Collage of images of the families featured in the Rare Diseases, Real Stories podcast, with text in the middle that says Rare Diseases, Real Stories Now streaming

Today is #RareDiseaseDay. Families of children with rare diseases are featured on UMass Chan Medical School’s six-episode Rare Diseases, Real Stories podcast. Listen: https://direc.to/oYu1

#RareDiseasesRealStories #RareDiseases #podcast @courageousparentsnetwork.org @rarediseaseday.bsky.social 🎧

Rare Diseases, Real Stories Rare Diseases, Real Stories

February is Rare Disease Month. The Rare Diseases, Real Stories podcast series spotlights families affected by rare diseases. Listen here: direc.to/oUKe

#RareDiseaseMonth #RareDisease #RareDiseases #RareDiseasesRealStories #podcast #GeneTherapy @courageousparentsnetwork.org @uofmass.bsky.social 🎧

Graphic says Rare Diseases, Real Stories, a UMass Chan Medical School podcast, All episodes streaming now; graphic overlay says 2025 Top Stories

Catherine at her PT appointment

Jennifer Siedman and Blyth Taylor Lord

Jack Laidlaw and his parents

UMass Chan launched the Rare Diseases, Real Stories podcast series in 2025 to shine a spotlight on the courage, resilience and advocacy work of families affected by rare diseases. All episodes are available: direc.to/oidj

#AdvancingTogether2025 #RareDiseasesRealStories @courageousparentsnetwork.org

Today is #RareDiseaseDay. UMass Chan Medical School shines a spotlight on rare diseases with the Rare Diseases, Real Stories podcast: direc.to/mNKA 🎧

#RareDiseasesRealStories #RareDiseases #podcast #RareDiseaseMonth @courageousparentsnetwork.org @blugenesfdn.bsky.social @globalgenes.bsky.social

Jennifer Siedman and Blyth Taylor Lord

Graphic showing images of kids with rare diseases and their families says Rare Diseases, Real Stories: A UMass Chan Medical School podcast. All episodes streaming now.

Through the Courageous Parents Network, Jennifer Siedman and Blyth Taylor Lord support and empower parents whose children are diagnosed with rare diseases. Their stories are part of the #RareDiseasesRealStories #podcast series: direc.to/mNfv 🎧

#RareDiseases @courageousparentsnetwork.org

Graphic showing images of kids with rare diseases and their families says Rare Diseases, Real Stories: A UMass Chan Medical School podcast. All episodes streaming now.

Jack Laidlaw

SPG4 is a rare neurodegenerative disease that causes progressive muscle stiffness and leg weakness.

“We will do anything to get this cure for Jack.“ - Anna Laidlaw

Jack Laidlaw’s parents joined the #RareDiseasesRealStories #podcast: direc.to/mPv1 🎧

#RareDiseases @blugenesfdn.bsky.social

Rare Diseases, Real Stories Science Podcast · 7 Episodes · Series

Why is it important to invest in scientific research? Listen to this podcast series. #RareDiseasesRealStories by @umasschan.bsky.social. podcasts.apple.com/us/podcast/r... #RareDiseaseDay #podcast

Raiden Pham

Graphic showing images of kids with rare diseases and their families says Rare Diseases, Real Stories: A UMass Chan Medical School podcast. All episodes streaming now.

Tommy and Linda Pham turned their heartbreak over their son Raiden’s ultra-rare disease diagnosis, UBA5 disorder, into hope for others.

“If we can help in any way, that’s a win for all of us.” - Linda Pham

🎧 Listen to the #RareDiseasesRealStories #podcast: direc.to/mqFg #RareDiseases

Graphic showing images of kids with rare diseases and their families says Rare Diseases, Real Stories: A UMass Chan Medical School podcast. All episodes streaming now.

Riaan at home, surrounded by toys

In this episode of the Rare Diseases, Real Stories podcast, Jo Kaur and Richie DiGeorge, parents of Riaan, a 5-year-old boy with Cockayne syndrome, reflect on their darkest days, small victories and enduring hope: direc.to/mqhW

#RareDiseases #podcast #RareDiseasesRealStories #RareDiseaseMonth

Graphic showing images of kids with rare diseases and their families says Rare Diseases, Real Stories: A UMass Chan Medical School podcast. All episodes streaming now.

Noa Greenwood giving her dad Lee a high five

Four-year-old Noa Greenwood, who received a promising gene therapy developed by researchers at UMass Chan Medical School, is an inspiration for families facing Canavan disease. Her story is part of our #RareDiseasesRealStories podcast: direc.to/mrHm #RareDiseases #podcast #RareDiseaseMonth

Graphic showing images of kids with rare diseases and their families says Rare Diseases, Real Stories: A UMass Chan Medical School podcast. All episodes streaming now.

Tamara Radivilova carries her daughter Catherine down the stairs to a PT appointment

Tamara Radivilova fled Ukraine while pregnant with her now 2-year-old daughter Catherine, the final participant in a UMass Chan gene therapy clinical trial for Tay-Sachs disease. Their story is a #RareDiseasesRealStories #podcast: direc.to/mrW4

#RareDiseases @blugenesfdn.bsky.social

Graphic says Rare Diseases, Real Stories, a UMass Chan Medical School podcast. All episodes streaming now on umassmed.edu and wherever you get your podcasts

🎧 Now streaming: Rare Diseases, Real Stories, a podcast that shines a spotlight on families affected by rare diseases: direc.to/msP4

#RareDiseasesRealStories #RareDiseases #podcast #RareDiseaseMonth @courageousparentsnetwork.org @blugenesfdn.bsky.social @globalgenes.bsky.social

Courageous Parents Network Courageous Parents Network

CPN’s Blyth and Jennifer teamed up for an appearance on the newly released podcast, Rare Diseases, Real Stories, brought to us by the team at @umasschan.bsky.social.

www.umassmed.edu/news/raredis...
#RareDiseases #podcast #RareDiseasesRealStories

Coming Feb. 10: Rare Diseases, Real Stories, a special podcast series that celebrates families transforming the world of rare diseases. Through their stories, you’ll learn about research at UMass Chan: direc.to/mta3

#RareDiseases #podcast #RareDiseasesRealStories #RareDiseaseMonth