📢 New Publication: The #STRONGAYA project has reached a major milestone in improving care for Adolescents & Young Adults (AYA) with cancer.

Published in @thelancet.com, this study introduces the first-ever international Core Outcome Set (COS) for AYAs. 🧵👇

📍 We're in Paris for the #STRONGAYA General Assembly meeting, hosted by Institut Gustave Roussy.

Today, we discussed:
• Sustaining project results & reaching stakeholders
• Ethical health data processing for research
• Patient consent models
• Evaluating & refining our Core Outcome Set

On #WorldCancerResearchDay, we highlight #FederatedLearning - an approach that learns from data stored in different locations without moving or sharing individual-level (patient) data between these locations. Find out how #STRONGAYA uses it to advance cancer research: strongaya.eu/federated-pa...

💛 This #ChildhoodCancerAwarenessMonth, we highlight the need for age-specific cancer care. Children and young people with cancer have unique care needs - yet access to age-specific cancer care is unequal. #STRONGAYA contributes to addressing this gap to improve cancer care and outcomes. #HorizonEU

We reached an important milestone this week: Nodes in all 7 participating centres in 5 countries - UK, Netherlands, France, Poland, and Italy - are now connected to the #STRONGAYA federated infrastructure 🎉 Read more: strongaya.eu/news/two-pro...

#HorizonEU #AYAOncology #FederatedLearning

STRONG-AYA | Young cancer | Youth cancer | Cancer | Cancer research STRONG-AYA is a new, interdisciplinary, multi-stakeholder European network to improve healthcare services, research and outcomes for adolescents and young Adults (AYA) with cancer, defined as individu...

Key #STRONGAYA resources are now available on our website:
✅ Deliverables like the Federated Infrastructure Blueprint & Material for Education and Clinical Implementation
✅ Pamphlets for patients & healthcare professionals
✅ Scientific publications

Visit 👉 strongaya.eu
#AYAOncology #HorizonEurope

Building trust in health data management: Master’s thesis highlights STRONG-AYA’s leading role - Strong Aya Flor Pasturino, master's student from the Higher School of Studies "Ferdinando Rossi", has recently completed her thesis that shines a spotlight on a critical

🧠 Rethinking #consent in cross-border #healthresearch isn’t just about checking boxes. Supervised by Marine Jacquemin (@maastrichtu.bsky.social), Flor Pasturino (SSST Ferdinando Rossi) explores a Trust-Based Consent model in her thesis, using #STRONGAYA as a case study.

strongaya.eu/news/buildin...