#vps13forum hashtag - Bluesky

Advocacy for Neuroacanthocytosis Patients (NA Advocacy)

@na-advocacy.bsky.social

2 months ago

You're invited to the 24th VPS13 Forum!

Topic: Recent insights into VPS13 / BLTP (Bridge-like Lipid Transfer Proteins) structure and function

📍 Email info@naadvocacy.org to request the full link to join the Forum.

#VPS13Forum #VPS13Adisease #XKdisease #ResearchCollaboration

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Advocacy for Neuroacanthocytosis Patients (NA Advocacy)

@na-advocacy.bsky.social

4 months ago

Join us online today from 13:00 (find your local time here: tinyurl.com/23rd-VPS13-F...).

📍 Email info@naadvocacy.org to request the link to join the Forum, if not already done so.

#vps13forum #neuroacanthocytosis #internationalsymposium #vps13adisease #xkdisease #ResearchCollaboration

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Advocacy for Neuroacanthocytosis Patients (NA Advocacy)

@na-advocacy.bsky.social

5 months ago

You're invited! News & Impressions from the 12th International Meeting in Lausanne.
📍 Email info@naadvocacy.org to request the link to join the Forum.

#VPS13Forum #neuroacanthocytosis #InternationalSymposium #VPS13Adisease #XKdisease #ResearchCollaboration

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Advocacy for Neuroacanthocytosis Patients (NA Advocacy)

@na-advocacy.bsky.social

8 months ago

📰 Our latest NA News is out!
Catch up on exciting research news, past and upcoming events, and how your support is making a real difference in the world of #neuroacanthocytosis syndromes.

💙 Read it here: newsletter.naadvocacy.org/1weni11t607?...

#VPS13Adisease #XKdisease #VPS13Forum #RareDisease

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Advocacy for Neuroacanthocytosis Patients (NA Advocacy)

@na-advocacy.bsky.social

9 months ago

22nd VPS13 Forum: "Novel functions of VPS13 and XK proteins" | LinkedIn To join, message us here or email info@naadvocacy.org for the full Zoom link. A G E N D A 1 Advocacy updates Representatives of the Neuroacanthocytosis Advocacies 2 Conference update Muhammad An...

🧬Join us - 22nd VPS13 Forum: "Novel functions of VPS13 and XK proteins" (check your local time: tinyurl.com/22ndVPS13Forum) To join, message us here or email info@naadvocacy.org for the Zoom link.

www.linkedin.com/events/22ndv...

#Neuroacanthocytosis #VPS13Forum #VPS13Adisease #XKDisease

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Advocacy for Neuroacanthocytosis Patients (NA Advocacy)

@na-advocacy.bsky.social

11 months ago

Two weeks to go! Don’t forget to send in your question(s) as early as possible. The panel of medical experts will answer them live in the meeting. Message us here or send them to info@naadvocacy.org
The meeting details: fb.me/e/2XSvQ2Zvj
#neuroacanthocytosis #VPS13Adisease #XKdisease #VPS13Forum

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Advocacy for Neuroacanthocytosis Patients (NA Advocacy)

@na-advocacy.bsky.social

1 year ago

Join us online tomorrow from 13:00 GMT (find your local time here tinyurl.com/f8v9pf3y ) to hear about interesting research on lipid transfer and calcium, and be part of the conversations after the presentations.

#neuroacanthocytosis #vps13adisease #xkdisease #vps13forum #ResearchCollaboration

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