#iamlivinglfs hashtag - Bluesky

@livinglfs.bsky.social

3 weeks ago

💙💚 We are Living LFS 💚💙

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #LFSawarenessmonth #lfsawareness #lfsawarenessday #lifraumenisyndromeawareness
#lifraumenisyndromeawarenessmonth

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Living LFS

@livinglfs.bsky.social

4 weeks ago

Irení is one of our 2026 Spring Hardship Grant recipients.

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #lifraumenisyndromeawarenessmonth #lfsawarenessmonth #lifraumenisyndromeawarenessday
#lfsawarenessday #hardshipgrants #LFShardshipgrants

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Living LFS

@livinglfs.bsky.social

1 month ago

We are so excited to see you wear your Living LFS Awareness Day gear or #WearBlueForLFS this coming Friday, March 20th!

#lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #lifraumenisyndromeawarenessmonth #lfsawarenessmonth #lifraumenisyndromeawarenessday #lfsawarenessday

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Living LFS

@livinglfs.bsky.social

1 month ago

When you're diagnosed with LFS it's recommended a specific regiment of screenings is performed. Early detection saves lives!

livinglfs.org/resources/#s...

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lfsawarenessmonth #lfsawarenessday

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Living LFS

@livinglfs.bsky.social

1 month ago

How did Li-Fraumeni syndrome come to be discovered? Where does the name come from? Meet the two doctors, Dr. Li and Dr. Fraumeni, who helped connect familial cancers linked to a genetic mutation in the TP53 gene.

#lfsawarenessmonth #iamlivinglfs

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Living LFS

@livinglfs.bsky.social

1 month ago

People with Li Fraumeni syndrome (LFS) have mutations in a gene called TP53. Do you know the difference between P53 and TP53? We do use them interchangeably a lot. P53 refers to the protein that the gene TP53 makes.

#livinglfs #iamlivinglfs #p53 #tp53 #tp53gene #lfsawarenessmonth #lfsawarenessday

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Living LFS

@livinglfs.bsky.social

1 month ago

Knowledge is power! Share LFS Facts throughout the month of March. Learn exactly what this rare genetic disease is about!
We are Living LFS!

www.LFSawareness.com

#LFSawarenessmonth #lfsawareness #lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #tp53 #geneticmutation #rarediseases

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Living LFS

@livinglfs.bsky.social

1 month ago

Share if you love someone with LFS!

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #rarediseaseday #lfsawareness #rarediseaseday2026

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Living LFS

@livinglfs.bsky.social

1 month ago

ONE more week until Li-Fraumeni Syndrome Awareness Month! Here are ways you can participate. Check out our website for all details and links: LFSawareness.com

#LFSawarenessmonth #LFSawarenessday #marchislfsawarenessmonth #lfsawareness #lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs

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Living LFS

@livinglfs.bsky.social

2 months ago

Today is International Childhood Cancer Day, a global campaign to raise awareness for childhood cancer and support children and their families.

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #InternationalChildhoodCancerDay #pediatriccancer #childhoodcancer

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Living LFS

@livinglfs.bsky.social

3 months ago

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter

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Living LFS

@livinglfs.bsky.social

3 months ago

Thinking of all our friends who know cancering doesn't take a break for the holidays 💙💚

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter

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Living LFS

@livinglfs.bsky.social

4 months ago

12 days till the holidays!
THESE are the 12 months of LFS! 💚🐘💙

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter

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Living LFS

@livinglfs.bsky.social

5 months ago

10 Days of Thankful.
We are Thankful for the countless researchers past and present who strive to find answers, treatments and options for our rare families with Li-Fraumeni Syndrome.

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #p53 #tp53 #tp53gene #LLFS #cancerresearch

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Living LFS

@livinglfs.bsky.social

5 months ago

10 Days of Thankful.
We are thankful for our caregivers. Often times in LFS, multiple family members are facing cancer at the same time- putting a burden on caregivers. Thank you to the caregivers in our lives, it takes a village!

#lifraumenisyndrome #livinglfs #iamlivinglfs #caregivers

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Living LFS

@livinglfs.bsky.social

6 months ago

Thinking of our stage 4 friends today and those we have lost from this horrible disease. Stage 4 needs more!

#lifraumenisyndrome #livinglfs #iamlivinglfs #breastcancer #breastcancerawareness #breastcancerawarenessmonth #metastaticawareness #stage4needsmore #metastaticawarenessday #metavivor

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Living LFS

@livinglfs.bsky.social

6 months ago

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #LLFS #mentalhealth #breastcancerawareness #breastcancerawarenessmonth

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Living LFS

@livinglfs.bsky.social

6 months ago

Link to the Toronto Protocol: livinglfs.org/screening-th...

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #cancerfighter #breastcancer #breastcancerawarenessmonth #breastcancer #feelitonthefirst

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Living LFS

@livinglfs.bsky.social

6 months ago

You can find the book here: amzn.to/3PQnvf2

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember

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Living LFS

@livinglfs.bsky.social

6 months ago

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember

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Living LFS

@livinglfs.bsky.social

6 months ago

#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember #BrysonBrave

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Living LFS

@livinglfs.bsky.social

6 months ago

Our applications for the 2025 Fall Living LFS Spring Hardship Grants are now closed!

If you'd like to contribute to Living LFS Hardship Grants donate here:
livinglfs.org/donate/ .

#lifraumenisyndrome #livinglfs #iamlivinglfs #cancergenetics
#LLFShardshipgrants #hardshipgrants