What about phyllodes tumor? Dutch patient advocates honored for pioneering work to develop treatment guidelines - SPAGN - Sarcoma Patient Advocacy Global Network This year, SPAGN awarded the third prize of Advocacy in Action Award to the Patiënten Platform Sarcomen in the Netherlands for their project on the management of phyllodes tumors, a rare form of…

Meet Dutch patient-advocate Marloes van Esterik. Her journey with a borderline phyllodes breast tumour sparked the creation of a national patient group and a push for formal protocols.

More in SPAGN's latest blog: www.sarcoma-patients.org/blog/what_ab...

#Sarcoma #PhyllodesTumor #RareCancers

Awesome to meet up with @RosenbergerMd and her team hearing about their efforts in Phyllodes research - impressive! Great to see their progress, on to more collaboration #onlytogether @DukeSurgOnc @PPSarcomen @NFKkanker @hetavl.bsky.social #phyllodestumor