Maddy Lomas has set up our stand at #PSOGI2025!
This year, PMP patient groups from 🇬🇧🇺🇸🇫🇷🇳🇱🇪🇸 unite to launch the International Barcelona Patient Manifesto, the first time our voices are heard together.
Tim Brill speaks this afternoon!
#PMPAwareness #AppendixCancer #RareCancer
We are optimistic that Jess’s Rule could make a real difference for the PMP community.
Find out more: www.gov.uk/.../jessica-....
#JesssRule #PMPAwareness #RareCancer #AppendixCancer #EarlyDiagnosisMatters #PseudomyxomaSurvivor
“How are you doing?” can be overwhelming, the answer might be complicated/exhausting to explain.
“How was your day?” allows space for the good/hard, without pressure.
Words matter, compassion lives in subtleties.
#PMPAwareness #RareCancer #AppendixCancer #PseudomyxomaSurvivor
Two different trials that may offer alternative treatments for PMP🤞in the future. We’ll keep you updated as more information emerges on either trial.
#PMPAwareness #AppendixCancer #PseudomyxomaSurvivor #BromAcTrial #PIPACTrial #RareCancerResearch
Jane & Emma are running #RoyalParksHalf, 12 Oct, #InMemory of Jane's Mum who died from PMP.
Thank you for doing this & honouring your mum.
Support them here - www.justgiving.com/page/kate-bo...
#teamjane #PMPAwareness #PseudomyxomaSurvivor #FundraisingForHope #RunForACause #TeamJane
This is a major step forward in the long journey towards new treatment possibilities for PMP. 🤞
#Pseudovax #PMPAwareness #AppendixCancer #PseudomyxomaSurvivor #ResearchMatters #ClinicalTrials #HopeThroughResearch
To everyone affected by appendix cancer & PMP: we see your strength. We’re with you & we’ll keep raising awareness not just in August, but every day after.
#AppendixCancerAwareness #PMPAwareness #RareCancerCommunity #TryAgainTomorrow #EndOfAwarenessMonth #AwarenessEveryDay
At just 12 years old, Flynn is shaving his hair on 27th Sept to raise money for PS. His mum, Tracy, was diagnosed with PMP when he was only 9.
👉 Support Flynn’s fundraiser:
gofundme.com/.../help-fly....
#FindYourBrave #PMPAwareness #ShaveForACause #TeamFlynn #LittleHeroBigHeart
Kay is running the Great North Run 2025 for us!
A champion for PMP rehab needs, she’s helped shine a light on how vital physio + recovery support are after surgery. Let’s cheer her on!
Support Kay: ajbellgreatnorthrun2025.enthuse.com/pf/kay-stand...
#GreatNorthRun2025 #PMPAwareness #RunForACause
Sue is running the #GreatNorthRun2025 she is a supporter & advocate #PMPAwareness. She has hosted online #physioforPMP, helping them regain strength & confidence. #ThankYouSue
ajbellgreatnorthrun2025.enthuse.com/.../sue...
#AppendixCancer #PMPSurvivor #RunForACause #SupportOurSupporters
There are actually differ types of #appendixcancer & #pseudomyxomaperitonei, some are more aggressive.
Early diagnosis & access to specialised care make all the difference.
Raise #AppendixCancerAwareness #PMPAwareness, spark conversation, & support those facing #RareCancer
Even during Appendix Cancer Awareness Month, we’re allowed to laugh. In fact, sometimes we need to. Here’s to strength, science, and still finding reasons to smile.
#AppendixCancerAwareness #RareButReal #LaughterIsMedicine #PMPAwareness #PseudomyxomaPeritonei #StillSmiling #AppendixCancer
This Appendix Cancer Awareness Month, we recognise the complex path to diagnosis.
That’s why our message is simple but powerful: Trust your gut.
Listening to your body can make all the difference.
#PMPAwareness #AppendixCancer #AugustAwarenessMonth #KnowTheSigns #TrustYourGut
