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Posts by COVID-19 Longhauler Advocacy Project

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Long COVID Volunteers 2026 (C19LAP) C19LAP is a patient-founded and patient-led Long COVID nonprofit organization based in the United States. Our work is dedicated entirely to advancing awareness, education, resources, cross-sector coll...

C19LAP has opened up our 2026 Volunteer form. We are seeking committed individuals who can help expand our capacity, strengthen our operations, and support the continued growth and impact of our mission.

docs.google.com/forms/d/e/1F...

3 days ago 1 1 0 0

At C19LAP, we believe one thing is clear: education is the foundation of an effective, scaled response to #LongCOVID. This is how we move from awareness → action → impact.

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3 days ago 2 0 0 0
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Living With Long COVID: Stories, Science, and Public Health

The COVID-19 Longhauler Advocacy Project’s (C19LAP) founder, Karyn Bishof, recently joined the Association of State and Territorial Health Officials (@ASTHO) and public health leaders for a powerful webinar during #LongCOVIDAwareness Month.

Watch here: www.astho.org/communicatio...

#LongCOVID
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3 days ago 8 2 1 0
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Submit Contact Information Received Back from Long COVID Awareness Outreach Thank you for taking action to elevate Long COVID awareness. This form allows us to track outreach efforts, coordinate follow-up, prevent duplication, and strengthen our collective impact across state...

Share any contacts you made so we can continue strengthening these relationships:
docs.google.com/forms/d/1ago...

Every action matters. Let’s keep building. #LongCOVID #LongCOVIDAwareness #OneInfectionAway
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2 weeks ago 1 2 0 0

#LongCOVIDAwareness Month Roundup!

Many secured meetings, connected with lawmakers, & helped move this work forward—& we want to highlight & build on that momentum.

Tell us what you did! Meetings, outreach, events, or any action taken with C19LAP:
docs.google.com/forms/d/1yqP...
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2 weeks ago 1 2 1 0

energycommerce.house.gov/representati...

www.congress.gov/bill/119th-c...

bsky.app/profile/fous...

x.com/ValerieFoush...
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2 weeks ago 3 1 0 0

3) And please amplify Rep. Valerie Foushee’s announcement, who introduced the resolution.

The more support it has, the more Congress will view Long Covid as important. It’s a step in the right direction!
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2 weeks ago 3 1 1 0

1) Please contact the Committee members, especially if your Representative is on the Committee! Link to the Committee list below.

2) In the Resolution link below, there is an option to “Contact Your Member” to let your Rep know this is important as well!
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2 weeks ago 2 0 1 0
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A House resolution to recognize March as Long Covid Awareness Month was introduced to the Energy & Commerce Committee! It needs to be approved in Committee to go to the full House for a vote.

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2 weeks ago 9 3 1 0
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Learn more about #LongCOVID and the respiratory system here: (insert respiratory YouTube link here)

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

2 weeks ago 4 1 0 0
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Learn more about #LongCOVID and the otolaryngologic (ENT) system here: https://youtu.be/I7eOYufaQ7I

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

2 weeks ago 4 2 0 0
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Learn more about #LongCOVID and community allies here: https://youtu.be/Y0V-tWZO1Hw

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

2 weeks ago 4 3 0 0
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Learn more about #LongCOVID and the integumentary system here: https://youtu.be/Wnn0D1G72Ak

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

2 weeks ago 2 2 0 0
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Learn more about #LongCOVID and the endocrine system here: https://youtu.be/Oq3rq14jD10

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

3 weeks ago 3 1 0 0
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Learn more about #LongCOVID and the renal system here: https://youtu.be/pxIjyQ7-j_o

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

3 weeks ago 4 1 0 0
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Learn more about #LongCOVID and caregivers here: https://youtu.be/UC7jy-H0WKc

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

3 weeks ago 1 1 0 0
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Learn more about #LongCOVID and neuropsychiatric health here: https://youtu.be/YtpdGbt2TNM

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

3 weeks ago 3 1 0 0
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Learn more about #LongCOVID and the musculoskeletal system here: https://youtu.be/58-Zfj0jGl0

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

3 weeks ago 5 3 0 0
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Learn more about #LongCOVID and patient-led advocacy here: https://youtu.be/Kh-pddiBhJw

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

3 weeks ago 4 1 0 1
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I wear a #mask because COVID-19 disabled me as a healthy firefighter/ paramedic at age 30. One infection took my entire future away. Six years later, there is still approved no treatment or cure for Long COVID.

