A little insight into Mackenzie’s medication regimen these days (although I missed a couple of videos of her eye drops and eye ointment tonight!). The fun never stops, I spend a lot of my day prepping... TikTok video by Mackenzie’s EB Journey 🦋

This is only PART of what these babies have to go through; medication, if covered, nevermind affordable, is applied with great care throughout the day. Please don’t just spread awareness, sound the sirens!! #butterflybabies #JEB #EB #butterfllychildren #debra #family
www.tiktok.com/t/ZTjkt7A9f/