How long till the first wave of diabetic nephropathy starts hitting the Adult #CysticFibrosis clinics? The new era of highly effective #cftr modulators bring a bundle of ‘regular’ maladies to CFers #ElexacaftorTezacaftorIvacaftor #alyftrek #deutivacaftor #lumacaftor #ivacaftor

Two steps closer to #ivacaftor #kalydeco - letter confirming eligibility and prerequisite eye test done ✅ (kind optician squeezed her in at last minute @VisionExpress thank you)

#cysticfibrosis

So sometimes you are given news the magnitude of which is hard to process.

News we have waited many years to receive. She is eligible for one of these miracle drugs #ivacaftor #kalydeco. We cried tears of hope. She is being given more tomorrows.

Thank you #NHS you are amazing