Voices of Rare 2025
Thank you to everyone who joined us.
After a high-energy workshop asking:
How do we really communicate with rare disease families to fill silence, or to connect?
Our panel brought powerful insights across science, care, and lived experience.
#VoicesOfRare
We’re thrilled to welcome Cagla Cömert to the #VoicesOfRare 2025 panel.
She works on rare & underrepresented diseases, using patient-derived models to uncover mechanisms and therapeutic targets.
📅 25 Nov · 16:30–20:30
🔗 Sign-up: docs.google.com/forms/d/e/1F...
We’re proud to welcome Dr. Nanna Cornelius to the #VoicesOfRare 2025 panel.
With a PhD in Translational Molecular Medicine, she brings deep insight into the science — and real-world challenges — of rare diseases.
25 Nov,
16:30–20:30
Sign-up: https//docs.google...
🇬🇧 We’re proud to welcome Anna Pawlowicz, founder of HumanKind, to the #VoicesOfRare 2025 panel.
As a parent of a child with an ultra-rare condition, she brings a powerful, honest family perspective — and years of expertise in disability inclusion.
#CEDDinamarca #Inclusión #EnfermedadesRaras
We’re thrilled to welcome Flor Guillén, Speech & Language Therapist at NeuroExp, to the #VoicesOfRare 2025 panel.
She helps families navigate Denmark’s system & access the right support for children with rare & developmental challenges.
#RareDiseases #CEDDenmark #Inclusion
We’re proud to welcome Andreas Borg, leader of Centerbørnehaven, to the #VoicesOfRare 2025 panel.
His work shows how inclusive learning & collaboration can transform care for children with rare diseases.
#RareDiseases #CEDDenmark #Inclusion #HealthEquity
🎗️ 𝗩𝗼𝗶𝗰𝗲𝘀 𝗼𝗳 𝗥𝗮𝗿𝗲 𝟮𝟬𝟮𝟱 – 𝟮𝟱 𝗡𝗼𝘃, 𝟭𝟲:𝟯𝟬–𝟮𝟬:𝟬𝟬
𝗪𝗼𝗿𝗸𝘀𝗵𝗼𝗽 + 𝗣𝗮𝗻𝗲𝗹 to connect patients, scientists, clinicians & institutions around rare diseases.
Let’s amplify the #VoicesOfRare!
#RareDiseases #CEDDenmark #Inclusion #HealthEquity
