It use to be “Ugh here comes the fatigue, time to call it a day”.

To

“Ugh here come the fatigue” followed by projectile vomiting before I can even sit down”.

Fun stuff 🙈

Haven’t been on much the last few weeks. Been working on getting beehives ready. Cleaning, painting setting level pads for them. Still a lot to do but it’s taking a lot longer than it use to.

The MS decided it wanted the main character role in this saga. 🙄

Have your say: PIP Review and tips for sharing your views and experience The Review into Personal Independence Payment (PIP) has started. Have your say today!

A review of PIP is underway in the UK and those of us with #MS have been invited by @mssocietyuk.bsky.social to get involved. If you have the time & energy, please feel free to contribute as you wish 😀

www.mssociety.org.uk/research/new...

My pal Dave got dxed w #MultipleSclerosis while in the Navy. He's a leader in the Illinois MS community & helped me get my life back on track. Here he is in his "Proud uncle of a Marine" cap.

Is there a vet in your life who has MS?

Find support for #veterans w MS: tinyurl.com/te65xnek #disability

Octopus Update February 2026 - UK MS Register Blog We know many of you have been waiting a long time. We are very grateful for your patience and for staying with us. Your support helps make this trial possible. Thank you to those of you who gave us fe...

Did you know that the UK MS Register host the expression of interest for the Octopus trial? This is a revolutionary trial that will transform the way we test treatments for Progressive Multiple Sclerosis (MS).

You can read the latest update from the trial here:
blog.msregister.org/octopus-upda...

Det låter riktigt gott! Jag kan knappt vänta tills det blir lite varmare så jag också kan njuta av något sånt

Oh good, I’m not the only one that has a public tantrum when parts decide not to work like a normal human lol

I struggled with slowing down and pacing myself. Took awhile but I finally got into a groove. That and working out what foods make me feel like garbage the next day or two.

Research Discovery: Multiple sclerosis may have two distinct subtypes.

Diseases Affected: Multiple sclerosis (MS).

Key Findings: By comparing a blood-based biomarker (a protein called sNfL) and MRI scans and using AI modeling, scientists have identified two separate biological patterns for MS, based on the stage at which the protein is detected in the blood serum.

What’s Next? If this discovery is validated in further studies, it could help doctors provide more customized treatment for patients, depending on which subtype of MS they have and the stage of its progression.

By analyzing levels of the protein sNfL in blood serum, researchers at @ucl.ac.uk have identified two distinct subtypes of multiple sclerosis (MS), which appear to progress at different rates and begin in different brain regions. #MultipleSclerosisResearch #MSResearch

Multiple Sclerosis Diagnostic Criteria Explained YouTube video by Dr. Brandon Beaber

Multiple Sclerosis Diagnostic Criteria Explained in graphical form youtu.be/GSHrMn9w0lM?...

Psychology of Gen X YouTube video by Psychology Simplified

Interesting take on Gen-X physiology — feels accurate.

Grew up unsupervised taking apart TVs, VCRs, Atari, kitchen appliances… then got yelled at/hit with a belt, wooden spoon, or that wooden beach chair arm that every house seemed to have. Wouldn't trade it for anything 😂

youtu.be/G5YmIqYSqA0

Massive subsidence swallows a Schuylkill County family's backyard swimming pool YouTube video by WNEP

This happened 45 min from me. Should help you sleep better 😂

youtu.be/zYh-uZRHd10?...

No I woke up and blamed the dog for shaking the bed. Then it happened again and woke up and as I was about to yell at the dog noticed my legs shaking lol

Maybe they can track down the one that keeps getting into my trash bin 😆

I also have issues with temp regulation. It gets to be so annoying. For me (we all are different) a quick hot shower usually resets it for awhile. But sadly that’s about all that helps.

That’s ridiculous. Hope you can get seen soon bud. 🫂

The Ability Toolbox: Mental Health, Disability & Chronic Illness Life Hacks The Ability Toolbox is a support community for people with disabilities, chronic illnesses, & mental health conditions to share life hacks.

Thanks @theabilitytoolbox.bsky.social for adding our MS Sucks journal to your site.

Follow them and check out their resources for people with disabilities. theabilitytoolbox.com

My father had it on in another room and sat there yelling at the tv until I told him to quit trying to stress test his pacemaker and turn the tv off 😂

FDA Rejects Tolebrutnib (MS Drug) YouTube video by Dr. Brandon Beaber

FDA Rejects Tolebrutnib by @brandon-beaber.bsky.social

www.youtube.com/watch?v=9LFd...

Senile President of the United States, Donald Trump on stage at the 2025 Davos Annual meeting telling nothing but lies.

I felt the same and the. I realized, the guy I do give it to, will most likely give it to him anyway at some point so I may as well just put my blinders on and get a little joy 🙈🙉🙊

Darn. I just order it from Amazon and have it auto shipped every few months.

I use Native shampoo, conditioner and bodywash because they have the pumps on them.

Thanks 🧡

Briumvi infusion bag hanging from an IV pole beside infusion pumps, sunlight coming through a hospital window.

B-Cell Eviction Day!

It was 10° F when I left the house this morning. Usually going out in this temp is a big NOPE for me, but I went with enthusiasm because I’m so over this crap gap.

Downloaded life.
Got MS instead.
0/5 stars. Would not recommend.

Hope you feel better soon 🧡

She hasn’t. Tumors keep popping up in the most hard to reach places. Ends up in hospital for weeks to months at a time often for infections. I honestly don’t know how she does it. I’d of checked out long ago after seeing all she’s been through over the last 7 years.

CAR-T uses your own cells right? That’s a huge difference to other stem cell therapies

My friends treatment was for cancer and it used donor cells and she ended up with Graft vs Host Disease where the OG cells and Implanted cells fight, leavening her without tumor suppression like we have normally

I’ve seen mixed results. Some swear by it. Some no so much.

I’m on the fence. Anything stem cells make me pause. I have a good friend that did stem cell stuff and it went horribly wrong. I need to see data and numbers.

Although, after learning how some of these cd20 numbers were derived… oof. 🤣