Ich schlage vor den Herrn #Spagn aufzuteilen. Dann kostet der uns nur noch 2 mal das halbe. 🤷♂️
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#SPAGN
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A graphic describing the symptoms of bone cancer which include: Painkillers may not help (and pain can become worse at night) Tenderness of the area Bone pain (which can be constant or may come and go) Problems with Mobility (such as still joints or restricted movement) Bruising easily A lump or swelling (may be seen or felt) An unexplained limp A bone fracture Tiredness, Fever, Weight Loss or Muscle Tone may also be experienced The caption at the top reads "Could it be bone cancer?" and the bottom has the Hashtag Bone Cancer Awareness Week.
As we close out #BoneCancerAwarenessWeek, #SPAGN is proud to stand alongside @bcrt-uk.bsky.social to shine a light on bone cancer.
We're raising awareness of the signs and symptoms through this year’s #CouldItBeBoneCancer campaign.
Learn more and get involved at:
www.bcrt.org.uk/awareness/bo...
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Our latest #MemberBlog from #SPAGN member, Cédric Bochsler of the Shane Osteosarcoma Association, writes about his family's journey and their work to honor their son Shane across the global sarcoma community.
Read + share: www.sarcoma-patients.org/blog/foundin...
#BoneSarcomaAwareness #Sarcoma
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A graphic featuring a quote from the latest SPAGN blog that reads: "I hear so often from people who feel that research gives them hope. They want to see a future where sarcoma might have a less devastating effect on people -- diagnosis could be faster, treatments could be more effective, and they could bring fewer harmful side effects.
Did you miss our latest blog? Sorrel Bickley, board member for #SPAGN and Director of Research, Policy, and Support for @sarcoma.org.uk writes about the incredible investments that Sarcoma UK is making in patient-centered research for sarcomas.
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Check out our NEWEST BLOG featuring #SPAGN board member & Dir. of Research, Policy & Support for @sarcoma.org.uk, Dr. Sorrel Bickley. Sorrel talks about losing her mum to sarcoma + her mission to center patients' voices in sarcoma research.
Read more at:
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Leg pain. Misdiagnoses. A journey of over 1,500 km.
A rural sarcoma survivor in India turned his 3-year search for a diagnosis into a mission to change the system.
Read his story: bit.ly/SPAGNblog_DF
#SarcomaAwarenessMonth #KnowYourNormal #BreakingBarriers #SPAGN
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A member of the team poses for a selfie in front of a pull up banner that reads 'welcome to the SPAGN annual conference.' She is wearing a burgundy top and a BCRT awareness ribbon.
We're proud to announce the National Sarcoma Awareness Project has won at the #SPAGN Advocacy in Action Awards!
In partnership with @sarcoma.org.uk, we’re training future doctors to spot the early signs and symptoms 🩺
Visit: ow.ly/WRpi50Wn6wW
#SarcomaAwarenessMonth #Awareness #UntilTheresACure
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Lovely to meet with other member organizations of #SPAGN where we discussed 2024 accomplishments and voting leadership in for the coming year. We are inspired by global advocacy partnerships! #GlobalAdvocacy #ThrivingTogether
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#sweetmoment Director Emeritus Norman Scherzer received a lifetime achievement award for his 20+ years of patient advocacy work. (Carol & Carolyn accepted on his behalf and SPAGN Board Chair Markus Wartenburg praised Norman’s work.) #laboroflove #patientadvocacy #SPAGN
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By uniting our efforts, we can drive meaningful progress and improve lives!
#SPAGN #Sarcoma #patients #caregivers #clinicians #treatmentexperiences #CUREID #drugrepurposing #drugrepositioning #rarecancer #rarediseases #Collaboration #HealthcareCommunity #Sarcoma
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The #SPAGN conference brings together a vibrant community of #Sarcoma advocates, and I'm thrilled to be a part of it! As we engage with this event, I invite patients/caregivers/clinicians to share their invaluable Sarcoma treatment experiences on CURE ID at cure.ncats.io/pilot-overvi... or the app.
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