💜 PURA x The Florey.

In 2 weeks families, Foundation and scientists will gather to share research updates and Run As One. Together, we’re uniting the expertise of researchers with the lived experiences of families to accelerate life changing discoveries.

#PURAfoundation #purasyndrome #TheFlorey

February 28th is Rare Disease Day, a day where we recognise the millions of individuals around the world living with rare disease.
Although every diagnosis is different, one thing unites us all: the strength of community.

#Purafoundation #community #purasyndrome #Rare #puraperfect #TeamPURA

We are pleased to announce our first annual report, highlighting the journey,impact, and vision of PURA Foundation Australia. This report reflects commitment to transparency, accountability, and positive change
www.purafoundation.au/about

#rare #purafoundation #DEE #teamPURA #purasyndrome #research