Welcome back to #ProjectThursday

We collect project news from the biobanking world for you every week. Enjoy! 🤝

🔗 Article: buff.ly/2wjg4d5

Today with #BigPicture #CANDLE #EPPerMed @cancerinfoportal.bsky.social #RI-SCALE #PROPHET.EU @ericforum.bsky.social #RareDiseaseMoonshot #GDI #EPND

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Together Through the Uncommon National Conference on Rare Diseases

“BBMRI-ERIC fully supports the European priority on rare diseases: Our directory features samples/data on rare diseases, we are part of #ERDERA, contribute to the #RareDiseaseMoonshot and collaborate with #EuroBioBank.” J. Pavlic-Zupanc at the Maltese Nat. Conference on Rare Diseases

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Rare diseases: a testbed for health innovation Over 30 million people in Europe live with a rare disease. Most of them still lack access to accurate diagnosis or treatment options. These unmet needs, these “white spots”, are not fringe issues.…

💡 #RareDiseaseMoonshot

As Europe discusses the future of life sciences in the context of the #EUBiotechAct, the #RareDisease Moonshot’s proposals will strengthen innovation for improved health outcomes and drive Europe’s competitiveness in life sciences

🔗 News article: buff.ly/mEC7Fet

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💡 #RareDiseaseMoonshot

The Rare Disease Moonshot welcomes the European Commission’s ambition to develop a comprehensive #EUBiotechAct.

🔗 Read more: buff.ly/EbEvIkm

🧵 12/13

Rare Disease Moonshot’s contribution to the Consultation on the next Multiannual Financial Framework - Rare Disease Moonshot Introduction The Rare Disease Moonshot is a multi-stakeholder initiative uniting public and private actors, researchers, clinicians, patients, and funders to advance research and care for the 30…

💡 #RareDiseaseMoonshot

As response to the open consultation to the multiannual financial framework, the #RareDiseaseMoonshot called for a mission-oriented architecture that ensures continuity across programmes.

🔗 Read more: buff.ly/PMc13IS

🧵 12/14

Conference on 'Towards an EU action plan on rare diseases' The European Economic and Social Committee (EESC), the Polish Ministry of Health, and the Medical University of Warsaw is holding a major conference entitled Towards an EU Action Plan on Rare…

💡 #RareDiseaseMoonshot
#RareDisease Moonshot is proud to be part of the movement at the “Towards an EU Action Plan on Rare Diseases” conference (10 April) with a clear message:
❗️ We must act together to address the pressing unmet needs in rare diseases.

🔗 Read more: buff.ly/3oFv6wo

🧵 10/11

💡 #RareDiseaseMoonshot

❗️Public-Private Partnerships (PPPs) in RD research were discussed at the #EURORDIS-RD Europe Round Table of Companies workshop
🔗 buff.ly/2qvPc8R

❗️ Recommendations on reg. science, tools, & platform for supporting start-ups & scale-ups.
🔗 buff.ly/M0QpqnC

🧵 10/11

Rare Disease Moonshot welcomes the EU Competitiveness Compass - Rare Disease Moonshot The European Commission’s Competitiveness Compass recognizes biotechnology, life sciences, and innovation as key drivers of economic growth and competitiveness. This communication builds on previous E...

📢 One bonus update today:
Read the #RareDiseaseMoonshot statement about the EU competitiveness compass here:

🔗 www.rarediseasemoonshot.eu/news/rare-di...

#RareDiseases

The Rare Disease Moonshot and Together for Rare Diseases coalitions advocate for reimagining ERNs as research powerhouses with PPPs at their core - Rare Disease Moonshot The European Commission’s recent evaluation of European Reference Networks (ERNs, representing a structured network comprising more than 1,600 highly specialised healthcare units from almost 400…

💡 #RareDiseaseMoonshot and #TogetherForRareDiseases advocate for a transformative vision to reimagine the European Reference Networks (ERNs) as research powerhouses, with public-private partnerships (PPPs) at their core.

🔗 Read more: https://buff.ly/3CDvKHy

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