Today we celebrate #RareDiseaseDay!
Between 6000 and 8000 distinct rare diseases exist today, impacting the lives of between 27 and 36 million people. 70% of rare diseases start in childhood.
The #OrphaDev4Kids project is developing Orphan Medical Devices for children living with #rarediseases.

🚀 #OrphaDev4Kids is launching a #survey for #researchers working with Cyanotic Congenital Heart Disease (CCHD). If U have experience with CCHD help us advance #therapeutic options for this #orphandisease.
📝 survey here: redcap.emedea.it/surveys/?s=E...
#EU4Health #medicaldevices

🌍 Calling all paediatric orthopaedic surgeons!

Your expertise is essential to help us improve the development of tailored medical solutions for children with rare bone disorders.

Survey here📝 shorturl.at/mDa38

#OrphaDev4Kids #EU4Health #PediatricOrthopaedics #childrenfirst #HealthcareInnovation

If you are a #researcher with experience on CCHD or working on #cardiacdisorders, help us advance #therapeutic options for this #orphandisease.

Access the survey 📝 here: 👇
redcap.emedea.it/surveys/?s=E...

It only takes 1️⃣5️⃣ minutes!

#OrphaDev4Kids #medicaldevices #rarediseases #EUHealth

Great initiative! 🙏 Completed the survey. Hoping to contribute to better CCHD treatment. #OrphaDev4Kids

🚀 #OrphaDev4Kids is launching a #survey for #clinicians, #researchers and #caregivers of people living with Cyanotic Congenital ❤️ Disease (CCHD).
📝 redcap.emedea.it/surveys/?s=E...
If U have experience with CCHD help us advance #therapeutic options for this #orphandisease.
#EU4Health #HealthUnion