#PKUIreland

Campaign for new drug for rare genetic disorder called PKU Back in May, we spoke to Dr Colm Calligan, the father of Chloe Calligan, a 9 year old girl with a rare genetic disorder called PKU. There is currently no cure and despite recommendations, Ireland's he...

Wonderful interview on RTE Drivetime yesterday with my friend Colm Galligan, parent to Chloe who has PKU - #HTA process for Enzyme Replacement Therapy for #PKU in Ireland.

Please take the time to listen.

#LivedExperience #AccessToMedicines
#HTA #PKUIreland #Hope

www.rte.ie/radio/radio1...