🔬 How do we improve diagnosis for people with undiagnosed conditions?
📅 30 April | #UndiagnosedDay 2026
🌟 Expert & lived‑experience panellists
👉 View the agenda and register: https://loom.ly/DbXzw0E
#RareDiseases #Diagnosis #HealthPolicy

What You Should Know About Undiagnosed Rare Diseases | NORD What happens when your doctors can't diagnose you? Help is available for undiagnosed rare disease

For too many rare disease families, the search for a diagnosis can take years. PNRI is working to end the diagnostic odyssey by uncovering the genetic causes of rare diseases—bringing clarity & care faster. rarediseases.org/understandin...
#RareDisease #GeneticResearch #UndiagnosedDay

Today is #UndiagnosedDay 🧩💙
NORD is proud to share resources to support #undiagnosed and #misdiagnosed patients throughout their journey, with the hope that they can find a correct diagnosis sooner.
Learn more and explore resources on the NORD website today: bit.ly/4iAFiC3
#RareDisease #RareDiseases

One gene provides diagnoses for 30 patients whose condition was unexplained for years "It was rewarding to be able to provide an explanation for their condition,” said Dr. Daniel Calame, first and corresponding author of the work.

April 29th is #UndiagnosedDay. Read more about @bcmhouston.bsky.social researchers providing new diagnoses for rare conditions. blogs.bcm.edu/2024/11/08/f...

Persons Living with an Undiagnosed Disease (PLWUD)

April 29th is Undiagnosed Day. #UndiagnosedDay2025 #UndiagnosedDay
www.undiagnosed-day.org
udnf.org
undiagnosed.hms.harvard.edu
rareundiagnosed.org
www.udninternational.org

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Honoring those still searching for answers #UndiagnosedDay 🧬 Genomic intelligence is key🔑 Read more: www.genomenon.com/blog/undiagn...

29 April Undiagnosed Day 2025

🩺🧬 Today is #UndiagnosedDay.
Around 350 million people worldwide are living with an undiagnosed disease.
At #JARDIN, we are working to support European Reference Networks in their goal to facilitate diagnostic pathways
📢This isn't just a day. It's a movement!
#UndiagnosedDay2025 #ERNs