Health Officials (@ASTHO) and public health leaders for a powerful webinar during #LongCOVIDAwareness Month.
Watch here: www.astho.org/communicatio...
#LongCOVID
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Share any contacts you made so we can continue strengthening these relationships:
docs.google.com/forms/d/1ago...
Every action matters. Let’s keep building. #LongCOVID #LongCOVIDAwareness #OneInfectionAway
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#LongCOVIDAwareness Month Roundup!
Many secured meetings, connected with lawmakers, & helped move this work forward—& we want to highlight & build on that momentum.
Tell us what you did! Meetings, outreach, events, or any action taken with C19LAP:
docs.google.com/forms/d/1yqP...
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energycommerce.house.gov/representati...
www.congress.gov/bill/119th-c...
bsky.app/profile/fous...
x.com/ValerieFoush...
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3) And please amplify Rep. Valerie Foushee’s announcement, who introduced the resolution.
The more support it has, the more Congress will view Long Covid as important. It’s a step in the right direction!
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1) Please contact the Committee members, especially if your Representative is on the Committee! Link to the Committee list below.
2) In the Resolution link below, there is an option to “Contact Your Member” to let your Rep know this is important as well!
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A House resolution to recognize March as Long Covid Awareness Month was introduced to the Energy & Commerce Committee! It needs to be approved in Committee to go to the full House for a vote.
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Learn more about #LongCOVID and the respiratory system here: (insert respiratory YouTube link here)
Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!
We are all #OneInfectionAway
Learn more about #LongCOVID and the otolaryngologic (ENT) system here: https://youtu.be/I7eOYufaQ7I
Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!
We are all #OneInfectionAway
Learn more about #LongCOVID and community allies here: https://youtu.be/Y0V-tWZO1Hw
Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!
We are all #OneInfectionAway
Learn more about #LongCOVID and the integumentary system here: https://youtu.be/Wnn0D1G72Ak
Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!
We are all #OneInfectionAway
Learn more about #LongCOVID and the endocrine system here: https://youtu.be/Oq3rq14jD10
Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!
We are all #OneInfectionAway
Learn more about #LongCOVID and the renal system here: https://youtu.be/pxIjyQ7-j_o
Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!
We are all #OneInfectionAway
Learn more about #LongCOVID and caregivers here: https://youtu.be/UC7jy-H0WKc
Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!
We are all #OneInfectionAway
Learn more about #LongCOVID and neuropsychiatric health here: https://youtu.be/YtpdGbt2TNM
Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!
We are all #OneInfectionAway
Learn more about #LongCOVID and the musculoskeletal system here: https://youtu.be/58-Zfj0jGl0
Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!
We are all #OneInfectionAway
Learn more about #LongCOVID and patient-led advocacy here: https://youtu.be/Kh-pddiBhJw
Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!
We are all #OneInfectionAway
I wear a #mask because COVID-19 disabled me as a healthy firefighter/ paramedic at age 30. One infection took my entire future away. Six years later, there is still approved no treatment or cure for Long COVID.
The only way to #preventLongCOVID is to #preventCOVID-19 infection.
#LongCOVIDAwareness
Millions Showed Up Globally for Long COVID Awareness Day! Now We Keep the Momentum Moving Forward!
Check out today’s email reviewing #LongCOVIDAwarenessDay actions and continuing actions throughout the month and beyond. ⬇️
longhauler-advocacy.org/so/2cPq6SQYQ...
#LongCOVIDAwarenessDay
#LongCOVID
Machine learning identified 19% more COVID-19 deaths occurred in the US than officially reported.
www.science.org/doi/10.1126/...
We know the same is true for #LongCOVID cases and deaths.
#LongCOVIDAwareness
We need #researchers and #clinicians to:
#ListentoPatients
#BelievePatients
#StopGaslighting
#StudyLongCOVID and see #PatientsasPartners.
Millions need urgent, meaningful, and sustained action on #LongCOVID #LongCOVIDAwareness 2026
Poster @ www.longhauler-advocacy.org/lcamonth2026
Learn more about #LongCOVID and underlying mechanisms here: https://youtu.be/63D6Ut4UH5I
Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!
We are all #OneInfectionAway
Tuesday March 17th Poster & Directions for the #LongCOVID #SocialMediaWeekofAction
Post yours sharing your story/ reasoning.
Use the #’s, support others, share!
#LongCOVIDAwarenessWeek
#LongCOVIDAwareness
Thank you to Senator Tim Kaine's office for meeting with us today during #LongCOVIDAwarenessMonth to discuss #LongCOVID and the path forward. We appreciate the conversation and look forward to working together on solutions for the millions affected.
3. Tag @POTUS, @HHSGov, @SecKennedy, your Governor, and your Members of Congress, as well as other lawmakers of relevance (check handles/usernames across platforms).
2. Add caption: “I’m rating the U.S. government’s response to #LongCOVID based on lived
experience. I am sharing this during #LongCOVIDAwareness Month 2026 to urge immediate, meaningful, and sustained action.” You may include a brief explanation of your rating.
1. Take the 5-star rating sign provided and color in the number of stars that represent how you rate the U.S. government’s response to Long COVID from 2019–present. Take a picture with the poster, or post it solo.
Today’s social media action for our #LongCOVIDAwareness #SocialMediaWeekofAction!
Steps in thread below.
All actions for the week can be found at www.longhauler-advocacy.org/lcamonth2026 midway down the page. #LongCOVID