🧵 2 Bear in mind when reading the above article, the figures cited are 2022 figures, but the logic remains the same.

Here is the Medicare current link.

#health #chronicillness #disability #invisibleillness

www.servicesaustralia.gov.au/medicare-saf...

So, About the Safety Nets Thresholds A (hopefully) easy to understand summary of Australian MBS and PBS Safety Nets!

Talking to a friend today, discovered she had no knowledge of REGISTER AS A FAMILY for the Australian Medicare threshold to INCREASE THE REBATES. Sure, for a 100% healthy family, it may not make a huge difference, but if any family member has health challenges, it will.

I wrote this in 2022.

🧵 1

That link isn't working, Princess.

RFK thinks that diet will cure diabetes — he's mostly wrong again RFK Jr inaccurately claims that diet can "cure" diabetes. This is dangerous, as diabetes is a complex disease requiring medical management.

Robert F Kennedy Jr inaccurately claims that diet can "cure" #diabetes. This is dangerous, as diabetes is a complex disease requiring medical management. www.skepticalraptor.com/skepticalrap...

Interesting. I wonder what other links there may be?

Gut microbe R. gnavus could be key to lupus, lupus nephritis pathogenesis A bacteria found in the gut may “very important” to the development of lupus and lupus nephritis, according to a speaker at the Basic and Clinical Immunology for the Busy Clinician symposium.“We have…

"Rheuminococcus gnavus #bacteria may be associated with #lupus and #LupusNephritis. Treating R. gnavus could limit the need for #biologic or DMARD therapy in some patients with lupus.": buff.ly/3i05kAX

via @gohealio.bsky.social
#MedicalResearch #GutMicrobe #autoimmune #ChronicIllness

I have the same data with my Garmin. Very useful.

Artificial saliva made from sugarcane protein protects teeth from acid and decay Scientists have created an artificial saliva using a sugarcane protein that can protect teeth and fight bacteria. The key ingredient, CANECPI-5, binds directly to enamel, forming a shield against…

"The key ingredient, CANECPI-5, binds directly to #enamel, forming a shield against #acids that cause decay..The innovation could be especially life-changing for #cancer #patients who lose #saliva production after treatment.": buff.ly/OOwNNST

via sciencedaily
#ToothDecay #OralMedicine #MedSky

Older Australians are healthier than ever, but this hasn’t changed the way we talk or think about over-70s | John Quiggin People are still classified as ‘older’ or even ‘elderly’ as early as 65, even though they are now expected to keep working until they are 67

Me on turning 70-74. #johnqpersonal

“How Can I Afford to Exercise?” This question has been passed to me from a health care worker and is a very valid question. Many people with chronic conditions are on a limited budget. How can we afford the costs of exercise?

(2/2) I was trying to keep this short, not a strength of mine.

Anyway, I am a living example that #MovementAsMedicine does work (not for every disease, of course).

There needs to be more financial support though, as it is not cheap.

E.g.

@johnquiggin.bsky.social to avoid any confusion, this is also me, i.e. KoparaFallsKid, with my chronic illness 🧢 on. FIRM advocate of #MovementAsMedicine. Given your background & working role, I'm sure you can see links: economics of better care for those of our era where movement works. (1/2)

I'd also like to talk abt the fact roughly 300 are STILL DYING OF COVID EACH WEEK IN THE USA, which is likely an undercount

& scores more who suffer lasting impairment, disability, & loss of work, home, quality of life due to long covid

Millions missing

#MillionsMissing
#LongCovid
#CovidIsNotOver

Be Prepared For De-conditioning During LONG Post-Ops How I de-conditioned after surgery. Plan ahead if possible.

If, like me, you use #MovementAsMedicine watch out for de-conditioning during any long post-op periods. Prepare beforehand if possible!

#ChronicIllness #arthritis

The Horrors That Could Lie Ahead if Vaccines Vanish Researchers at Stanford University modeled how many people could die or be disabled in 25 years if vaccines for polio, measles, rubella or diphtheria were no longer available.

“When immunization rates drop, however, plagues from the past can come roaring back, as measles has in American communities where parents decided not to vaccinate their children.

Imagine what would happen if even the people who wanted shots couldn’t get them.”

The horrors ahead if vaccines vanish.

Diagnosed with IBD? What I want you to know as a veteran Crohn’s patient What I wish I knew about life with IBD when I was diagnosed nearly 19 years ago.

“Be prepared to realize that many of the people you thought would be front and center to #support you will be non-existent. It’s fine to mourn those #friendships or #relationships, but dont waste your time or energy on them.": buff.ly/XhgHciF

by nataliesparacio
#disabled #ChronicIllness #LifeLesson

After a double-lung transplant, Jennifer Bleecher was able to walk her daughter down the aisle—without oxygen, without fear, just love. https://bit.ly/47iCRAn

#CysticFibrosis #CFCommunity #CFLife #CFAwareness #CFNews

Pretending COVID isn't a thing—my #LongCOVID would like a word—is like pretending the climate crisis isn't spiraling out of control is like diving into an empty pool.

I've gone from "What are they thinking?"
To "What?! ARE they thinking?"

In every case, the answer is no. They aren't. By choice.

Oh, agree, but that was not the issue here, Sandra. There were restrictions I could not circumvent.

This is about not being able to do your normal stuff.

Apparently, yes, from what I read. It means the nerves on the front of the knee are not impacted, so you can kneel.

See the opening para here

www.drchienwenliew.com.au/knee/my-late...

Be Prepared For De-conditioning During LONG Post-Ops How I de-conditioned after surgery. Plan ahead if possible.

If, like me, you use #MovementAsMedicine watch out for de-conditioning during any long post-op periods. Prepare beforehand if possible!

#ChronicIllness #arthritis

Ben, I should add, I generally write in the context of pain management given my usual audience, but from my own experience, yes, pacing applies to the lethargy/fatigue as well (also a symptom of my disease collection).

I've avoided PEM for a long time now - through avoiding over-exertion. It's working 🤞

Let’s Revisit Pacing People relate to me that they did a really good four kilometre walk but know they will now be stuffed for two days. I cringe. NO, NO, NO – do not do this! This is NOT Movement as Medicine! Th…

Excellent news! I've written about it three times over the years, four if we count the Boom/Bust Cycle.

Note: I do not have Long Covid or ME/CFS

And yes those are my socks.

16.8 out of 30 daily pacepoints. Well below my pacesetter line

Minute by minute heartrate for today

...But I managed to keep my Heartrate low and my #VisibleHealth PacePoints use down as a result 👇

This is good.

Turning off ALL alarms 😊

#Pacing to avoid the debilitating #PEM associated with my #LongCovid

Ben, you are the first person I have seen/heard mention #pacing with #PEM! It has been a puzzle to me, as I learnt about pacing in 2017.

So glad to see you put them together!

Just noticed something I missed on my levodopa pill bottle.
"Swallow orally" .Um, I'm trying to imagine the other options :-) Can always use a little #parkinsons humour.

I looked at the possibility of doing a PhD on the day-to-day patient experience. Most (all I could find) patient experience research is about the patient interaction with the health system/medical profession, rather that how we get through project managing our situation.

And we're both on the #pacing page! 👏👏🤗

Tip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.

#PatientAdvocacy #ChronicIllness #HealthTracking

Symptom Diaries What is a Symptom Diary and why use one?

So agree! Took me a while to accept the concept, but yes!

Wrote about it.

#ChronicIllness #Disability