The only way to #preventLongCOVID is to #preventCOVID-19 infection.
#LongCOVIDAwareness

4 weeks ago 33 11 0 0
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Millions Showed Up Globally for Long COVID Awareness Day! Now We Keep the Momentum Going. Millions of people around the world came together for Long COVID Awareness Day 2026—and what we witnessed was powerful. Patients and caregivers shared their lived experiences. Researchers and clinicia...

Millions Showed Up Globally for Long COVID Awareness Day! Now We Keep the Momentum Moving Forward!

Check out today’s email reviewing #LongCOVIDAwarenessDay actions and continuing actions throughout the month and beyond. ⬇️

longhauler-advocacy.org/so/2cPq6SQYQ...

#LongCOVIDAwarenessDay
#LongCOVID

4 weeks ago 6 2 0 0
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Applying machine learning to identify unrecognized COVID-19 deaths recorded as other causes of death in the United States A machine learning approach suggests that COVID-19 deaths were undercounted unevenly across sociodemographic groups in 2020–2021.

Machine learning identified 19% more COVID-19 deaths occurred in the US than officially reported.
www.science.org/doi/10.1126/...

We know the same is true for #LongCOVID cases and deaths.
#LongCOVIDAwareness

4 weeks ago 7 4 0 0
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We need #researchers and #clinicians to:
#ListentoPatients
#BelievePatients
#StopGaslighting
#StudyLongCOVID and see #PatientsasPartners.

Millions need urgent, meaningful, and sustained action on #LongCOVID #LongCOVIDAwareness 2026

Poster @ www.longhauler-advocacy.org/lcamonth2026

1 month ago 5 3 0 0
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Learn more about #LongCOVID and underlying mechanisms here: https://youtu.be/63D6Ut4UH5I

Be sure to visit https://www.longhauler-advocacy.org/lcamonth2026 to learn more, take action, and spread the word this #LongCOVIDAwareness Month!

We are all #OneInfectionAway

1 month ago 4 1 0 0
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Tuesday March 17th Poster & Directions for the #LongCOVID #SocialMediaWeekofAction

Post yours sharing your story/ reasoning.
Use the #’s, support others, share!

#LongCOVIDAwarenessWeek
#LongCOVIDAwareness

1 month ago 7 3 0 0

Thank you to Senator Tim Kaine's office for meeting with us today during #LongCOVIDAwarenessMonth to discuss #LongCOVID and the path forward. We appreciate the conversation and look forward to working together on solutions for the millions affected.

1 month ago 6 1 1 0

3. Tag @POTUS, @HHSGov, @SecKennedy, your Governor, and your Members of Congress, as well as other lawmakers of relevance (check handles/usernames across platforms).

1 month ago 2 1 0 0

2. Add caption: “I’m rating the U.S. government’s response to #LongCOVID based on lived
experience. I am sharing this during #LongCOVIDAwareness Month 2026 to urge immediate, meaningful, and sustained action.” You may include a brief explanation of your rating.

1 month ago 2 0 1 0

1. Take the 5-star rating sign provided and color in the number of stars that represent how you rate the U.S. government’s response to Long COVID from 2019–present. Take a picture with the poster, or post it solo.

1 month ago 1 0 1 0
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Today’s social media action for our #LongCOVIDAwareness #SocialMediaWeekofAction!

Steps in thread below.

All actions for the week can be found at www.longhauler-advocacy.org/lcamonth2026 midway down the page. #LongCOVID

1 month ago 5 1 4 0