4 months ago
Baring our bones – the importance of writing and talking openly about our experiences of mental…
Baring our bones – the importance of writing and talking openly about our experiences of mental illness, and the emergence of a #metoo movement of our own.
The shame has lit the way.
I was quite invisible until a few years ago, when an article I wrote about mental health shaming within my own profession of clinical psychology (https://thepsychologist.bps.org.uk/threat-coming-inside-house) was published in The Psychologist magazine. I wrote about how I had noticed on social media that some of the most vicious shaming, directed at those who had plucked up the courage to write about their own lived experience of mental illness, came from mental health professionals themselves. I also referred to a study that showed how clinical psychologists with lived experience are afraid to speak up at work about their difficulties, and that the shaming comes from members of my own profession.
The cruelty is the point.
After my article came out, the slow but steady drip drip of mental health shaming I had previously experienced immediately became a torrent. Replies to my posts seethed and squealed with anger and bitterness, as though my personal account had somehow been read as an attack on those who had dismissed my article (which I suspect they had not in fact read) as evidence of my ‘biomedical extremist’ (sic) bias.
Shaming was a theme: I was described as drugged, a drug pusher, drugging my children, a psycho, personality disordered, a narcissist, and playing the victim. Oddly, I was accused of harming survivors, even though my article was largely based on my own survival, and that of service users whose adverse experiences with psychiatry I had quoted at length.
Since then, the shaming has continued, although these days it has receded to a very slow trickle rather than a roar. Sometimes it is overt, crass, and shrill, a kind of fire and brimstone reminiscent of the ranting of a peripatetic whisky priest, but at other times it seems a sort of verbal D flat, embedded in a quasi-philosophical discourse led by pretentious professors who drip with disdain at those deemed weak for succumbing to mental illness, and who rail at the power wielded by psychiatry and the medicalisation of ‘normal distress’.
I would emphasise that my allies who are currently receiving care from mental health services are also subject to exactly this kind of shaming and this often has an adverse impact on their mental state. Even declaring in their bios that they are mental health patients and/or disabled provides no immunity from mental health slurs. I have seen my friends and colleagues frequently described as ‘borderline’, ‘narcissistic personality disorder’, ‘exhibiting the dark Triad personality’ ‘cluster B’…all the while railing against the validity of formal diagnosis and even the reality of mental illness itself.
We are not the real target.
I am not well known, I am not an influencer or a public figure.
I am a ‘nobody’, just a woman with a distant history of mental illness. The things I care most about in my life are my family, my writing, my small private practice, and my advocacy for people with mental illness to be heard, not silenced. To me, this is quite a modest focus, which, on the surface at least, appears uncontroversial and almost quaint.
And yet, every day on twitter, someone from the self-defined anti-psychiatry network will comment that I’ve either opened up too much and am therefore unfit to be a clinical psychologist, or I’ve not opened up enough and am guilty of creating a false narrative. I have noticed a pattern on social media where my followers and colleagues are frequently described as ‘liars’ for talking about their mental illness, their ADHD, their Autism, and their cancer diagnoses.
Our detractors know nothing about us apart from the bare bones that they see on social media, and they selectively attend to those comments that reinforce their anger at us, appearing not to notice when we discuss quite explicitly the challenges we have had with mental health services.
It is as though they spray our tweets with a cognitive Luminol, highlighting only the evidence they seek, rather than the complex context in which it is embedded. If the Luminol doesn’t show up anything, then they will create their own evidence, distorting our messages by cutting and pasting, or describing our first person accounts of our experiences as merely irrelevant anecdotes.
They will gnaw on a tweet like a bone, and they will work on it until they can find even a speck of dried marrow in it.
I apologise (for failing to provide them with the salient information to which they feel so entitled).
I initially felt intimidated and even threatened by these comments, worried that they would upset my family and my patients who follow me on social media. But what concerned me far more was that my followers, the majority of whom suffer longterm mental illness and/or physical disabilities (and do not have a fraction of the privileges that have been bestowed on me throughout my life) might infer that by opening up about their lived experiences, they, too, will become targets of hate and malice for the non-crime of having lived experience of mental illness and, even worse (in the red-rimmed eyes of our detractors), seeking effective treatment for it.
Paradoxically, perhaps I should be flattered that their responses often include demands for me to strip off more of my skin, right down to the bone. It is possible, I suppose, to see this extraordinary level of curiosity as a form of compliment, possibly unintended, as they dedicate such a major part of their “one wild and precious life” to scrutinising our tweets behind blocks, taking the time to save them in their photo albums, and then posting them as screenshots (which often have been doctored or tampered with, but never mind).
I apologise to them for my inconvenient and incomplete narrative as a mental health professional with lifelong experience of mental illness in myself and in my family: past, present, and future. I also apologise for being unwilling to strip myself down sufficiently to reveal the chaos, the damage, and the harm that arose from a childhood frequently darkened by the shadows and storms of our father’s severe mental illness, which no doubt played a significant role in precipitating my own experience of psychosis as a teen.
Why haven’t I just served them a cocktail of the cliché of biology, trauma, and psychedelics that were such key components of my breakdown, and be done with it?
