#RareDC2025

📣 Calling all rare disease community members. #RareDC2025

Sign this petition urging Congress to continue their support of steady and robust federal agency leadership, federal biomedical research funding, and public health agency resources.

Take action: everylifefoundation.quorum.us/campaign/111...

I am not able to attend this year largely on account of having a new job with less flexibility.

Personally, if I were able to attend #rareDC2025 I would use the opportunity to advocate for the protection of the Affordable Care Act (including insurance protections for pre-existing conditions).