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Working together for change: a conversation with Sir Jim Mackey The Patients Association Podcast · Episode

You can now catch up with our #PPW2025 session with Sir Jim Mackey, Chief Executive of NHS England on our podcast!

Jim and Rachel discuss how NHS leaders and systems can work with patients to shape a more transparent, accountable and patient-focused NHS.

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“None of this works if we don’t trust the patient”: reflections on Patient Partnership Week 2025 Marketing and Communications Manager, Emma Sheffield, reflects on another busy and insightful Patient Partnership Week.

What did we learn from Patient Partnership Week 2025? From digital transformation to health equity, one thing was clear: real change starts by listening to patients and building systems with them, not around them. buff.ly/kNRe1Vi #PPW2025

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How does meaningful #PPI benefit both care-givers and patients?

This interview, hosted by @hqip.bsky.social's Kim Rezel, features insights from Epilepsy_12 and Side-by-Side on putting patient engagement into practice.

🔗 www.hqip.org.uk/cornerstone2...

#PPW2025 #PatientEngagement

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"It's not just about storytelling or feedback, it's about redesigning the system together to work better...The only way to of it, is to do it together" Aurora Todisco #PPW2025

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"Because the structure is changing, it means we'll have to work even harder to protect the principles of listening, inclusion and fairness. 'Nothing about us without us' is such a strong statement." Aurora Todisco #PPW2025

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"Many patients don't get that basic kindness and empathy now - we're in danger of normalising poor care that creates problems for patients" John James @sicklecelluk.bsky.social #PPW2025

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🧵 It's the final day of #PPW2025 and our last session is on Championing patient voices in healthcare campaigns. Our Chief Exec @rachel-p.bsky.social is joined by John James @sicklecelluk.bsky.social, Aurora Todisco and Rachael Pay, Weber Shandwick. This session has been sponsored by AstraZeneca

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Here’s another look at some #CAAW25 #PPI resources, now shared as part of #PPW2025.

hqip.org.uk/news/caaw25-...

These resources from @hqip.bsky.social and the wider clinical audit and healthcare community highlight the vital role of patient involvement in driving improvements in care.

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"When we become unwell we're at our most vulnerable and we become anxious and concerned. And it really ought to be the case that we meet a system that welcomes us and that works alongside us and helps make our journey through the system as easy as possible" @alfcollins.bsky.social #PPW2025

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📢"The point we've been making throughout Patient Partnership Week is that none of this works if we don't trust the patient" Ellie Howe #PPW2025

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"When I went to the specialist hospital, although they're still a big national hospital everything was co-ordinated for me. And I really believe it's because they looked at me not just as a gastric patient with these rare conditions, they looked at me as a person" Ellie Howe #PPW2025

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"Seeing some of the communications between the two hospital trusts, it was like I was the child of divorced parents. It was not a pretty place to sit, under these people arguing about whether I could or couldn't have treatment" Ellen Tutton #PPW2025

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Our #PPW2025 session on Patient power: energising the 10 Year Health Plan through patient partnership is underway!

Our Chair Julie Thallon is hosting the session with Ellie Howe and Ellen Tutton, two amazing patient advocates, and Prof @alfcollins.bsky.social. Sponsored by ‪@novartis.bsky.social‬

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'...Patients and families are happier about what the NHS is doing for them. Staff are happier because they're able to do what they're trained to do, and have the space to do it as well as they can.' 2/2 Sir Jim Mackey #PPW2025

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'The NHS talks about inequalities in quite a complicated way...but it is about knowing your local data, having the data to determine where you should have more attention on particular segments of the community and make sure you're tailoring services and access' Sir Jim Mackey #PPW2025

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'The thing that hammers all of these processes is very rapid human contact. So when something goes wrong a human being can talk to another human being...somebody is picking the phone up who's quite close to the service to say "I'm really sorry"' Sir Jim Mackey #PPW2025

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'We all know that the NHS is loved, but when you're not feeling listened to, where you're seeing things like epidemic injustice and patients where their stories are being disregarded...So I really value that that's what you're moving towards, that transparency' @rachel-p.bsky.social #PPW2025

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'If we're honest about when things are going well, and we're honest about when things aren't going well, then we can do that genuine partnership with patients and communities, because actually we all want it to succeed.' @rachel-p.bsky.social #PPW2025

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'Transparency is a thing that can't be selective. So once we say it's transparent, it's transparent - even when it tells us something we don't want to see.' Sir Jim Mackey #PPW2025

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'The changes that have been announced, have been announced - we have to make sure that we're clear on expectations about engagement in every form, having a curiosity, having a system, having an approach.' Sir Jim Mackey #PPW2025

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'You've got to have curiosity and frankly, you've got to be willing to hear what you don't want to hear' Sir Jim Mackey #PPW2025

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'Often in healthcare we get very attracted with the big technology, the innovations, the robots, the AI...but we know from interactions with patients and families that it's not usually the technical stuff that people feel let down by' Sir Jim Mackey #PPW2025

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🧵 We're delighted to be speaking now with Sir Jim Mackey, Chief Executive of NHS England for our Patient Partnership Week 2025 webinar today! #PPW2025

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Patient and public voice in procurement podcast

Kim & Ollie share how clinical audit programmes have involved patients in commissioning, and how @hqip.bsky.social bridges the gap between procurement & clinicians.

Listen here: hqip.org.uk/news/new-pod...

#PPW2025 #PatientInvolvement #PPI

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For #PPW2025, we’re sharing two video and podcast resources from #CAAW25 that explored the value of #PPI in healthcare.

Hosted by @hqip.bsky.social's Head of Patient and Carer Engagement, these video and podcast episodes feature members of our Service User Network.

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"Digital innovation and AI are good things, but the message is loud and clear that we need to bring patients and frontline staff with us on this journey" @rachel-p.bsky.social #PPW2025

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"In the past, the NHS has been very one-size-fits-all, and hopefully is starting to move to a more personalised model, that includes your digital preferences within that" @taradonnelly.bsky.social #PPW2025

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"Inclusion needs to be built in, not bolted on. We need to recognise that not everyone can or wants to use digital tools. We have to respect whatever they're comfortable with. That's not resistance, that's reality" Ruhel Ahmed #DigitalHealth #PPW2025

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"We need to make sure there's a backstop built into every system, so that if we are doing something digitally...we give them equal opportunity to access it either on paper or by speaking to someone" Rebecca Brown @worcsacutenhs.bsky.social #PPW2025

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"If you've got a ropey model of care, the best tech in the world is not going to make it work for people. You've got to get the model right, and then tech that supports that, is easy to use, and has had proper user-based design." @taradonnelly.bsky.social #PPW2025

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