Still reflecting on the #Galien “Patient-Driven Research” panel, where we explored how #PatientLeadership is reshaping rare disease R&D, extending from advocacy-led trials to biotech collabs. Patients are partners in innovation. https://www.galienfoundation.org/galien-patient-summit

We’re proud to announce that PROACT EU-Response will be showcased at #EPFCongress2025 (26–27 Nov, Brussels)!

Two days of dialogue on patient involvement, equity, resilience, digital health, AMR, and climate & health.
👉 epfcongress.eu

#PatientLeadership

We’re happy to announce that IMMUcan will be showcased at #EPFCongress2025 (26–27 Nov, Brussels)!

Two days of dialogue on patient involvement, equity, resilience, digital health, AMR, and climate & health.
👉 epfcongress.eu

#PatientLeadership

🚨 Big news from #ECNP2025!

Our President, Péter Kéri, will chair a panel on how patient-led priorities are reshaping mental health research.

📍 Meet us at ECNP (11–14 October, Amsterdam)
📍 See you at Brain Innovation Days (15 October, Brussels)

#BrainInnovationDays #PatientLeadership

Picture of a swollen river as seen from the train with a beautiful blue sky and white fluffy clouds

Thrilled to be on my way to the Canadian Respiratory Conference research day to talk about patient and community partnership in clinical trials. Beautiful Quebec countryside by train! #PatientEngagement #CommunityEngagement #PatientLeadership @cantrain.bsky.social

More than twenty years of academic literature about lived experience leadership Twenty years ago, in 2005, Sarah Gordon published what is often considered the first discussion specifically focusing on lived experience leadership – as we have come to know it – in the academic lite...

My first #LivedExperienceLeadership substack post for 2025 looks at the impact of Sarah Gordon's seminal paper on the topic published in 2005.

livedexperienceleadership.substack.com/p/more-than-...

#ConsumerLeadership #PatientLeadership #PPI

ImPatient, the Patient Leadership Newsletter | InHealth Associates ImPatient, is a montly update on what’s going on in the world of Patient Leadership, including latest news, summaries of useful resources, feature articles and guest blogs. It will also include our la...

ImPatient - The Patient (Lived Experience) Leadership Newsletter

#health
#healthcare
#NHS
#PatientLeadership

This month's newsletter all about 'patients excluded' - marginalisation /epistemic injustice. More than a dozen links and resources included... www.inhealthassociates.co.uk/patient-lead...