On 19 Jan, #MDRRA joined EU rheumatology projects to exchange on stakeholder engagement, with a strong focus on patients & PRPs.
Key takeaways: plan engagement early, support PRPs properly, use accessible language, and manage expectations transparently.
Season’s greetings from the #MDRRA project 🎄
Thank you to all partners, patient organisations & supporters for your dedication and collaboration. We look forward to an exciting 2026, with first results from our joint work towards better, patient-centred RA care. Wishing you peaceful holidays.
In MDR-RA, patients aren’t just participants — they’re partners shaping research, communication, and care. Through our Patient Engagement Plan, people living with RA co-create studies and materials that reflect real needs. Science works best when it listens. 💙
#MDRRA #PatientInvolvement #CoCreation
Introducing iCare-RA — a smarter, more personal way to treat rheumatoid arthritis 🌿
By combining clinical data, molecular insights & patient-reported outcomes with AI, MDR-RA aims to guide truly personalised care.
Because every person with RA deserves tailored treatment.
#AI #RA #MDRRA
At #Inmusc we share that dream.
For some people living with #rheumatoid #arthritis, standard therapies are not enough and they face multi-drug resistance, with fewer options and greater uncertainty.
#WorldArthritisDay #WAD2025 #MDRRA #iCareRA #PrecisionMedicine #Rheumatology #EuropeanResearch
🟠 MDR‑RA. They Have a #RMDream:
A time when, even after treatments fail, science will not give up on them.
#WorldArthritisDay #WAD2025 #TheyHaveADream #MDRRA #iCareRA #Inmusc #PrecisionMedicine #Rheumatology #EuropeanResearch #PatientCare #Innovation
@mdr-ra-project.bsky.social
Measuring Impact:
Beyond clinical value, MDR-RA is testing if the iCare-RA Tool is cost-effective & feasible in real healthcare.
From cost-effectiveness & micro-costing to stakeholder input, we’re building the case for smarter RA care.
🌍💡 #MDRRA #RAresearch #DigitalHealth
🔬 MDR-RA is preparing the groundwork for a future cluster trial of the AI-powered iCare-RA Tool.
Over 100 patients across Europe will eventually be enrolled to compare standard care vs. AI-supported decisions. A key step toward precision care in difficult-to-treat RA. #MDRRA #AI
🧠 MDR-RA is developing the iCare-RA Tool—an AI-powered assistant for rheumatologists. It will integrate clinical, molecular & imaging data to deliver tailored treatment options for difficult-to-treat RA. A bold step toward precision medicine! #Rheumatology #AI #MDRRA
Building the Evidence: PrOb-MDR-RA 🧩
MDR-RA is recruiting 80 D2T-RA patients across 16 EU/UK centres. 12-month follow-up with biopsies, imaging, QST & clinical data to power AI-driven iCare-RA and advance precision medicine in RA.
#MDRRA #RAresearch #ClinicalTrial #HorizonEurope #RealWorldEvidence
What if science didn’t just speak about patients—but spoke with them, and through them?
With the #MDRRA project, that vision is becoming reality.
We’re honoured to collaborate with 14 patient organisations from 12 European countries.
#RAcommunity #PatientEngagement #HealthResearch #HorizonEurope
🎯 First in-person #MDRRA Consortium meeting in Verona!
✅ Progress on data infrastructure & clinical tools
🤝 14 patient orgs joined project
🧬 Observational study & AI tool underway
👏 Great leadership & inspiring opera night!
Stay connected - follow us on LinkedIn & visit our website for updates.
At #EULAR2025 (Fri, 13 June, 15:45 CEST, Room B1), Prof. Costantino Pitzalis on synovial biopsy-guided treatment in RA — key for precision medicine & highly relevant for our MDR-RA work on Multi Drug Resistant Rheumatoid Arthritis. Excited for the session! 🔬🧬 #RA #MDRRA
Deep Clinical Phenotyping: Understanding the human side of MDR-RA by integrating clinical data, pain profiling & imaging to stratify patients and tailor treatments. Toward a future of AI-powered, personalized RA care. #MDRRA #PainResearch #AIinHealthcare #RA
🔍 Transforming MDR-RA care with secure, AI-powered data tools! A Europe-wide platform is harmonizing patient data & using federated learning to fuel smart, privacy-first clinical insights. Personalized medicine, powered by tech. #MDRRA #AIinHealth #DigitalHealth #Rheumatology
Tackling MDR-RA: 1.5M+ in the EU affected, 50% face treatment failure. The MDR-RA project develops iCare-RA, an AI tool using 25k+ datasets to guide treatment, improve outcomes & cut costs across EU care. #MDRRA #RA #AIHealth #HorizonEU #DigitalHealth #ClinicalTrials
🌍 On #WorldHealthDay we stand by #RA patients facing treatment resistance. MDR-RA is redefining care with #AI, #clinical #trials & patient-led science—for healthier beginnings & hopeful futures. Follow us for impact!
#MDRRA #HorizonEU #iCareRA #HealthForAll
📢 Official #PressRelease in #Spanish by our partner IMIBIC & Reina Sofía University Hospital on the #HorizonEU #MDRRAProject! 🎉
Discover how we’re tackling multi-drug-resistant #RheumatoidArthritis with innovative treatments. #MDRRA
🔗 Read more: www.imibic.org/noticia/435
Celebrating the International Day of Women & Girls in Science! 🌍✨
At #MDRRAProject, we’re proud to have brilliant women driving innovation in #rheumatology & #research. Their passion shapes the future of science & patient care.
#MDRRA #WomenInScience #HorizonEU #STEM
📢 The Medical University of Vienna has published its official press release on the #MDRRA study in #German! 🎉 This #European research initiative unites 23 partners from 12 countries to tackle multi-drug-resistant rheumatoid arthritis. Read more below:
#HorizonEU #HorizonEurope #Rheumatology
Exciting news!🎉The official #HorizonEurope #MDRRAProject press release has been published by our coordinator, Humanitas University!🌍Learn more about how we’re tackling multi-drug resistant #RA through groundbreaking #research and #collaboration. Stay tuned for updates! #MDRRA #HorizonEU #EUProject
🎉
#MDRRA has launched! 🚀
We’re tackling #MultiDrugResistance in difficult-to-treat #RA with cutting-edge #research & #AI tools. Follow us for updates, insights & breakthroughs!🌟Kick-off Meeting: Jan 21-22, 2025. Stay tuned!
www.linkedin.com/company/mdr-...
#MDRRAProject #HorizonEU #Rheumatology💊✨