The reason I have not done so is that I don’t believe they have the capacity to bear it. Given the extreme sensitivity and squeamishness they display whenever I mention medication, ECT, or the importance of holding on to hope, I really do not believe they have the stomach to read about many years of overdoses, suicide attempts, ambulances and repeated hospitalisations, or the harrowing drama of attempted parricide that my siblings and I still repeatedly recall, illuminated as if by flashes of lightning, and which continue to be profoundly and indelibly imprinted on our psyches forever.
No, I don’t think that my detractors could handle that, and so I continue to withhold the vast majority of my experiences and narrative from their peeping Tom eyes.
I understand that I have let them down by refusing to put my entire life up for grabs. But I never got a copy of the invisible contract they appear to have written, stating I am fair game. I always thought the ‘fair game’ policy belonged to a famous church cult, the same one that was responsible for a relative’s death many years ago.
I also naively believed that referring to medication as poison, and claims that psychiatrists should be tortured and executed was cultish, as it reminded me of a friend whose medication was tossed out of a speeding automobile by the wild eyed leader of the cult known as The Family, whose actions became irreversible steps in hurling her to her eventual death.
Can you see where this is going?
Their efforts to silence you reveals their fear of your power.
The attacks, not surprisingly, emanate from a group who deny the existence of mental illness, deny the value of psychiatric treatment, and who substitute formal terminology with archaic words and descriptions, often including slurs that I have not heard since the 1960s.
Much of the time, the verbal abuse misses its mark simply because mental illness is so stubborn, it really does not GAF about anyone’s opinions. People will seek psychiatric treatment if they need it, regardless of what @ProfessorQuack or @Psychiatryismurder has to say about it.
What does matter a lot, however, is that these sustained and repeated efforts to invalidate a person’s individual personal memoir are a form of silencing. The critics’ words are an orchestrated and deliberate act to snuff out our deeply personal histories, and to stifle and break the fledgling courage shown by each and every individual who takes the first brave step to write about their deeply painful and often dramatic experiences.
That is the wound that they inflict.
I have gradually come to realise that the enormous and repeated efforts to silence those of us who speak up have helped me not only to recognise the potential power I have, but also to realise how that very power arises from my ability to write about my experiences as a mental health professional with extensive, intergenerational, lived experience of mental illness.
I am not a confident writer, and I believe that confidence would actually be detrimental to my work. What I do have is fear, and the ability to face that fear and to write and be open in spite of it. My mantra when I face the blank page is “I’m going to totally fail at this, but I’m going to do it anyway.”
I know that if anyone has read past the first couple of lines of my essays, they have engaged, and whether they love it or hate it or just shrug after they read it, they’ve taken note of my experience.
The deeper we go, the brighter the light is when we surface.
I endeavour to become braver and bolder in writing about mental illness, but in order to become so requires repeated delving into many dark realms of my life.
I aspire to be like the spelunker who takes the risk of diving into the deep, dark, echoic caves, but returns to the surface with a treasure from the past.
The fear we constantly try to overcome is driven by the possibility that during our exploration we may find ourselves pinned down by a falling 30 pound rock, or we find that our route, lit only by the limitations of our small headlamp, becomes so narrow that we are trapped, breathless and panicky.
We cannot let our fear stop us from exploring the cave, and that is why we need courage.
Our solidarity and mutual support is an essential source of our courage.
Me too, you too, us too. We are not alone.
As a woman, I am more likely to be a target on social media, by both men and women.
This is not just my own biased impression. The facts are that, as women, we are more likely to be targeted, especially through shaming. Women are also three times more likely to develop mental illness during our lifetimes. So if you consider women who write about our experiences of mental illness on social media…well, you do the math.
For me, my inspiration and resolve comes from those courageous women who have been here before me. Writers who have been bold and gutsy and fearless enough to bare their souls in order to communicate about mental illness to a sceptical public. Gilman, Woolf, Plath, Wurtzel, Jamison, Kazen, Saks….all trailblazers who cleared the first paths and whose books have provided signposts for us to follow.
More recently, I have derived courage from the examples of a diverse range of writers including Linda Gask, Rebecca Lawrence, Laura Delano, Rachel Aviv, Kai Conibear, and bloggers/writers such as Lisa Wallace, Cara Lisette, Tania Gergel, Hannah Belcher, Bella Mackie, Sarah Bailey, Eleanor Mandelstam, and so many others, patients and professionals, who have taken the risk of plunging into the icy and shark infested waters of making their stories public in the age of social media.
Staying hopeful, incurably so.
Despite the efforts to crush our morale, most of us remain hopeful, maybe even incurably so. We are quite a tribe, and we do not let our differences become obstacles to our sense of community. Our experiences are extremely diverse, but we find communality in our sense of “I’ve been there, too.”
We need to set our own goalposts.
If our writing enables just one reader to nod and say to themselves, “Me too, I’ve been there”, then that is the reward that awaits us as we tear ourselves open in order to write about our experiences of mental illness.
#mentalhealth #mentalillness #mentalillnessstigma Baring our bones – the importance of writing and talking openly about our experiences of mental… @DrAnnieHickox
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