To clinicians and researchers: During #LongCOVIDAwareness Month,I am calling on you to please #ListenToPatients, #BelievePatients, #StopGaslighting,#StudyLongCOVID without being directed to do so, and see #PatientsAsPartners. Your role in the response is essential.
We need #researchers and #clinicians to:
#ListentoPatients
#BelievePatients
#StopGaslighting
#StudyLongCOVID and see #PatientsasPartners.
Millions need urgent, meaningful, and sustained action on #LongCOVID #LongCOVIDAwareness 2026
Poster @ www.longhauler-advocacy.org/lcamonth2026
Ingrid Poldemaa, a patient involved in evaluating the project proposals for one of IHI's calls, says: "This is a good way to involve people and get better quality research. This is what the patient can offer - highlighting what is useful, indicating something that might affect a patient that the researcher may not realise."
🤝 Today, we're focusing on how patients are integrated into IHI's way of working. Hear from Ingrid Põldemaa, who took part in the evaluation of project proposals after one of IHI’s calls.
💡 Want to know more? europa.eu/!FwJk7T
#IHITransformingHealth #PatientCentricity #PatientsAsPartners
We’re excited to welcome Lesley Beaton, the #CCTG #Gastrointestinal Patient Representative. Lesley brings a unique combination of scientific expertise and lived experience to her role, advocating for trials that are clear, accessible, and patient-informed. #SolvingCancerTogether #PatientsAsPartners
Join #CCTG in welcoming Catherine Caule, our new Patient Representative supporting the #Hematology Committee. As a long-time #lymphoma survivor and advocate, Catherine brings deep insight and compassion to the role. #SolvingCancerTogether #PatientsAsPartners
Sarah Davies speaking as part of a panel presentation at Patients as Partners EU. Text: View. 9th Annual Patients as Partners EU. Reflections and implications. Lumanity logo.
This year’s Patients as Partners EU focused on integration of patient experience in the medical development process, and discussion reflected the maturing discipline of patient engagement. Read our expert summary and real-world implications here: lumanity.com/perspectives... #PatientsAsPartners
Lumanity employees at the Lumanity-branded booth in the Patients as Partners EU 2025 exhibit hall.
Sarah Davies speaking into the microphone while the other panelists listen.
#PatientsEU2025 is underway! Catch our experts at our booth. Questions? Visit lumanity.com/events/patie...
#patientengagement #patientempowerment #patientadvocacy #patientsaspartners #clinicalresearch #drugdevelopment
#PatientsEU2025 is just around the corner! Catch our panel and experts at our booth! Email contact@lumanity.com to schedule time to meet on-site. lumanity.com/events/patie...
#patientengagement #patientempowerment #patientadvocacy #patientsaspartners #clinicalresearch #drugdevelopment
If you'll be at #PatientsEU2025, catch our panel session, stop by our booth, and connect with our experts on-site! Learn more at lumanity.com/events/patie...
#PatientsasPartners2025 #patientengagement #patientempowerment #patientadvocacy #patientsaspartners #clinicalresearch #drugdevelopment
Text: 12th Annual Patients as Partners in Clinical Research Conference. Expert summary and key takeaways. Lumanity logo.
In case you missed it, we recently shared key takeaways from the Patients as Partners US conference, including needed improvements to clinical trials and incorporation of the patient voice. Read now: buff.ly/ctZSA7w
#PatientExperience #PXWeek #PEW2025 #PatExp #PatientAdvocacy #PatientsAsPartners
Are we truly leveraging patient insights to improve healthcare? Great interview from Emma Sutcliffe, ISPEP and Mark Bradley, Founder of PeopleWith.
lnkd.in/er2DwRXk
#PatientEngagement #PatientAdvocacy #PatientEducation #PatientVoice #ISPEP #HealthcareInnovation #PatientsAsPartners #ClinicalTrials
Come see us in Boston March 17-19 at the Patients as Partners conference. Our CEO, Dr Amber Hill, will be presenting in a pop-up session on reducing the patient burden in clinical trials. We hope to meet you there!
#PatientsasPartners2025 #PasP2025 #PatientsasPartners
