We are looking for a Clinical Research Manager at @cureparkinsons.org.uk
You must have clinical trial experience & good knowledge of the regulatory process
Exciting times for #Parkinsons research - join our team & be part of it!
cureparkinsons.org.uk/clinical-res...
Magnetic resonance–guided focused ultrasound thalamotomy found to yield "comparable outcomes in carefully selected patients aged >80 years & in younger individuals"; Broadening this treatment option for tremor-predominant #Parkinsons
movementdisorders.onlinelibrary.wiley.com/doi/10.1002/...
Using meta-analyzed individual patient data from 6 #Parkinsons cohorts (n=883), researchers sought to identify baseline predictors of outcome; Age, motor severity, cognitive impairment, APOE ε4, & GBA variants are important prognostic factors
movementdisorders.onlinelibrary.wiley.com/doi/10.1002/...
New research assesses pupil-light reflex's clinical utility in 25 newly diagnosed, unmedicated #Parkinsons cases; Results indicate no pupil parameter robustly distinguished PD patients from controls
journals.sagepub.com/doi/10.1177/...
Scientists examined the results of α synuclein-seed amplification assays using CSF from all patients who underwent lumbar puncture in their research center (n=356); They show high concordance with a clinical diagnosis of #Parkinsons & dementia with LBs
journals.sagepub.com/doi/10.1177/...
A double-blinded, placebo-controlled crossover study assessing the impact of GCase activator BIA 28–6156 on QT interval corrected for heart rate in 37 healthy volunteers finds no clinically relevant impact on ECG parameters; Ongoing trial for #Parkinsons
accp1.onlinelibrary.wiley.com/doi/10.1002/...
More data evaluating tear fluid as a non-invasive biofluid for αSyn RT-QuIC in 44 #Parkinsons patients (& 32 matched controls); Despite suboptimal sensitivity, non-invasiveness & promising specificity support further optimization
www.nature.com/articles/s41...
We’re on the lookout for a new Treasurer at SpotlightYOPD.
This is such an important role for us as a small but growing charity.
If this might be you — or someone you know — please get in touch or share.
📧 contact@spotlightyopd.org
🗓 Deadline: End of April 2026
#parkinsons #charityrole
World Parkinson's Day. It's coming to a close, but I'm still here. Everyday is Parkinson's day. And I'll be here, tomorrow and again the next day. And someday, for someone, it won't be Parkinson's Day. My dream for them. #research #parkinsons #LimitlessParkinsonsCare
#Parkinsons - Anyone know anyone who has had this done? - Terry and Rebecca Crews Share the New Parkinson’s Treatment That Stopped Her Tremors: ‘I Can Write My Name Again’
people.com/terry-crews-...
Please take a look at my latest reflection on the urgent need for responsive healthcare, tailored support, & improved mental health resources. Drawing from personal experience and a background in health psychology, I now offer free, evidence-based support to help. #Parkinsons #Support #MentalHealth
Before #Parkinsons symptoms appear, changes may already be happening at the molecular level.
In the Halfmann Lab, researchers use #AI to study when proteins first begin to cluster—early signals that could reveal how #neurodegenerative disease begins. #WorldParkinsonsDay
🔗 bit.ly/4vcTpFb
Thank you to Parkinson Canada and Parkinson Society Southwestern Ontario for their continued leadership and support across Southwestern Ontario.
#onpoli #cdnpoli #Parkinsons
My wife has Parkinson’s.
It’s been 5 years now.
Every day she battles it with grace and dignity, humor and grit.
She’s half my size and a 1000x stronger.
Thank you for keeping this disease in the public’s mind.
#Parkinsons
This week, we’re honored to host Mark Colo, Chairman of our Patient Advisory Committee.
On #WorldParkinsonsDay, moments like this are especially meaningful.
We’re deeply grateful to Mark and the #Parkinsons community. Their voices shape our path toward a better future for PD care.
Today is #WorldParkinsonsDay.
🎶 The Parkinson Battle Hymn—by Prof. Bastiaan Bloem & the #Parkinsons community in The Netherlands—raises awareness through music w/ this beautiful song.
Join us at #WPC2026 in #Phoenix:
🔗 https://wpc2026.org/Parkinsong
🎥 https://youtu.be/cRE6PwIMIZQ
Finding a cure for #Parkinsons Disease will require funding of basic research to increase understanding. One study, performed by the group of Professor E Yvonne Jones, investigated the structure of the protein Frizzled3, thought to play a role in Parkinson’s.
Today is #WorldParkinsonsDay and we're looking back at this 2020 paper from Christopher Kobylecki on the diagnosis and management of #Parkinsons disease ⏬
www.sciencedirect.co...
On #WorldParkinsonsDay, World Physiotherapy highlights the importance of #Rehabilitation; helping people with #Parkinsons stay active and independent, improving mobility, balance, and strength #Physiotherapy #HealthyAgeing
It’s #WorldParkinsonsDay 💙
Learn, share, and raise awareness for #Parkinsons.
Resources available at worldpdcoalition.org
An infographic displays ways to help people with Parkinson’s in the digital world to support World Parkinson’s Day. 1. Help non mouse users by designing for keyboard and speech only use, 2. Give prompts about how to successfully complete actions, 3. Create large clickable buttons with ample space between elements, 4. Give processing time for users by removing page timeouts, 5. Provide shortcuts to avoid tiring users through lots of typing. Visit ww.horlix.com to take a free accessibility test.
#Parkinsons is on the rise, with 166,000 people currently diagnosed in the UK.
On #WorldParkinsonsDay, we are sharing some ways organisations can make the usability of their websites easier for people with to access and navigate their platforms: zurl.co/ZfMZ2
#Accessibility #DigitalAccessibility
Three years ago, a resident living with #parkinsons helped to raise awareness in Rashielee by creating this poster about how the disease had effected his life.
#WorldParkinsonsDay 💙
Did you know people with #parkinsons can go on to develop a rarer type of #dementia?
#WorldParkinsonsDay 💙
💙 There needs to be more #psychological when living with degenerative life changing conditions such as #parkinsons. Coping with symptoms progressing, relationship changes, #care, prognosis. Wellbeing involves more than symptom management!
#WorldParkinsonsDay 💙
Preparing Phoenix for #WPC2026!
The WPC, w/ Visit Phoenix & Muhammad Ali Parkinson Center (supported by AbbVie), launched Parkinson’s Ready™ Phoenix—training local staff to better support people living w/ #Parkinsons.
Learn more: https://ow.ly/CIUk50YHiX3
#MuhammadAli used his platform to change how the world sees #Parkinsons disease, turning personal struggle into global awareness and advocacy.
See how the American Brain Foundation continues this work:
moppenheim.tv/blog/2025/05/...
#ParkinsonsAwarenessMonth #BrainHealth #ngo
Weekend Watch:
The Boys of Summer Part III: Short Stop
Sunday, April 12, 10am
Screening of the third film in the award-winning documentary series – Boys of Summer, which follows the filmmaker’s father’s journey with Parkinson’s.
Registration: us02web.zoom.us/meeting/regi...
#parkinsons #movie
Interestingly, H50Q filaments are identical to those of idiopathic #Parkinsons, in agreement with previous reports that this mutation is not pathogenic. This individual likely suffered from idiopathic PD, in line with an unclear family history.
A53T and G51D form doublets of the Lewy fold with a left-handed twist, and without density island A, which sets them apart from alpha-synuclein filaments from idiopathic #Parkinsons, which are right-handed Lewy fold singlets with island A.
