NORD briefs Senate on Rare Disease Day and backs H.46 advisory council The National Organization for Rare Disorders introduced its programs to the Senate Health and Welfare Committee, described Rare Disease Day activities at the State House and urged support for H.46, which would create a rare disease advisory council within the Department of Health.

The National Organization for Rare Disorders is rallying support for a new bill that could change the lives of those affected by rare diseases in Vermont.

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#VT #PatientSupport #VermontRareDiseases #CitizenPortal #HealthPolicy #AdvocacyEfforts

Vermont establishes Rare Disease Advisory Council for public health guidance Vermont's new advisory council aims to improve services for individuals with rare diseases.

Vermont is taking a groundbreaking step by forming a Rare Disease Advisory Council to amplify the voices of those living with rare diseases and improve healthcare access.

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#VT #PublicHealth #VermontRareDiseases #CitizenPortal #HealthcareAccess #LegislativeInitiatives

ALS Association urges Vermont to establish rare disease advisory council Danielle Spadafore supports Vermont's creation of a council for rare diseases and ALS awareness.

Vermont is on the brink of a groundbreaking initiative to support the one in ten residents living with rare diseases, thanks to a powerful push from the ALS Association.

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#VT #DiseaseAwareness #PublicHealth #VermontRareDiseases #CitizenPortal #PatientSupport

Vermont discusses establishment of rare disease advisory council amid federal funding concerns Vermont legislators consider a rare disease advisory council amidst uncertainty over federal resources.

Vermont is racing against the clock to establish a Rare Disease Advisory Council as federal funding cuts loom, posing a dire threat to those affected by rare diseases.

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#VT #AdvocacySupport #FederalFunding #VermontRareDiseases #CitizenPortal #HealthInitiatives

Sarah Elliott advocates for Rare Disease Advisory Council in Vermont Elliott urges support for Bill H46 to improve lives of rare disease patients.

A heartfelt plea from advocate Sarah Elliott urges Vermont's House Committee to support the establishment of a Rare Disease Advisory Council, aiming to transform the lives of those battling rare conditions.

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#VT #DisabilityInclusion #VermontRareDiseases #CitizenPortal