It’s #RareDiseaseDay! With ~1 in 12 affected, RDs represent a significant burden for patients, families, & systems. The RD diagnostic odyssey is a call for improved awareness. The fact that still, only 5% of RDs have a therapy is a sobering reminder of the work we have to do. #RareDiseaseIsNotRare
The #RareDisease #DiagnosticOdyssey is a glaring example of health inequity. A Canadian Organization of Rare Disorders survey found pts saw 5.9 clinicians & received 3.2 misdiagnoses over 3.7 years before receiving an accurate Dx. RD awareness is crucial. #RareDiseaseIsNotRare #RareDiseaseTruth
It’s #RareDiseaseMonth! While there is no official definition, #RareDisease (RD) generally refers to conditions affecting <1 in 2k people. There are an estimated 10k RDs. Despite each RD being uncommon, 1 in 12 Canadians is affected by RD. #RareDiseaseIsNotRare #RareDiseaseTruth
